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Respite from the fight
My beloved is snoring beside me: a sound I wasn’t sure I’d get to hear again. He’s spent the last two years “living” in the recliner in the living room. Pneumonia 3 times: a collapsed lung, likely from one of a series of falls last spring. On oxygen PRN since June 2023. Surgery to stretch the right
My beloved is snoring beside me: a sound I wasn’t sure I’d get to hear again. He’s spent the last two years “living” in the recliner in the living room. Pneumonia 3 times: a collapsed lung, likely from one of a series of falls last spring. On oxygen PRN since June 2023. Surgery to stretch the right
Cateydid
in
Advanced Prostate Cancer
5 months ago
At what point for scan ?
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
positive-thinking
in
Advanced Prostate Cancer
5 months ago
MO recommendations at Mayo, Moffitt?
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
jackwfrench
in
Advanced Prostate Cancer
5 months ago
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Chemo progress
PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look
PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look
APK3
in
Advanced Prostate Cancer
5 months ago
Another notice of passing that prompt me to update my profile.
Updating my profile made me remember this quote from a comment on a post a few days ago. I want to share it because I agree, especially with the last paragraph. But before judging me, please read my newly updated profile.This quote comes from a discussion on a video ( of which I forgot to copy the YouTube
Updating my profile made me remember this quote from a comment on a post a few days ago. I want to share it because I agree, especially with the last paragraph. But before judging me, please read my newly updated profile.This quote comes from a discussion on a video ( of which I forgot to copy the YouTube
Blueribbon63
in
Advanced Prostate Cancer
5 months ago
What remains?
My husband's PSA count is 3631. He's had every treatment bar Lutetium and immunotherapy and he doesn't have the BRCA gene. Are we at EOL? He, although emaciated, believes that it's not over yet.
My husband's PSA count is 3631. He's had every treatment bar Lutetium and immunotherapy and he doesn't have the BRCA gene. Are we at EOL? He, although emaciated, believes that it's not over yet.
Eala
in
Advanced Prostate Cancer
5 months ago
Similar question to Ezzedine. PSA rising
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
arry4424
in
Prostate Cancer Network
5 months ago
Rising psa
Is My cancer back? Ezzeddine Cherni Born: 10-09-1959. 65yo. Radical prostatectomy in 2011.at the age of 52 Gleason=7 PSA non detectable for 5 years :0.07. In 2016. 0.11. 2017: 0.17. IRM no local recurrence 2019: 0.22 IRM : no local recurrence. 2020: 0.18 2021: 0.38 IRM non local recurrence
Is My cancer back? Ezzeddine Cherni Born: 10-09-1959. 65yo. Radical prostatectomy in 2011.at the age of 52 Gleason=7 PSA non detectable for 5 years :0.07. In 2016. 0.11. 2017: 0.17. IRM no local recurrence 2019: 0.22 IRM : no local recurrence. 2020: 0.18 2021: 0.38 IRM non local recurrence
ezzeddine
in
Prostate Cancer Network
5 months ago
Blood work question
My husband just got round # 4 of chemo yesterday and bloodwork was done the day before. Doctor not concerned with anything on the blood work and did say that it is expected to change with each round of chemo. Everything looked good and hardly any changes but one flag I see was the Red cell distribution
My husband just got round # 4 of chemo yesterday and bloodwork was done the day before. Doctor not concerned with anything on the blood work and did say that it is expected to change with each round of chemo. Everything looked good and hardly any changes but one flag I see was the Red cell distribution
positive-thinking
in
Advanced Prostate Cancer
5 months ago
Seeking help with Radiation Therapy
Im 62 and had RP back in 2015. My PSA started rising bout a year ago. Its now .28. Im scheduled to have Salvage Radiation in 2 weeks Id like to ask individuals whove had RP and done Salvage Radiation at least 2 yrs ago. Please answer the following questions 1 Age when taking the radiation 2 PSA
Im 62 and had RP back in 2015. My PSA started rising bout a year ago. Its now .28. Im scheduled to have Salvage Radiation in 2 weeks Id like to ask individuals whove had RP and done Salvage Radiation at least 2 yrs ago. Please answer the following questions 1 Age when taking the radiation 2 PSA
Drago101
in
Advanced Prostate Cancer
5 months ago
PSA vs Testosterone plot has large scatter, but still confirms Morgentaler's Saturation Model.
