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struggling to get diagnosed
Since I was 13 I have been dealing with significant pain in my lower abdomen and back, particularly during my menstrual cycle. The intensity of the pain has been increasing, to the point where it is impacting my ability to carry out normal daily activities some days. Additionally, I have been experiencing
Since I was 13 I have been dealing with significant pain in my lower abdomen and back, particularly during my menstrual cycle. The intensity of the pain has been increasing, to the point where it is impacting my ability to carry out normal daily activities some days. Additionally, I have been experiencing
Ca1t7yn
in
Endometriosis UK
2 months ago
Curious about using the tens unit
Has anyone tried this for RLS? If so, where did you place the pads and how much did it help?
Has anyone tried this for RLS? If so, where did you place the pads and how much did it help?
Fleur29
in
Restless Legs Syndrome
2 months ago
The problematic 2nd dose of the day
Good evening. Wondering if anybody else experienced similar or if you’ve any idea why the following happens: my first CL of the day works reasonably well (although I only get two hours of relief from it). The second thought is really bad: after my first dose I go badly off (it’s been getting worse as
Good evening. Wondering if anybody else experienced similar or if you’ve any idea why the following happens: my first CL of the day works reasonably well (although I only get two hours of relief from it). The second thought is really bad: after my first dose I go badly off (it’s been getting worse as
jeeves19
in
Cure Parkinson's
6 months ago
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DBS awake or under general anesthesia
I've been told that for my DBS operation I will be under general anesthesia. I'm just wondering what others have experienced. I like the idea of a good sleep and waking to find the operation over but I was under the impression that when done awake the patient can indicate when the probes are correctly
I've been told that for my DBS operation I will be under general anesthesia. I'm just wondering what others have experienced. I like the idea of a good sleep and waking to find the operation over but I was under the impression that when done awake the patient can indicate when the probes are correctly
gingerj
in
Cure Parkinson's
6 months ago
First post.
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
TiaPasha
in
PMRGCAuk
3 months ago
Is this bladder endo
Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian cysts etc awaiting lap to get a full picture. Yesterday I was sat curled up no reason just comfort, when I moved I had the most intense pain from
Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian cysts etc awaiting lap to get a full picture. Yesterday I was sat curled up no reason just comfort, when I moved I had the most intense pain from
Lornalost89
in
Endometriosis UK
3 months ago
Vagal a fib
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
TillyBoss
in
AF Association
6 months ago
Collagen powder and increased stiffness?
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
1rocketman
in
Cure Parkinson's
6 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
6 months ago
DBS??
I’m seriously considering DBS. Would love some feedback from people who have had it done.
I’m seriously considering DBS. Would love some feedback from people who have had it done.
CostaVal
in
Cure Parkinson's
6 months ago
addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
6 months ago
DBS. Did it improve your life as much as you hoped?
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
gingerj
in
Cure Parkinson's
6 months ago
HELLO POM POM SHAKERS: IT’S ANOTHER BIG WEEKEND!!!!
Having just digested the most recent post from the HU Glitterati who enjoyed the Monsal Trail last week (hopefully they have digested the Sunday Lunch and, for some, Bakewell Tart and Pudding!), the scene moves to Manchester. All of our HU A Listers who are turning out on Sunday are running the Manchester
Having just digested the most recent post from the HU Glitterati who enjoyed the Monsal Trail last week (hopefully they have digested the Sunday Lunch and, for some, Bakewell Tart and Pudding!), the scene moves to Manchester. All of our HU A Listers who are turning out on Sunday are running the Manchester
Beachcomber66
Half Marathon
in
Fun Beyond 10K & Race Support
4 months ago
Pain Relief
Hi all Can “anyone” offer me some advice as I’m at the “end of my tether” with pain! I’ve had a Triple Bypass and Mitral Valve Repair. I’ve had a Shoulder Rotator Cuff Repair. I’ve had a Laminectomy for Severe Spinal Stenosis which unfortunately failed and is now worse than before the Surgery! I
Hi all Can “anyone” offer me some advice as I’m at the “end of my tether” with pain! I’ve had a Triple Bypass and Mitral Valve Repair. I’ve had a Shoulder Rotator Cuff Repair. I’ve had a Laminectomy for Severe Spinal Stenosis which unfortunately failed and is now worse than before the Surgery! I
Davewm
in
Pain Concern
9 months ago
W9R2 done
I didn't enjoy that at all. 73° and windy but more it was thar my legs felt heavy from start to finish. Think I had toxic tens from 0 -15 mins and 20 - 30 mins. Did consciously slow down once or twice when getting too puffed but I can confirm that having run for too long by accident last week has not
I didn't enjoy that at all. 73° and windy but more it was thar my legs felt heavy from start to finish. Think I had toxic tens from 0 -15 mins and 20 - 30 mins. Did consciously slow down once or twice when getting too puffed but I can confirm that having run for too long by accident last week has not
Gottamakechanges
in
Couch to 5K
4 months ago
A new approach for treatment of subthreshold bipolar disorders: Targeted high dose levothyroxine+repetitive TMS for mitochondrial treatment
A very interesting paper. Difficult to grab any individual bits for discussion or introduction. The whole paper isn't very long. Even if bipolar disorders are not themselves of much direct interest, it might be worth a quick read because it discusses the control group as well and their ability to tolerate
A very interesting paper. Difficult to grab any individual bits for discussion or introduction. The whole paper isn't very long. Even if bipolar disorders are not themselves of much direct interest, it might be worth a quick read because it discusses the control group as well and their ability to tolerate
helvella
Thyroid UK
in
Thyroid UK
7 months ago
I’m scheduled to have DBS surgery February 29 - if you have had DBS, is there anything you wish you‘d known beforehand?
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
Megafone
in
Cure Parkinson's
7 months ago
Kinder , Gentler and harmless Alternative of DBS
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Farooqji
in
Cure Parkinson's
7 months ago
Tens machine for intermittent claudication
Has any one used a Tens machine for intermittent claudication?
Has any one used a Tens machine for intermittent claudication?
Doggie123-UK
in
Pain Concern
4 months ago
TENS advice
Can those who have had success with TENS share where they put the pads? I know we are all different but I would benefit from some experience. I tried them on my feet for 15 minutes each foot last night without any success. Thanks.
Can those who have had success with TENS share where they put the pads? I know we are all different but I would benefit from some experience. I tried them on my feet for 15 minutes each foot last night without any success. Thanks.
wantokporo
in
Restless Legs Syndrome
4 months ago
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