Experiences with

Auditory Stimulation

Hello all, My wife and I just had our second child a month ago. We both agree we only want two children, so I have been planning to get a vasectomy to avoid future pregnancies. Today I met with a vasectomy specialist, and during our consultation, we had a long conversation about concerns with AMN. Because

Whilst I’ve read dozens of posters extolling the virtues of DBS here on the site and have witnessed many stories on YouTube similarly telling of good things, the PWP that I know personally who’ve had it haven’t been so encouraging. 😕 Guy 1 was hoping to reduce his meds but has ended up taking the

I've decided to take the plunge on dbs, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly

For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923

How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?

Hello partners. I just read JPB5's post about their success with the massive IV Iron infusion treatment and therefore I would like to report that I was successful in controlling leg movements with Repetitive Transcranial Magnetic Stimulation. The doctor applied 25 sessions of stimulation to me, in consecutive

I've had idiopathic cerebellar ataxia for a little over a year. Currently undergoing a 10 session ataxia protocol with TMS. Has anybody tried it? More info at SeattleNTC.com

My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS

Can those who have had DBS please share their experiences

An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https

Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria

Who has had TMS therapy, and did it help you?

Hi! My dad is rigidity dominant. He experiences freezing when his meds are wearing off. He didn't qualify for FUS at Sonimodul, but my dad finally has his 2nd meeting with a surgeon, Dr. Munhoz, at Toronto Western Hospital here in Toronto. We have watched Dr. Mischely's PD School on DBS, and have come

Anyone with thyroid issues also have Parkinson’s ? I have both and have just had DBS (deep Brain stimulation) in an effort to eliminate my tremor on the Parkinson’s side. The issue currently seems to be that my neurosurgeon sets my pulse generator to eliminate the tremor checks my balance/ gait and

Hey folks, was on here back in Nov. - Dec. concerning my husband's DBS results. I am happy to report after much trial and error, he no longer has any noticeable Tremors!!! However, I do think it has affected his Personality, he just doesn't seem the same. I cannot say it is entirely due to the DBS,

https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-does-it-work-for-parkinsons?utm_source=dscfb&utm_medium=social&utm_campaign=dscfb&fbclid=IwAR3HO-VgxD3S97LynKzGoSifeGa6pck-V4ZHjn-ejLdGZCrStMrLeAyfOoM

In my ongoing quest to bring attention to PTT in the United States, I emailed Dr. Jeff Elias, a prominent neurosurgeon at the University of Virginia, who already performs other types of focused ultrasound procedures. Here is our email exchange. It's in reverse order so it begins with my response and

Hi, I’m new here. I’m a 73 year old grandma with MDD and severe anxiety. I had both of these issues pretty well under control until Covid. I’m at high risk so have been isolated from family and friends for almost a year now. I’m at my wits end. The only thing that seems to work for my depression is

Hello, I'm waiting to get TMS transcranial magnetic stimulation treatment, which I've learned has helped a lot of people. Meanwhile though I'm just so totally unsure of myself all the time. I don't feel many other emotions except for anxiety and depression symptoms. It feels really scary that every moment

Coming in 2021 for me is a Medtronic DBS battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.