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struggling to get diagnosed
Since I was 13 I have been dealing with significant pain in my lower abdomen and back, particularly during my menstrual cycle. The intensity of the pain has been increasing, to the point where it is impacting my ability to carry out normal daily activities some days. Additionally, I have been experiencing
Since I was 13 I have been dealing with significant pain in my lower abdomen and back, particularly during my menstrual cycle. The intensity of the pain has been increasing, to the point where it is impacting my ability to carry out normal daily activities some days. Additionally, I have been experiencing
Ca1t7yn
in
Endometriosis UK
4 months ago
Curious about using the tens unit
Has anyone tried this for RLS? If so, where did you place the pads and how much did it help?
Has anyone tried this for RLS? If so, where did you place the pads and how much did it help?
Fleur29
in
Restless Legs Syndrome
4 months ago
AbbVie’s Produodopa approved by SMC to treat Parkinson’s disease patients in Scotland
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
Farooqji
in
Cure Parkinson's
7 months ago
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First post.
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
TiaPasha
in
PMRGCAuk
4 months ago
Thanks for the replies to my previous post
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
dragonsinger
in
British Heart Foundation
7 months ago
Is this bladder endo
Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian cysts etc awaiting lap to get a full picture. Yesterday I was sat curled up no reason just comfort, when I moved I had the most intense pain from
Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian cysts etc awaiting lap to get a full picture. Yesterday I was sat curled up no reason just comfort, when I moved I had the most intense pain from
Lornalost89
in
Endometriosis UK
5 months ago
pain?
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
ottercat
in
Cure Parkinson's
7 months ago
The problematic 2nd dose of the day
Good evening. Wondering if anybody else experienced similar or if you’ve any idea why the following happens: my first CL of the day works reasonably well (although I only get two hours of relief from it). The second thought is really bad: after my first dose I go badly off (it’s been getting worse as
Good evening. Wondering if anybody else experienced similar or if you’ve any idea why the following happens: my first CL of the day works reasonably well (although I only get two hours of relief from it). The second thought is really bad: after my first dose I go badly off (it’s been getting worse as
jeeves19
in
Cure Parkinson's
7 months ago
DBS awake or under general anesthesia
I've been told that for my DBS operation I will be under general anesthesia. I'm just wondering what others have experienced. I like the idea of a good sleep and waking to find the operation over but I was under the impression that when done awake the patient can indicate when the probes are correctly
I've been told that for my DBS operation I will be under general anesthesia. I'm just wondering what others have experienced. I like the idea of a good sleep and waking to find the operation over but I was under the impression that when done awake the patient can indicate when the probes are correctly
gingerj
in
Cure Parkinson's
7 months ago
Vagal a fib
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
TillyBoss
in
AF Association
7 months ago
Collagen powder and increased stiffness?
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
1rocketman
in
Cure Parkinson's
8 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
8 months ago
HELLO POM POM SHAKERS: IT’S ANOTHER BIG WEEKEND!!!!
Having just digested the most recent post from the HU Glitterati who enjoyed the Monsal Trail last week (hopefully they have digested the Sunday Lunch and, for some, Bakewell Tart and Pudding!), the scene moves to Manchester. All of our HU A Listers who are turning out on Sunday are running the Manchester
Having just digested the most recent post from the HU Glitterati who enjoyed the Monsal Trail last week (hopefully they have digested the Sunday Lunch and, for some, Bakewell Tart and Pudding!), the scene moves to Manchester. All of our HU A Listers who are turning out on Sunday are running the Manchester
Beachcomber66
Half Marathon
in
Fun Beyond 10K & Race Support
6 months ago
W9R2 done
I didn't enjoy that at all. 73° and windy but more it was thar my legs felt heavy from start to finish. Think I had toxic tens from 0 -15 mins and 20 - 30 mins. Did consciously slow down once or twice when getting too puffed but I can confirm that having run for too long by accident last week has not
I didn't enjoy that at all. 73° and windy but more it was thar my legs felt heavy from start to finish. Think I had toxic tens from 0 -15 mins and 20 - 30 mins. Did consciously slow down once or twice when getting too puffed but I can confirm that having run for too long by accident last week has not
Gottamakechanges
in
Couch to 5K
6 months ago
DBS??
I’m seriously considering DBS. Would love some feedback from people who have had it done.
I’m seriously considering DBS. Would love some feedback from people who have had it done.
CostaVal
in
Cure Parkinson's
8 months ago
addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
8 months ago
Tens machine for intermittent claudication
Has any one used a Tens machine for intermittent claudication?
Has any one used a Tens machine for intermittent claudication?
Doggie123-UK
in
Pain Concern
6 months ago
TENS advice
Can those who have had success with TENS share where they put the pads? I know we are all different but I would benefit from some experience. I tried them on my feet for 15 minutes each foot last night without any success. Thanks.
Can those who have had success with TENS share where they put the pads? I know we are all different but I would benefit from some experience. I tried them on my feet for 15 minutes each foot last night without any success. Thanks.
wantokporo
in
Restless Legs Syndrome
6 months ago
DBS. Did it improve your life as much as you hoped?
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
gingerj
in
Cure Parkinson's
8 months ago
Tens pain relief
Hi all I'm just looking for any information on the beurer em50. I've been looking everywhere for a storage case to make it better when carrying it round with me. Does anyone have any links or anything suitable if you use this too? I know this may not be the best forum but unsure where to ask. Thanks
Hi all I'm just looking for any information on the beurer em50. I've been looking everywhere for a storage case to make it better when carrying it round with me. Does anyone have any links or anything suitable if you use this too? I know this may not be the best forum but unsure where to ask. Thanks
Lornalost89
in
Endometriosis UK
6 months ago
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