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Antihemophilic factor
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B12 serum level of 52
Hi I’m new here and just looking for advice. 12 years ago I was diagnosed with b12 deficiency with a level of 52 ng/l. At the time my symptoms were brain fog, fatigue, poor memory. My doctor said the b12 wasn’t causing my symptoms because I wasn’t anemic. He said I didn’t need injections and gave me
Hi I’m new here and just looking for advice. 12 years ago I was diagnosed with b12 deficiency with a level of 52 ng/l. At the time my symptoms were brain fog, fatigue, poor memory. My doctor said the b12 wasn’t causing my symptoms because I wasn’t anemic. He said I didn’t need injections and gave me
Inkworks
in
Pernicious Anaemia Society
4 years ago
Waiting to get blood tests
Hi I am new here, this is my first post. Just wanting some advice on the symptoms I have and whether they are related to RA. Been suffering sometime now with severe lower back ache, my thighs are numb most of the time, my both legs feel like lead,and my calves feel like an elastic band around them, (
Hi I am new here, this is my first post. Just wanting some advice on the symptoms I have and whether they are related to RA. Been suffering sometime now with severe lower back ache, my thighs are numb most of the time, my both legs feel like lead,and my calves feel like an elastic band around them, (
shally12
in
NRAS
4 years ago
PA effecting work and need advice on how to approach my employer. Don’t know what I’m entitled to..please help!
Hi, I have PA due to lack of intrinsic factor. I’m really struggling at the minute with basic tasks, like writing a sentence. I tend to miss a odd word out and I completely forget how to spell, even simple words. The brain fog is unreal! I had a embarrassing moment at work the other day and it’s really
Hi, I have PA due to lack of intrinsic factor. I’m really struggling at the minute with basic tasks, like writing a sentence. I tend to miss a odd word out and I completely forget how to spell, even simple words. The brain fog is unreal! I had a embarrassing moment at work the other day and it’s really
Iheart_TS
in
Pernicious Anaemia Society
4 years ago
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Positive for PA
Hello all, I had a positive result for the intrinsic factor test and my GP wants me to go back and get B12 and Iron Folate levels checked. I will refuse a b12 test as they know from before that it was low and I'm self treating with injections at the moment. Ive read in the PAS notes that taking suppliments
Hello all, I had a positive result for the intrinsic factor test and my GP wants me to go back and get B12 and Iron Folate levels checked. I will refuse a b12 test as they know from before that it was low and I'm self treating with injections at the moment. Ive read in the PAS notes that taking suppliments
Luac
in
Pernicious Anaemia Society
4 years ago
How to proceed?
Around 2017 the debilitating hypo symptoms started up. LDL cholesterol was flagged high and my morning blood fasting glucose started to rise by ten points (still within range), while terribly hyper/hypoglycemic all day. Before 2017 I recall living and functioning normally but looking back now I remember
Around 2017 the debilitating hypo symptoms started up. LDL cholesterol was flagged high and my morning blood fasting glucose started to rise by ten points (still within range), while terribly hyper/hypoglycemic all day. Before 2017 I recall living and functioning normally but looking back now I remember
jrbarnes
in
Thyroid UK
4 years ago
Stopped injections due to covid .. are these results okay?
Hi, First post here. Was diagnosed with PA 2 years ago (28 year old male at the time) had loading doses and then further injections every 10 weeks. This was stopped due to covid then said i don't even have PA so won't restart them even though im getting a lot of symptoms back e.g tingling in hands,
Hi, First post here. Was diagnosed with PA 2 years ago (28 year old male at the time) had loading doses and then further injections every 10 weeks. This was stopped due to covid then said i don't even have PA so won't restart them even though im getting a lot of symptoms back e.g tingling in hands,
Rich2489
in
Pernicious Anaemia Society
4 years ago
Will Doctors Prescribe Pioglitazone (Actos)For NASH
I having no luck getting any physician to prescribe Actos for NASH and wondering the response others have received. I keep getting that Actos really isn’t prescribe anymore, too risky, or they just don’t believe in providing any medicines for NASH.