Here are two plots comparing PSA values to Testosterone levels taken from a pair of large data sets. What is striking is the large amount of scatter in the individual data from both datasets, with factors of 2-6 X deviations from the average (or median) values. The upper plot has N = 255 data points
Here are two plots comparing PSA values to Testosterone levels taken from a pair of large data sets. What is striking is the large amount of scatter in the individual data from both datasets, with factors of 2-6 X deviations from the average (or median) values. The upper plot has N = 255 data points
janebob99
in
Prostate Cancer Network
5 months ago
deciding whether to do pluvicto with hemoglobin around 8
Metastatic prostate cancer to multiple lymph nodes, lungs, bone Mets to spine, ribs, pelvis, femur. PSA 22. Gleason 9. ADT for 7 years, failed zytiga after being on it for 3 years, failed 3 rounds of doxetaxol this past fall. Radiation treatments to pelvis in 2021 and spine, hip in 2023. Had BRCA mutations
Metastatic prostate cancer to multiple lymph nodes, lungs, bone Mets to spine, ribs, pelvis, femur. PSA 22. Gleason 9. ADT for 7 years, failed zytiga after being on it for 3 years, failed 3 rounds of doxetaxol this past fall. Radiation treatments to pelvis in 2021 and spine, hip in 2023. Had BRCA mutations
LJGD
in
Advanced Prostate Cancer
5 months ago
Low-T is associated with worse Prostate Cancer Specific Mortality probability after 6 months of ADT: Part III
Here are comparisons of the
Prostate Cancer Specific Mortality (PCSM) probability (%
) for two different testosterone levels (
Low-T and Normal-T
) and four different
Times After PSA Failure
from the Kaplan-Meier plot previously posted. (Atkins 2018). The median testosterone for
Here are comparisons of the
Prostate Cancer Specific Mortality (PCSM) probability (%
) for two different testosterone levels (
Low-T and Normal-T
) and four different
Times After PSA Failure
from the Kaplan-Meier plot previously posted. (Atkins 2018). The median testosterone for
janebob99
in
Prostate Cancer Network
5 months ago
Low-T is associated with worse Prostate Cancer Specific Mortality probability after 6 months of ADT: Part II
Here are comparisons of the Prostate Cancer Specific Mortality (PCSM) probability (%) for two different testosterone levels (Low-T and Normal-T)and three different Times After PSA Failure from Atkins (2018). he median testosterone for the Low-T group is T = 162 ng/dL [120-236], and I assumed an average
Here are comparisons of the Prostate Cancer Specific Mortality (PCSM) probability (%) for two different testosterone levels (Low-T and Normal-T)and three different Times After PSA Failure from Atkins (2018). he median testosterone for the Low-T group is T = 162 ng/dL [120-236], and I assumed an average
janebob99
in
Prostate Cancer Network
5 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
5 months ago
Mr Basil Charles
I was diagnosed with mestatic prostate cancer, PSA 29.1Spread to lymph node & bones in rib and spine My treatment plan 4 Abiraterone tablets 250gm & 1 Prednisone daily With a hormonal injection and bone strengthening drip quarterly After 2 years PSA dropped to 0.06 now it's 10.2 Lutetium 177 was
I was diagnosed with mestatic prostate cancer, PSA 29.1Spread to lymph node & bones in rib and spine My treatment plan 4 Abiraterone tablets 250gm & 1 Prednisone daily With a hormonal injection and bone strengthening drip quarterly After 2 years PSA dropped to 0.06 now it's 10.2 Lutetium 177 was
154Eleventh
in
Advanced Prostate Cancer
5 months ago
Fears confirmed
I posted previously on this long and tortuous journey to ( almost) a diagnosis. Almost because my concierge PCP gave me a heads up on the biopsy report which hasn’t been posted on my digital chart and I haven’t yet heard from my Urologist/ Onocologist. It’s been 4 mos since my annual checkup said my
I posted previously on this long and tortuous journey to ( almost) a diagnosis. Almost because my concierge PCP gave me a heads up on the biopsy report which hasn’t been posted on my digital chart and I haven’t yet heard from my Urologist/ Onocologist. It’s been 4 mos since my annual checkup said my
Willie51
in
Prostate Cancer And Gay Men
5 months ago
Abiraterone and Breathlessness
After around 7 months on Abiraterone, I developed high blood pressure and quite bad irregular heartbeats. My Oncologist took me off Abiraterone immediately, and I was subsequently diagnosed with Atrial Fibrillation. After seeing a Cardiology Consultant, I was prescribed Bisoporol and started back on
After around 7 months on Abiraterone, I developed high blood pressure and quite bad irregular heartbeats. My Oncologist took me off Abiraterone immediately, and I was subsequently diagnosed with Atrial Fibrillation. After seeing a Cardiology Consultant, I was prescribed Bisoporol and started back on
Dastardly
in
Advanced Prostate Cancer
5 months ago
Spam me with any stories of hope or guidance for my Dad - Gleason 10, bone mets in spine
Hello, I recently shared that my Dad was diagnosed with aggressive Gleason 10 prostate cancer. CT and bone scan confirmed this week he has bone mets in his spine (within L5 vertebrae). This is very shocking and heartbreaking to our family - his only symptom was more frequent urination - he does not
Hello, I recently shared that my Dad was diagnosed with aggressive Gleason 10 prostate cancer. CT and bone scan confirmed this week he has bone mets in his spine (within L5 vertebrae). This is very shocking and heartbreaking to our family - his only symptom was more frequent urination - he does not
LDC2024
in
Advanced Prostate Cancer
5 months ago
Updating my husband's journey, hoping it helps others - any words of encouragement are welcome, but please only positive comments
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
SuppWife
in
Advanced Prostate Cancer
5 months ago
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