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Research Opportunity
Jennifer Todd is carrying out research into fibromyalgia and body awareness. The study is partnered with Versus Arthritis and joining instructions can be found below. š http://ow.ly/au3v50FBked For anyone with any questions, please email jennifer.todd@aru.ac.uk
Jennifer Todd is carrying out research into fibromyalgia and body awareness. The study is partnered with Versus Arthritis and joining instructions can be found below. š http://ow.ly/au3v50FBked For anyone with any questions, please email jennifer.todd@aru.ac.uk
FMA_Reece
Administrator
in
Fibromyalgia Action UK
3 years ago
Stopping meds with COVID 19
Has anyone stopped their meds while they have COVID 19 ? Have just tested positive for COVID 19 having been āpingedā by the app and taking a pcr test. No symptoms so far. My RA is generally very well controlled by 12.5mg of mtx plus sulfasalazine but I am seriously wondering whether to stop the mtx for
Has anyone stopped their meds while they have COVID 19 ? Have just tested positive for COVID 19 having been āpingedā by the app and taking a pcr test. No symptoms so far. My RA is generally very well controlled by 12.5mg of mtx plus sulfasalazine but I am seriously wondering whether to stop the mtx for
Bookworm55
in
NRAS
3 years ago
HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose
Has anyone one heard of shingles being associated with the onset of Giant Cell
Arteritis
???? Thank you for any information you can give. SARose
Has anyone one heard of shingles being associated with the onset of Giant Cell
Arteritis
???? Thank you for any information you can give. SARose
SARose
in
PMRGCAuk
3 years ago
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Firstly why do my legs feel like jelly, (now on 11mg) and secondly what is the threshold for referral to a rheumatologist?
I was first diagnosed with PMR at the start of lockdown and the euphoria triggered by pred was amazing but since then 3 attempts to get below 7mg havenāt succeeded. I walk my dog daily for about 1 hour so I donāt understand why my legs feel so weak. I am in a constant battle with tiredness but I donā
I was first diagnosed with PMR at the start of lockdown and the euphoria triggered by pred was amazing but since then 3 attempts to get below 7mg havenāt succeeded. I walk my dog daily for about 1 hour so I donāt understand why my legs feel so weak. I am in a constant battle with tiredness but I donā
AnniesRyder5
in
PMRGCAuk
3 years ago
Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.
My Large vessel
arteritis
was very severe when assessed by PET-CT scan in November 2018, and I finally started Tocilizumab injections 8 months later.
My Large vessel
arteritis
was very severe when assessed by PET-CT scan in November 2018, and I finally started Tocilizumab injections 8 months later.
Suzita76
in
PMRGCAuk
3 years ago
Tips for coping with chronic pain etc
I posted a link in the Arthritis Action community and thought a lot of the points made apply to PMR too. https://healthunlocked.com/oa-action/posts/146520364/living-with-arthritis
I posted a link in the Arthritis Action community and thought a lot of the points made apply to PMR too. https://healthunlocked.com/oa-action/posts/146520364/living-with-arthritis
HeronNS
in
PMRGCAuk
3 years ago
Positive results on RA patients taking Vitamin K2 , whats your thoughts on this one?
Hi everyone I have been researching the benefits and side effects of Vitamin K2 MK-7 and how it can lower the calcification in the arteries then came across this interesting article about Rheumatoid Arthritis patients. Quote "The present study revealed that administration of MK-7 (100 Āµg/d) to RA patients
Hi everyone I have been researching the benefits and side effects of Vitamin K2 MK-7 and how it can lower the calcification in the arteries then came across this interesting article about Rheumatoid Arthritis patients. Quote "The present study revealed that administration of MK-7 (100 Āµg/d) to RA patients
Frankiefocus
in
NRAS
3 years ago
Sooo Frustrated!!!
I had a phone appt last week to discuss my going onto biologics as the only DMARD I can tolerate is up to 17.5 of MTX and I am in constant pain. I was diagnosed wth inflammatory arthritis in 2013 and have been on MTX ever since, with other DMARDs added then discarded. I had been told by my Rhuemy nurse
I had a phone appt last week to discuss my going onto biologics as the only DMARD I can tolerate is up to 17.5 of MTX and I am in constant pain. I was diagnosed wth inflammatory arthritis in 2013 and have been on MTX ever since, with other DMARDs added then discarded. I had been told by my Rhuemy nurse
Diamondpainting
in
NRAS
3 years ago
Positive rheumatoid factor
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
Kels1974
in
NRAS
3 years ago
Open for recruitment: Manchester Digital Pain Manikin Study
Dr Sabine van der Veer, Chief Investigator is explaining "chronic pain and its measurement" and talking about a smartphone-based research opportunity that is open for all, who are suffering from fibromyalgia, osteoarthritis or rheumatoid arthritis. Learn about the study and express your interest at painmanikin
Dr Sabine van der Veer, Chief Investigator is explaining "chronic pain and its measurement" and talking about a smartphone-based research opportunity that is open for all, who are suffering from fibromyalgia, osteoarthritis or rheumatoid arthritis. Learn about the study and express your interest at painmanikin
MyDD
in
Pain Concern
3 years ago
Can anyone help with sleep advice and coming to terms with these conditions?
