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Meds not working well again
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
PDsux_10
in
Cure Parkinson's
4 months ago
deep brain stimulation
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
DonnaMc1968
in
Cure Parkinson's
4 months ago
Tremor Assessment
Has anyone had a tremor assessment prior to deep brain stimulation?
Has anyone had a tremor assessment prior to deep brain stimulation?
Ostap
in
Ataxia UK
5 months ago
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DBS: Medtronic question re. voice
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
jeeves19
in
Cure Parkinson's
5 months ago
vagus nerve stimulation machines and Afib
Has anyone with AFib got any experience of using one of these machines, such as Nurosym, Amofit, Sensate?
Has anyone with AFib got any experience of using one of these machines, such as Nurosym, Amofit, Sensate?
MTBCyclist
in
Atrial Fibrillation Support
5 months ago
Insomnia
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
carlosgarcia2048
in
Cure Parkinson's
5 months ago
TENS UNIT
Has anyone found TENS unit to be helpful in alleviating back pain?
Has anyone found TENS unit to be helpful in alleviating back pain?
Jeaniem130
in
Pain Concern
1 day ago
just how I feel , anyone else feel like this🙁
Great letter sums it up! Hi. My name is Hashimoto's. I'm an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid. I am now velcroed to you for life. If you have hypothyroidism, you probably have me. I am the number one cause of it in the U.S. and many
Great letter sums it up! Hi. My name is Hashimoto's. I'm an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid. I am now velcroed to you for life. If you have hypothyroidism, you probably have me. I am the number one cause of it in the U.S. and many
Prosecco1997
in
Thyroid UK
2 days ago
BJM Investigation - Galleri promises to detect multiple cancers—but new evidence casts doubt on this much hyped blood test, 08/07/2024
Seems the potential conflicts-of-interests between private healthcare companies and government regulators are not limited to the US. The near-universal policy to follow-the-money seems to also hold true in the UK as well. From the BJM Report: * * * [i]Big promises have been made for the Galleri blood
Seems the potential conflicts-of-interests between private healthcare companies and government regulators are not limited to the US. The near-universal policy to follow-the-money seems to also hold true in the UK as well. From the BJM Report: * * * [i]Big promises have been made for the Galleri blood
cujoe
in
Fight Prostate Cancer
9 days ago
My TENS unit experience
I purchased a TENS machine recently having read on various forums of others' success with it for RLS. The first night i went very gently, using it at 1/5th of the recommended intensity for approximately 10 minutes. The second night, i upped the intensity to 1/3 of the recommended amount. I also used
I purchased a TENS machine recently having read on various forums of others' success with it for RLS. The first night i went very gently, using it at 1/5th of the recommended intensity for approximately 10 minutes. The second night, i upped the intensity to 1/3 of the recommended amount. I also used
amrob123
in
Restless Legs Syndrome
14 days ago
Transcutaneous electrical nerve stimulation (TENS)
I would like to share my experience with transcutaneous (that means through the skin) electrical nerve stimulation (TENS), a method of pain relief using a mild electrical current. A TENS machine is a small inexpensive device with electrodes connected to sticky pads. I've been using it on my hands 3 times
I would like to share my experience with transcutaneous (that means through the skin) electrical nerve stimulation (TENS), a method of pain relief using a mild electrical current. A TENS machine is a small inexpensive device with electrodes connected to sticky pads. I've been using it on my hands 3 times
Michel0220
in
Cure Parkinson's
27 days ago
EMG and Afib?
has anyone had an EMG and if so did it trigger Afib? The doctor says it shouldn’t, but my first episode was the day after TENS on my feet at physical therapy… Thanks!
has anyone had an EMG and if so did it trigger Afib? The doctor says it shouldn’t, but my first episode was the day after TENS on my feet at physical therapy… Thanks!
Cabot
in
Atrial Fibrillation Support
28 days ago
AbbVie’s Produodopa approved by SMC to treat Parkinson’s disease patients in Scotland
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
Farooqji
in
Cure Parkinson's
5 months ago
Advice needed
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
bohica666
in
Endometriosis UK
1 month ago
19 year old daughter suffering
Since 14 desperately painful periods were diagnosed so enduring pain throughout the month and not just during her period. So here we are and some weeks ago we were offered on a free trial a groundbreaking new technique of diagnosing Endo without an invasive technique. Professor Amso at Oaktree clinic
Since 14 desperately painful periods were diagnosed so enduring pain throughout the month and not just during her period. So here we are and some weeks ago we were offered on a free trial a groundbreaking new technique of diagnosing Endo without an invasive technique. Professor Amso at Oaktree clinic
MissWilliams
in
Endometriosis UK
1 month ago
Diagnosis Anterior Cutaneous Nerve entrapment syndrome?
I had my ovaries removed in February 2020 via laparoscopy. I had had laparascopic diathermy and laser treatment for endometriosis in my 20s and 30s, but eventually taking the progesterone only pill meant I had no periods at all which was a massive result for me and I took them until I was 52. Unfortunately
I had my ovaries removed in February 2020 via laparoscopy. I had had laparascopic diathermy and laser treatment for endometriosis in my 20s and 30s, but eventually taking the progesterone only pill meant I had no periods at all which was a massive result for me and I took them until I was 52. Unfortunately
Jh987
in
Pain Concern
1 month ago
Myoovi - has anyone tried this and what do you think?
I've looking at getting the myoovi tens machine for my awful endo pain - has anyone tried it and can share whether it's been useful for them? X
I've looking at getting the myoovi tens machine for my awful endo pain - has anyone tried it and can share whether it's been useful for them? X
AFC007
in
Endometriosis UK
2 months ago
Thanks for the replies to my previous post
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
dragonsinger
in
British Heart Foundation
5 months ago
Seeking Advice: Non-Medication Methods for Managing Hand Joint Pain Flare-Ups
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Sophieeeee
in
LUPUS UK
2 months ago
pain?
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
ottercat
in
Cure Parkinson's
6 months ago
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