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Psoriatic arthritis?
Update…Jan. 2022. Have seen a dermatologist for my scalp finally after nearly 3 years of suffering, and I do indeed have scalp psoriasis. Everything prescribed has not worked. I have been told by my GP when I asked to be referred to a Rheumatologist , as I have had osteoarthritis for years, to see
Update…Jan. 2022. Have seen a dermatologist for my scalp finally after nearly 3 years of suffering, and I do indeed have scalp psoriasis. Everything prescribed has not worked. I have been told by my GP when I asked to be referred to a Rheumatologist , as I have had osteoarthritis for years, to see
flakingscalp
in
Beyond Psoriasis
3 years ago
Pain relief
Hhi there. I'm currently taking MST for pain relief and I've been told in passing from a GP that I may be better on subutex. I was wondering if anyone can h help me.. Will it be a straight forward transition to subutex or will I have to have a break from the morphine before starting subutex
Hhi there. I'm currently taking MST for pain relief and I've been told in passing from a GP that I may be better on subutex. I was wondering if anyone can h help me.. Will it be a straight forward transition to subutex or will I have to have a break from the morphine before starting subutex
Peggysue12345
in
Pain Concern
2 years ago
Combined ttherapy
As Ruxolitinib is no longer working well, my haematologist has suggested combining either Danazol, Thalidomide or Prednisone with the Ruxo. Has.anyone any experience of this? What are the pros and cons? I am very worried about the side effects. Thankyou SkipperL
As Ruxolitinib is no longer working well, my haematologist has suggested combining either Danazol, Thalidomide or Prednisone with the Ruxo. Has.anyone any experience of this? What are the pros and cons? I am very worried about the side effects. Thankyou SkipperL
skipperL
in
MPN Voice
3 years ago
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High Altitude
Hi all, This is a rather random query. I have PV,taking 45 mg Peg weekly,and having monthly venesections at the moment,which I hope will decrease soon,once the Peg starts taking effect. Has anyone out there with similar diagnosis and symptoms, ventured on a holiday doing gentle (skiing)activity at high
Hi all, This is a rather random query. I have PV,taking 45 mg Peg weekly,and having monthly venesections at the moment,which I hope will decrease soon,once the Peg starts taking effect. Has anyone out there with similar diagnosis and symptoms, ventured on a holiday doing gentle (skiing)activity at high
Bobadog
in
MPN Voice
3 years ago
has anyone been told they have enthesitis? Does that come only with PsA or also RA? Could fibromyalgia diagnosis actually be enthesitis?
I was diagnosed with Fibromyalsia and then a year later I was told I have fibromyalgia and RA. Then yesterday, a year and a half later, I was told I have psoriatic arthritis and not RA. I have always said that my muscles and ligaments hurt and the rhuemotologist said that was fibromyalgia. But after
I was diagnosed with Fibromyalsia and then a year later I was told I have fibromyalgia and RA. Then yesterday, a year and a half later, I was told I have psoriatic arthritis and not RA. I have always said that my muscles and ligaments hurt and the rhuemotologist said that was fibromyalgia. But after
smilelines
in
NRAS
3 years ago
Update
After waiting a year had my appointment with the rheumatology clinic in September took blood and X-rays and said it was probably rheumatoid arthritis and said I will see you in 4 weeks and then will give you a steroid injection . So eventually an appointment for November comes through which then got
After waiting a year had my appointment with the rheumatology clinic in September took blood and X-rays and said it was probably rheumatoid arthritis and said I will see you in 4 weeks and then will give you a steroid injection . So eventually an appointment for November comes through which then got
JanetJAM
in
NRAS
3 years ago
Painful lower back - no sleep
Suffering from severe lower back pain which has been diagnosed as arthritis. Was on Gabapentin but had to stop with side effects. Any tips to try and get sleep?
Suffering from severe lower back pain which has been diagnosed as arthritis. Was on Gabapentin but had to stop with side effects. Any tips to try and get sleep?
AnnieS19
in
Cure Arthritis Community
3 years ago
PhD researcher Anne-Marie Tetsche of UWE Bristol wants views of nurse-led care in early rheumatoid arthritis via a survey.
Please help if you > Have been diagnosed with RA within the last 2 years > Have seen a nurse specialist for RA > live in England Take part https://tinyurl.com/mr3yva4e
Please help if you > Have been diagnosed with RA within the last 2 years > Have seen a nurse specialist for RA > live in England Take part https://tinyurl.com/mr3yva4e
Aribah-NRAS
NRAS
in
NRAS
3 years ago
Methotrexate
Good morning ! Am about to start on 15mgs of Methotrexate ( rising to 20mgs after 2 weeks ) this is for Rheumatoid Arthritis . I’ve been on pred for PMR since March 2020 - started on 20mgs , now on 5mgs and have been told by my consultant to carry on at 5mgs . Any advice from those who have/are taking
Good morning ! Am about to start on 15mgs of Methotrexate ( rising to 20mgs after 2 weeks ) this is for Rheumatoid Arthritis . I’ve been on pred for PMR since March 2020 - started on 20mgs , now on 5mgs and have been told by my consultant to carry on at 5mgs . Any advice from those who have/are taking
Geordieland
in
PMRGCAuk
3 years ago
Cymbalta Side Effect?