Hi recently diagnosed with fibamyelgia and osteoarthritis , I am feeling very overwhelmed and although everyone keeps telling me it's good news that we finally know I haven't taken it very well, im only 37 I don't want to live like this for the rest of my life! So my 2 questions are how can I get some
Hi recently diagnosed with fibamyelgia and osteoarthritis , I am feeling very overwhelmed and although everyone keeps telling me it's good news that we finally know I haven't taken it very well, im only 37 I don't want to live like this for the rest of my life! So my 2 questions are how can I get some
Cat1969
in
Fibromyalgia Action UK
3 years ago
Statins and Rituximab
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like Rituximab, did you experience any side effects?
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like Rituximab, did you experience any side effects?
-Mii
in
NRAS
3 years ago
Recommendations for the best London Hospital
Hey there, Can anyone recommend a London based Hospital with the best rheumatology department or a good specialist in Rheumatoid Arthritis? Iām not getting the right care or help with my current team and Iām going to change. My condition just keeps getting worse and Iām so worried and fed up. Any suggestions
Hey there, Can anyone recommend a London based Hospital with the best rheumatology department or a good specialist in Rheumatoid Arthritis? Iām not getting the right care or help with my current team and Iām going to change. My condition just keeps getting worse and Iām so worried and fed up. Any suggestions
Jellybean45
in
NRAS
3 years ago
Hello everyone
I was diagnosed with temporal
arteritis
in April 2021 after experiencing temporal headaches, visual disturbances and jaw claudication for quite a while but self medicating and thinking it was just stress/tension.
I was diagnosed with temporal
arteritis
in April 2021 after experiencing temporal headaches, visual disturbances and jaw claudication for quite a while but self medicating and thinking it was just stress/tension.
Avon14
in
PMRGCAuk
3 years ago
Have been told autoimmune.. After being treated for Giant cell arteritis..they think SLE
I have developed tiny white spots on 2 of my knuckles and are painful if knocked does this happen with all autoimmune or specific ones ..Been trying to learn up but not sure just trying to see I also have issues with large stools ..and gut problems lungs throat and spasms on face headache tightness
I have developed tiny white spots on 2 of my knuckles and are painful if knocked does this happen with all autoimmune or specific ones ..Been trying to learn up but not sure just trying to see I also have issues with large stools ..and gut problems lungs throat and spasms on face headache tightness
suitcase1
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Rheumatologist consultation since my original post
Today I have, finally, received a copy of a letter from my Rheumatologist, sent to my GP, following my consultation on the 1st July. Under āDiagnosisā she has written; ?Polymyaglia Rheumatica, ?Ploymyalgic Arthritis. So, apparently, the jury is still out! Under āMedicationā she has put; 1. Prednisolone
Today I have, finally, received a copy of a letter from my Rheumatologist, sent to my GP, following my consultation on the 1st July. Under āDiagnosisā she has written; ?Polymyaglia Rheumatica, ?Ploymyalgic Arthritis. So, apparently, the jury is still out! Under āMedicationā she has put; 1. Prednisolone
Flivoless
in
PMRGCAuk
3 years ago
Help to deal with osteoarthritis.
I suffer from arthritis on my neck, both shoulders, both elbows, left arms including my fingers, left hip and on my left knee which is causing my left knee to suffer from cramps while on sitting position. What kind of support is out there? As my GP only prescribe painkillers Thisās affecting my daily
I suffer from arthritis on my neck, both shoulders, both elbows, left arms including my fingers, left hip and on my left knee which is causing my left knee to suffer from cramps while on sitting position. What kind of support is out there? As my GP only prescribe painkillers Thisās affecting my daily
TM_Mansaray
in
Arthritis Action
3 years ago
Just been told what I have is lupus and maybe more autoimmune things
HI Can I just start by saying They thought I had Giant cell
arteritis
.
HI Can I just start by saying They thought I had Giant cell
arteritis
.
suitcase1
in
LUPUS UK
3 years ago
Back pain
Hi everyone Iāve finally seen my RA consultant, first time since 2019, my recent spine X-ray done last December due to severe lower back pain has shown osteoarthritis, Iāve also had a scan for osteoporosis which I apparently have as well. The consultant has recommended amitriptilene for pain relief
Hi everyone Iāve finally seen my RA consultant, first time since 2019, my recent spine X-ray done last December due to severe lower back pain has shown osteoarthritis, Iāve also had a scan for osteoporosis which I apparently have as well. The consultant has recommended amitriptilene for pain relief
Freddiefan
in
NRAS
3 years ago
Apixaban and joint pain...
Hi all, I'm looking for advice from anyone who has changed from Warfarin to Apixaban. Exactly a year ago this month I asked my GP to make the change which he duly did but I think I'm starting to regret it now, only because in that year, my health in other areas appears to be going awol! Namely that
Hi all, I'm looking for advice from anyone who has changed from Warfarin to Apixaban. Exactly a year ago this month I asked my GP to make the change which he duly did but I think I'm starting to regret it now, only because in that year, my health in other areas appears to be going awol! Namely that
Chris1945
in
AF Association
3 years ago
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