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Recently diagnosed with pernicious anaemia
Uk 49 yrs old ...over the years ive been back and forth to drs as been tired and and have been told iron deficient and taken tablets but july 23 after i visited drs and seen a nurse as i was severely lethargic and had jaundice she got me booked me into ambulatory care in hospital were I went every
Uk 49 yrs old ...over the years ive been back and forth to drs as been tired and and have been told iron deficient and taken tablets but july 23 after i visited drs and seen a nurse as i was severely lethargic and had jaundice she got me booked me into ambulatory care in hospital were I went every
Tay10r
in
Pernicious Anaemia Society
8 months ago
High ferritin and high TSH
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
Dylan555
in
Thyroid UK
8 months ago
following first 10 S/Is now totally exhausted
have now been S/I ing EOD for the last 20 days, and am feeling mentally uplifted and hopeful and done some housework, ( my home had turned itself into a tip over the last 10 years or so) but last 3 days feeling really exhausted, cannot wake up or get out of bed in the morning, in a peculiar way worse
have now been S/I ing EOD for the last 20 days, and am feeling mentally uplifted and hopeful and done some housework, ( my home had turned itself into a tip over the last 10 years or so) but last 3 days feeling really exhausted, cannot wake up or get out of bed in the morning, in a peculiar way worse
totallyFrustrated
in
Pernicious Anaemia Society
8 months ago
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Worried out of my mind
I have been self injecting for several years as I was initially given B12 loading doses and 1 injection every 3 months when I was initially diagnosed with a B12 level of 153. I was then taken off injections and told that I should never have been given them in the first place and couldn’t get them reinstated
I have been self injecting for several years as I was initially given B12 loading doses and 1 injection every 3 months when I was initially diagnosed with a B12 level of 153. I was then taken off injections and told that I should never have been given them in the first place and couldn’t get them reinstated
Hayley31
in
Pernicious Anaemia Society
3 months ago
windyway
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Windyway
in
Pernicious Anaemia Society
3 months ago
B12 or folic acid first?
My daughter has just been diagnosed with B12 and folate deficiency, The likely cause is poor diet so I’m happy not to pursue injections at this stage. Her GP has prescribed B12 and 5mg folic acid, both in tablet form. Please can anyone confirm which she should take first and for how long before
My daughter has just been diagnosed with B12 and folate deficiency, The likely cause is poor diet so I’m happy not to pursue injections at this stage. Her GP has prescribed B12 and 5mg folic acid, both in tablet form. Please can anyone confirm which she should take first and for how long before
JanD236
in
Pernicious Anaemia Society
8 months ago
Manometry studies
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
Continue with monthly injection?
Hello everybody, my B12 was 218 (range 206-1000) now 2000 after two injections, one per month.Ferritin was 19.9 (range 23-393) now 25.2 after two months of one daily tablet of 305mg ferrous fumarate. Folate was 3.4 (range 4.5-20) now 4.1 after two months of daily of one 0.4mg folic acid.
Hello everybody, my B12 was 218 (range 206-1000) now 2000 after two injections, one per month.Ferritin was 19.9 (range 23-393) now 25.2 after two months of one daily tablet of 305mg ferrous fumarate. Folate was 3.4 (range 4.5-20) now 4.1 after two months of daily of one 0.4mg folic acid.
Sotired3
in
Pernicious Anaemia Society
8 months ago
Grumpy Old Lady in Pain - am I being too cynical?
I had an unpleasant experience at my very recently previous practice. I’ve been back in the UK for five years and only used the practice a handful of times. I had emergency surgery recently and have just had a crash course in how the NHS operates.! Am I being too cynical? and have I got most of the
I had an unpleasant experience at my very recently previous practice. I’ve been back in the UK for five years and only used the practice a handful of times. I had emergency surgery recently and have just had a crash course in how the NHS operates.! Am I being too cynical? and have I got most of the
Loco99
in
PMRGCAuk
8 months ago
Blood tests
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Thyroid UK
8 months ago
Blood test tomorrow
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Pernicious Anaemia Society
8 months ago
positive then negative intrinsic factor
hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
Ellamae2
in
Pernicious Anaemia Society
8 months ago
blood test results
can I please have your help in interpreting my blood test results below: Serum iron levels 17.8 umol/L range 11-36 Total iron binding capacity 51.8 range 53-85 serum ferritin 127 range 40-250 B12 630 range 160-925 Serum folate 11.6 range 2.90-50 Vitamin D 107 range 51-250 Thyroid serum TSH level
can I please have your help in interpreting my blood test results below: Serum iron levels 17.8 umol/L range 11-36 Total iron binding capacity 51.8 range 53-85 serum ferritin 127 range 40-250 B12 630 range 160-925 Serum folate 11.6 range 2.90-50 Vitamin D 107 range 51-250 Thyroid serum TSH level
Munp
in
Thyroid UK
8 months ago
B12 result after 6 months…
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
4 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
4 months ago
Extra doses!
Hi everyone, Out of interest, does anymore here who has B12 deficiency and pernicious anaemia, self adminster extra doses? The reason I ask, is for a long time now, I have been having my jabs every three months. Previous to that, it was every two months, as according to my then endcronologist, it
Hi everyone, Out of interest, does anymore here who has B12 deficiency and pernicious anaemia, self adminster extra doses? The reason I ask, is for a long time now, I have been having my jabs every three months. Previous to that, it was every two months, as according to my then endcronologist, it
JOLLYDOLLY
in
Pernicious Anaemia Society
4 months ago
Blood Test Results
Would someone please be able to tell me what these blood test results mean please? I did add them on to a previous thread but I don't think they were showing up. I was told by my GP back in July that my TSH levels were low . I admitted that I did sometimes forget to take Levo so she wanted me to go
Would someone please be able to tell me what these blood test results mean please? I did add them on to a previous thread but I don't think they were showing up. I was told by my GP back in July that my TSH levels were low . I admitted that I did sometimes forget to take Levo so she wanted me to go
Crazy_Diamond
in
Thyroid UK
8 months ago
Finally
Morning I actually got to see my GP last night! Thankfully she listened ( borderline B12 and very low folate) this is after speaking to two other Gps in the surgery who didn’t believe me ☹️ Anyway she suggest Pernicious Anemia! Woohoo! So have some blood tests to follow ❤️
Morning I actually got to see my GP last night! Thankfully she listened ( borderline B12 and very low folate) this is after speaking to two other Gps in the surgery who didn’t believe me ☹️ Anyway she suggest Pernicious Anemia! Woohoo! So have some blood tests to follow ❤️
Doris11
in
Thyroid UK
8 months ago
Pernicious Anemia treatment
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
merfi
in
Pernicious Anaemia Society
4 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
4 months ago
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