my sister who is coeliac and hyperthyroid was recently diagnosed with SLE following episodes similar to this. She is tiny.
She lost her vision during episodes and it could take days to improve. She had not been prone to migraines, and was eventually diagnosed with giant cell vasculitis. It later impacted her swallowing and sight. She is now on HCQ and Methatrexate.
I can understand your concern. Intercranial hypertension can be serious. I have had signs of intracranial hypertension on a routine MRI. When I later had a severe migraine episode with vomiting, the MRI was repeated as well as vision tests. They concluded the episode was likely not related. All this is to say that the problem is very complicated. Since you have MCTD, the neurologist will put everything together and make a diagnosis.
That is great news about your vision. I wish I could help more. It is just one of those issues that has to he left to experts.
So after my last post and another headache, ended up admitted into A&E emergency CT scan and 7 days in hospital for an MRI. So an incidental finding of an arachnoid cyst and cavum septum pellucidum et verge ( congenial condition very rare apparently)
So the intracranial ( yes it is 'ra' not er cranial) pressure is still persisting but they chose not to do a spinal tap at the time. My eye is still blurry.
Still waiting to see a neurologist this week and a neuro opthalmologist as well now 😮 but no date as yet.
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