Pain all over body : Hello everyone. I was diagnosed... - NRAS

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Pain all over body

ks1966 profile image
15 Replies

Hello everyone. I was diagnosed with RA back in 2014. Rheumatoid factor 94. Anticccp 120. It effected my left lung mainly (bronchiectasis). A few months ago I started feeling pain at the soles of my feet when waking up. Now my wrists, feet and right elbow hurt. My right hands pinky finger was swollen for a few weeks and now is a bit deformed. My left hands ring finger is also now swollen. My symptoms get better as the day progresses. I took Naproxen for a week but my ears started ringing so my Gp discontinued it

I’m very confused. Does RA cause pain ALL over the body. I googled my symptoms and got even more confused. A few diseases have similar symptoms. I would really really appreciate your thoughts. Thank you much.

(My Rheumatologists phone appointment is still weeks ahead)

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ks1966 profile image
ks1966
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15 Replies

If I’m having a bad flare there is no joint that is not effected. It feels like I have the flu it totally floors me. I too get tinnitus with naproxen. Ring your clinic they maybe able to help perhaps a steroid injection While you wait for your consultation. Good luck

Lolabridge profile image
Lolabridge

Oh yes unfortunately it can affect many joints and organs and more. You don’t say what RA medication you take but it would seem it’s no longer working effectively for you.

I suggest you contact your Rheumatologist and ask for advice.

ks1966 profile image
ks1966 in reply to Lolabridge

Thank you for your reply. I’m not on any medication at the moment. I was put on methotrexate for 9 months. At the time it didn’t help my lungs

Mmrr profile image
Mmrr

Yes, I get aches and pains all over my body, joints, muscles, tendons, soft tissues and more. The small joints such as those found in the hands and feet are commonly affected by RA, and are often very troublesome.

It sounds as of you need a med review.

ks1966 profile image
ks1966 in reply to Mmrr

Thank you for your reply. I’m not on any medication at the moment. I was put on methotrexate for 9 months. At the time it didn’t help my lungs

Mmrr profile image
Mmrr in reply to ks1966

I hope you get help soon.

Boxerlady profile image
Boxerlady

I'd say that you need to contact your rheumy/clinic and update them; you don't want to risk joint damage while waiting for your appointment and it sounds like your medication isn't working well.

ks1966 profile image
ks1966 in reply to Boxerlady

Thank you for your reply. I’m not on any medication at the moment. I was put on methotrexate for 9 months. At the time it didn’t help my lungs

Boxerlady profile image
Boxerlady in reply to ks1966

In that case you can definitely need to speak to your rheumy ASAP as it sounds like things have progressed

ks1966 profile image
ks1966

Thank you for your reply. I’m not on any medication at the moment. I was put on methotrexate for 9 months. At the time it didn’t help my lungs.

allanah profile image
allanah

Yes I'd call the rheumy department as that sounds like a bad flare. There are many other drugs they can give you that wont affect your lungs so ring them and get advice and maybe even a steroid injection to calm down the inflammation. Do look on nras.org.uk for lots of advice on drugs and flare help.

RETLTC profile image
RETLTC

Oh yes everywhere. I was actually referred to a Rheumy after I complained to my ortho Doc about the swelling and pain in my right wrist and my left ring finger was dangerously tight. I also have an odd combo of neuropathy in the souls of my feet but pain and swelling in my ankles. I turned 60 last Nov and was diagnosed with RA in March. On Humeria, MTX, and 10mg of prednisolone. 25 years in the military and RA is a tougher battle.

ks1966 profile image
ks1966 in reply to RETLTC

Thank you 🙏

Lolabridge profile image
Lolabridge

As you are not on any medication at the moment it does sound as though you have uncontrolled RA running amok in your body.

Do please contact your Rheumatologist straight away and ask to be put on RA medication so you avoid further damage to your joints and organs. There are plenty of others besides methotrexate and I hope you will be lucky with the next one you try. Meanwhile if you are struggling with pain and swelling ask for corticosteroids, either an injection or in tablet form. These will help you feel better and function whilst the RA drug gets to work.

Good luck.

ks1966 profile image
ks1966

Thank you 🙏

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