I having no luck getting any physician to prescribe Actos for NASH and wondering the response others have received. I keep getting that Actos really isn’t prescribe anymore, too risky, or they just don’t believe in providing any medicines for NASH.
LeiL
in
Living with Fatty Liver and NASH
4 years ago
FERRITEN b12 h pylori
So went b12 low I June thus year 124 level was nauseates first symtom and mild ear hiss Had loading doses 2 weeks in June continued 1 month Felt worse Got worse Folate was also low was given folic avid tablets Felt even more worse Heard you need b12 and folate together Question I still got worse
So went b12 low I June thus year 124 level was nauseates first symtom and mild ear hiss Had loading doses 2 weeks in June continued 1 month Felt worse Got worse Folate was also low was given folic avid tablets Felt even more worse Heard you need b12 and folate together Question I still got worse
Milley2
in
Pernicious Anaemia Society
4 years ago
HORRIBLE severe muscle pain, whole body, doctor says everything ok? What is this? Hurts to walk, sit, stand?
Hi, I am in a lot of pain. All my muscles are very tight and stiff. ROCK HARD. My arms, shoulders. legs, butt, back, neck......there is no part on my body that isn't rock hard tight. I had someone touch my upper arm lightly, they were shocked how rock hard my arm was. It hurts to bend, sit, stand, walk
Hi, I am in a lot of pain. All my muscles are very tight and stiff. ROCK HARD. My arms, shoulders. legs, butt, back, neck......there is no part on my body that isn't rock hard tight. I had someone touch my upper arm lightly, they were shocked how rock hard my arm was. It hurts to bend, sit, stand, walk
BlueStars01
in
Thyroid UK
4 years ago
Pain all over body
Hello everyone. I was diagnosed with RA back in 2014. Rheumatoid factor 94. Anticccp 120. It effected my left lung mainly (bronchiectasis). A few months ago I started feeling pain at the soles of my feet when waking up. Now my wrists, feet and right elbow hurt. My right hands pinky finger was swollen
Hello everyone. I was diagnosed with RA back in 2014. Rheumatoid factor 94. Anticccp 120. It effected my left lung mainly (bronchiectasis). A few months ago I started feeling pain at the soles of my feet when waking up. Now my wrists, feet and right elbow hurt. My right hands pinky finger was swollen
ks1966
in
NRAS
4 years ago
How do you test for b12 absorption?
How can I test my b12 absorption? I had my b12 tested a few months ago and it looked normal, but I have Hashimoto's and also tingling hands, dizziness, eye twitching, and gut issues -- all of which correlate to low b12. So I'm wondering if I'm maybe just not absorbing it. I've read that this can happen
How can I test my b12 absorption? I had my b12 tested a few months ago and it looked normal, but I have Hashimoto's and also tingling hands, dizziness, eye twitching, and gut issues -- all of which correlate to low b12. So I'm wondering if I'm maybe just not absorbing it. I've read that this can happen
Gophe
in
Thyroid UK
4 years ago
Newbie
Hi I'm new to this forum just had some blood test back serum c reactive protein levels 10mg/l (00-10) rheumatoid factor 14iu/ml (0.0-14) can anyone tell me what this means
Hi I'm new to this forum just had some blood test back serum c reactive protein levels 10mg/l (00-10) rheumatoid factor 14iu/ml (0.0-14) can anyone tell me what this means
Oldbar
in
Arthritis Action
4 years ago
GP refuses to prescribe Hydroxocobalamin as B12 is within "Therapeutic levels"
Hi Everyone :) I have been diagnosed with Pernicious Anaemia since 2013 and have injections at my GP surgery every 10 weeks. I am due another injection in around 2 weeks time. I had a telephone appointment with a Nurse Practitioner yesterday to get my hydroxocobalamin prescription, who insisted on more
Hi Everyone :) I have been diagnosed with Pernicious Anaemia since 2013 and have injections at my GP surgery every 10 weeks. I am due another injection in around 2 weeks time. I had a telephone appointment with a Nurse Practitioner yesterday to get my hydroxocobalamin prescription, who insisted on more
sarahlouiseee
in
Pernicious Anaemia Society
4 years ago
Lack of Intrinsic Factor
So after a wait of 2 & a half yrs I finally got my marker test, along with my regular thyroid, cholesterol & general tests. I’ve been told Ive lack of intrinsic factor and i’m to have 3monthly B12 injections for life. I previously had a course of 6 injections in February this year, and the same 2yrs
