DBS??: I’m seriously considering DBS. Would... - Cure Parkinson's

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DBS??

CostaVal profile image
9 Replies

I’m seriously considering DBS. Would love some feedback from people who have had it done.

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CostaVal profile image
CostaVal
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9 Replies
Gymsack profile image
Gymsack

I just wish to point out that if you are looking for a consensus that there are many reasons why people who had a negative expieriance will not or can not respond.

pdpatient profile image
pdpatient in reply to Gymsack

Why not, Gymsack ?

Gymsack profile image
Gymsack in reply to pdpatient

That is what you should really be asking the forum .

jeeves19 profile image
jeeves19

You won’t know how it will affect your you until you have it done. Some people it changes their lives amazingly, some people it changes lives a bit and a minority hardly get affected at all. There’s no way you’ll estimate which of these categories you’ll fall into: do your homework and take a chance.

Tribselyov profile image
Tribselyov

a profound placebo effect in most

DeanGreen profile image
DeanGreen

I had DBS surgery about 16 months ago. The surgery was very routine with no complications. In general, it has been a positive experience. The benefits I (everybody is different) enjoy are better sleep and better maneuverability in bed. I am not so dependent on Sinemet any more (many times I'll forget to take it). A negative side effect I have experienced is excessive sweating at low temperatures which can be very uncomfortable. Because I have wires in my brain I am concerned about electromagnetic pulses (EMP) fusing my wires together. Also, a head injury can push the electrodes into vulnerable brain tissue and possibly cause brain injury. If the neurostimulator gets into the wrong hands (e.g. an ex-wife), they can make you feel very uncomfortable.

CostaVal profile image
CostaVal in reply to DeanGreen

Thank you very much for you feedback. Good information 😊

Kitefli profile image
Kitefli

nm.org/-/media/northwestern...

Check this out; THere is also a book by Ferris and Giroux

GermanShepherd79 profile image
GermanShepherd79

I read recently that it decreased cognition. I don’t know if that is true, but ask 5he question before you agree to anything.

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