Has anyone experienced urinary urgency as a result of taking Cymbalta for anxiety?
Has anyone experienced urinary urgency as a result of taking Cymbalta for anxiety?
ScottishLass1958
in
NRAS
3 years ago
Is 20mg of mtx a lot for your first dose ? I’m very apprehensive 😕
I’ve got poly arthritis
I’ve got poly arthritis
Nancy2010
in
NRAS
3 years ago
Is Inflammatory Arthritis RA?
Stupid question, been diagnosed for six years since 20 but it’s always been written as: Seronegative inflammatory arthritis. It was once written as RA and once as Oligoarthritis. Is there any difference. I am negative rheumatoid factor, anti-CCP and HLA B27. Three years ago my DSA28 score equates to
Stupid question, been diagnosed for six years since 20 but it’s always been written as: Seronegative inflammatory arthritis. It was once written as RA and once as Oligoarthritis. Is there any difference. I am negative rheumatoid factor, anti-CCP and HLA B27. Three years ago my DSA28 score equates to
gr95
in
NRAS
3 years ago
Bumetanide
Can anyone tell me if Bumetanide is taken on a permanent basis ? When my husband was discharged from hospital two months ago it was prescribed on the discharge sheet with a note -GP to monitor . Hubby’s legs were terribly swollen when he was admitted but are now almost back to normal and he is really
Can anyone tell me if Bumetanide is taken on a permanent basis ? When my husband was discharged from hospital two months ago it was prescribed on the discharge sheet with a note -GP to monitor . Hubby’s legs were terribly swollen when he was admitted but are now almost back to normal and he is really
Thepainterswife
in
Lung Conditions Community Forum
3 years ago
Psoriatic Arthritis?
I have RA currently tolerable, OA, PN, and a few lesser problems. A few weeks ago I had severe electrical-like shocking pains in my back vertebrae for two days. It went away but then my legs started breaking out in itchy red bumps and my full knee replacement knee is very painful. Could this be psoriatic
I have RA currently tolerable, OA, PN, and a few lesser problems. A few weeks ago I had severe electrical-like shocking pains in my back vertebrae for two days. It went away but then my legs started breaking out in itchy red bumps and my full knee replacement knee is very painful. Could this be psoriatic
BonnieG123
in
NRAS
3 years ago
Temporal Artery Biopsy, just had mine and they couldn't find it, so they took a tissue sample from the site instead.
I think they said the
arteritis
might have obliterated it but not quite sure what that means.
I think they said the
arteritis
might have obliterated it but not quite sure what that means.
SFFo
in
PMRGCAuk
3 years ago
Pain relief
I have severe back pain with arthritis what do you think of the best tablets you can take for. it I take pregabalin also pain relief tablets which I've tried lots which don't agree with me can you suggest any tablets that might
I have severe back pain with arthritis what do you think of the best tablets you can take for. it I take pregabalin also pain relief tablets which I've tried lots which don't agree with me can you suggest any tablets that might
Leesowe10
in
Pain Concern
3 years ago
Starting tocilizumab
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
Sharitone
in
PMRGCAuk
3 years ago
Join the Virus Watch project ( in the UK)
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Suzita76
in
PMRGCAuk
3 years ago
Does anyone know whether I will experience steroid withdrawal even though I’m on tocilizumab?
I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have experienced steroid withdrawal on a prior occasion. I am debating whether to keep taking it over Christmas or to stop now… and I’m wondering whether:
I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have experienced steroid withdrawal on a prior occasion. I am debating whether to keep taking it over Christmas or to stop now… and I’m wondering whether:
Erikaknitssocks
in
PMRGCAuk
3 years ago
Will I see specialist forever?
Hi everyone, I started seeing my liver specialist a long time ago now. It must be 8 years. They found out I had positive AMA and also ANA when investigating my arthritis. I still am labelled as arthritis (query rheumatoid) and mild chronic liver condition but he hasn’t yet called it PBC, two vague labels
Hi everyone, I started seeing my liver specialist a long time ago now. It must be 8 years. They found out I had positive AMA and also ANA when investigating my arthritis. I still am labelled as arthritis (query rheumatoid) and mild chronic liver condition but he hasn’t yet called it PBC, two vague labels
Lauralee851
in
PBC Foundation
3 years ago
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