So after a wait of 2 & a half yrs I finally got my marker test, along with my regular thyroid, cholesterol & general tests. I’ve been told Ive lack of intrinsic factor and i’m to have 3monthly B12 injections for life. I previously had a course of 6 injections in February this year, and the same 2yrs
MrsSAcky
in
Pernicious Anaemia Society
4 years ago
Lining finally got to 8mm. Transfer booked for next week. Advice on caster oil and raspberry leaf tea
Hi Ladies.. I went for my scan this morning and I my lining was 8mm this time (woohoo so happy as it has taken us so long to get this far) so we are good to go with our 2nd FET next Friday! (6 day blastocyst 4bb). I was wondering though when should I stop taking raspberry leaf tablets and drinking the
Hi Ladies.. I went for my scan this morning and I my lining was 8mm this time (woohoo so happy as it has taken us so long to get this far) so we are good to go with our 2nd FET next Friday! (6 day blastocyst 4bb). I was wondering though when should I stop taking raspberry leaf tablets and drinking the
Hope_1234
in
Fertility Network UK
4 years ago
Post-treatment lab results -- interpretation help appreciated!
Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the hematologist to have these explained to me. I have iron deficiency anemia (formally diagnosed) and, until recently (?), what I assumed to be pernicious
Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the hematologist to have these explained to me. I have iron deficiency anemia (formally diagnosed) and, until recently (?), what I assumed to be pernicious
still_elsewhere
in
Pernicious Anaemia Society
4 years ago
Tests to prove B12 injection need to my doctor: Schillings, Active B12 MMA (are they the same?)
I’m asking because I’ve convinced her to prescribe injections for once a week, but am always concerned that my extra supply from Germany might run out. I’ve never had the Schilling’s Test or Intrinsic Factor (are they different?) Nor have I had an MMA ( which I would assume would be normal now) My
I’m asking because I’ve convinced her to prescribe injections for once a week, but am always concerned that my extra supply from Germany might run out. I’ve never had the Schilling’s Test or Intrinsic Factor (are they different?) Nor have I had an MMA ( which I would assume would be normal now) My
KEFNB
in
Pernicious Anaemia Society
4 years ago
Anybody had a embryo transfer with a lining measuring 6mm?
Just wondering if there are any ladies on the forum that have had transfers with a lining measuring around 6mm? I’ve been trying to have a frozen transfer for over a year now and have just had my 5th FET attempt cancelled. My clinic wants my lining to be over 7mm but it averages around 6mm (6.4mm is
Just wondering if there are any ladies on the forum that have had transfers with a lining measuring around 6mm? I’ve been trying to have a frozen transfer for over a year now and have just had my 5th FET attempt cancelled. My clinic wants my lining to be over 7mm but it averages around 6mm (6.4mm is
Lavender96
in
Fertility Network UK
4 years ago
Anyone had mild cramping before FET
I am on 6mg progynova and suprecur nasal spray 4 times a day, I have started getting mild cramping, i had a scan on Tuesday and they said my lining wasn’t thick enough so I have been trying other natural things to thicken it up like POM juice, Brazil nuts, raspberry leaf tea and I have got castor oil
I am on 6mg progynova and suprecur nasal spray 4 times a day, I have started getting mild cramping, i had a scan on Tuesday and they said my lining wasn’t thick enough so I have been trying other natural things to thicken it up like POM juice, Brazil nuts, raspberry leaf tea and I have got castor oil
Laurens95
in
Fertility Network UK
4 years ago
Blood results
Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was way over range 2000 (180-900) as expected due to B12 injections. I was expecting a fight with my GP about withdrawing my B12 injections. Strange
Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was way over range 2000 (180-900) as expected due to B12 injections. I was expecting a fight with my GP about withdrawing my B12 injections. Strange
Wellington1
in
Pernicious Anaemia Society
4 years ago
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