Is this bladder endo

[Lornalost89]

Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian cysts etc awaiting lap to get a full picture.

Yesterday I was sat curled up no reason just comfort, when I moved I had the most intense pain from my belly button shooting down to my urethra. I went to the loo which caused even more pain I was close to going to hospital it was so intense and severe. It did calm down after a few hours and many painkillers/tens and hotwaterbottles later. However the pain is still there. My stomach is so so bloated and so sore to touch. I cant out any pressure on my tummy directly below my belly button.

It's a very strange sensation I can only describe as like when I've held a wee in for so long and have an ache (sometimes on waking up) but it's alot more intense and I'm emptying my bladder as normal although pain is there in the tummy.

I've never experienced something like this and it's a new symptom for me so any information/guidance greatly appreciated.

(Next gynea app in August x)

[allym92]

It could be bladder endo but it could also be an infection / uti - best to go to your GP to get a urine test in case you need antibiotics. Hope you feel better soon that sounds intense! X

[RosieFalkor]

I have bladder Endo and have never experienced this

[Lornalost89]

Thanks both, I am already on antibiotics for another issue but reading the side affects it could be that feel like im never away from the GP/hospital atm x

[Cocoacupid]

hun I have severe endo in pod ovaries frozen pelvis rectosigmoid and recto virginal thankfully I’m grateful I have had slight relief from my surgery on Monday just gone and can use my bodily function slightly better than before. Before I couldn’t empty my bowel properly or bladder. Because of inflammation in the pod it can cause mild discomfort and inflammation around the bladder and tubes or as other have rightly said possible an infection. Never feel afraid you are always at gp or hospital as they are here to help us. I have been terrified to be honest since last year after my diagnostic lap I had cellulitis which lead to sepsis so now I’m just so worried all the time since Mondays op as have a lot of bruises from my excision surgery still in excruciating amounts of pain. As had a catheter in over night from surgery first couple days was like heaven I could release urine now stop start and hurting in my urethra which I’ve put down to irritation from the catheter as I have fibro I don’t know whether infection or cystitis etc. I did phone the ward last night but no dr rung back or if they did as staying at my parents if the rang my house phone only I’m not there to pick up. So what I’m trying to say is never feel your alone or going to gp etc whilst in my early twenties my pain levels increased significantly every month on the second day of my period I was at the dr gp every month without fail as this was the thing then had the coil and had some relief as a dr recognised symptoms as had blood in urine blood when passing stool and severe clots and doubled over in pain not being able to stand up straight. The first coil expelled I then had the rod but my mental health very bad then I had the depo effected mental health yet again then have had the second coil for nearly five years but last year had massive bleed and clots which they then invastaged as had ovarian cysts and prlvic pain and other pains constantly even though I was on the coil. In my three month follow up with my surgeon goi g to ask if they can update my coil. As I have to have it done in hospital rather than gp as it’s so so painful to have in and out x as I really think the hormones have def run out xx. I honestly believed what others said about being hypochondriac but I wasn’t at all had my diagnosis of severe endo last year at 37 years old and periods had been bad since I started at 10 years old. I then was diagnosed with fibro as I have suspected autism which am being assessed for Tuesday this week. When someone said a diagnosis after 27 years I felt very validated and I was so so relieved. And other mental health conditions that I wanted a second opinion for . Sorry for long message but rest assured when ppl

Have a concrete diagnosis don’t feel bad at all. When we are in severe pain etc when are mental state is feeling worse for ware we who suffer badly need reassurance that it’s not something else like infection etc as having an infection can lead to sepsis if not treated. Take lots of care. Xx

[Ldn6]

Hello, did you ever get a diagnosis? I'm 3 years post exision surgery (mostly on my bowel) and now have a similar issue with my bladder - severe pain when my bladder fills & if I don't empty it I'm in agony, and takes hours to calm down. I can't have anything over my lower tummy as it feels like there's pressure on it. All urology tests negative & bladder looks fine, nothing showing on MRI or ultrasound. Interested to know if it turned out to be endo on your bladder? Thank you.

[Lornalost89 in reply to Ldn6]

Hi. I didn't, my gynea believed it's more likely to be a kidney stone but "not her remit" still battling on had recurring UTIs since and constant antibiotics GP fighting for urology referral but getting no where to be honest xx