I’m scheduled to have DBS surgery February 29 - if you have had DBS, is there anything you wish you‘d known beforehand?

[Megafone]

I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery.

Thank you in advance.

Wayne

[garygjs]

Click on the More button underneath the post. An Edit option will appear.

[Megafone in reply to garygjs]

thank you Gary.

[jeeves19]

it can mess with your speech BUt they can create a speech channel for you whenever you need to talk fluently etc

[pdpatient in reply to jeeves19]

jeeves19 . Did the fix work out for you?

[jeeves19 in reply to pdpatient]

Yeah. But I’ve still got some hoarseness not caused by the DBS.

[pdpatient in reply to jeeves19]

So, when the speech channel is used / activated, do you shut down the other channels / programs? In other words,,do you have to sacrifice some other functions such as walking and balance?

[jeeves19 in reply to pdpatient]

No.

[jeeves19 in reply to pdpatient]

it just turns the light that shines too much on the voice bit of your brain.

[Swiftly50]

You may find this podcast interesting.

It's about Paul Mayhew-Archer's experience of having DBS very recently

podcasts.apple.com/gb/podca...

[Jebbie12]

I wish I had known I would feel worse before I felt better. My freezing was so intense I couldn’t move at times before they activated the device. 4 years later, and 15 years with PD I am still active socially and physically

[Megafone in reply to Jebbie12]

I had been told that. I’m expecting it. I’m very glad to hear that you’re physically and socially active. Thank you!