Another notice of passing that prompt me to update my profile.

[Blueribbon63]

Updating my profile made me remember this quote from a comment on a post a few days ago. I want to share it because I agree, especially with the last paragraph. But before judging me, please read my newly updated profile.This quote comes from a discussion on a video ( of which I forgot to copy the YouTube link) PC diagnostic and immediate reaction: not doing anything or getting in the full arsenal of intoxicating medicine and treatments. We all end dead.

"Ablin (MD) was the guy who discovered PSA. It's actually a pretty interesting video: it claims that life expectancy will not improve and that the treatments harm a significant number of people.

In my opinion, I suppose the most important thing is that the treatments avoid potential problems such as bone metastasis and the pain that accompanies it or that the possible heart failure of the treatments and the side effects are eliminated.

It's also worth considering that there are side effects to doing nothing. Not being able to urinate can be quite serious, among other things.

You're damned if you do and damned if you don't." 😑

P.s. Notice the time I am posting this, 3 am. Why? Because I can't sleep more than two or three hours. Thanks Lupron SEs.

[addicted2cycling]

Blueribbon63 wrote -- " ... P.s. Notice the time I am posting this, 3 am. Why? Because I can't sleep more than two or three hours. Thanks Lupron SEs. "

Sorry B63, at 2:38AM today I was out riding one of my bicycles for 13.31 miles. Often I'm riding shortly after midnight and find it very calming and energizing at the same time. My PCa treatment began with an immediate bilateral Orchiectomy (surgical castration) and I haven't regretted it since it made bicycling soooo much more enjoyable.

Given lemons just go make Lemonade.

Good Luck.

[spencoid2 in reply to addicted2cycling]

I am reminded of my youth when I lived in San Francisco. I would often ride my bicycle South of Market on the long straight almost flat streets at 3:00 AM or so. No traffic, no homeless, usually no wind or fog. It was like flying.

[addicted2cycling in reply to spencoid2]

I bet that San Fran at 3AM years ago must have been like Outer Space quiet.

[swwags in reply to addicted2cycling]

I also had a bilateral orchiectomy March 2023 well into my cancer journey. Compared to Lupron, night sweats are fewer if at all, weight gain is there, not as tired, all the thrills of female menopause mood swings and then some. Glad I did it, no regrets. Added a 2nd gen ADT to block the remaining testosterone my adrenals produce which is about 10%. First went with Erleada, then abiraterone. SE"s are too great so waiting and hoping to try dilutimide April 1 when I see my onc. Get off your duff and exercise. It wlll help with the tiredness and of course weight gain. This you must take seriously, workout with weights. light weights several reps or heavy weights fewer reps. Point is to build muscle and control mood swings. Walk walk walk. Find a starting point and go from there. I do 5 miles 3x/wk.

[addicted2cycling in reply to swwags]

swwags wrote -- " ... Get off your duff and exercise ... "

👍👍

Now 9 years with an empty sack I have almost no side effects and have actually started to feel pretty good. My bicycling is now increasing in speed and distance. Today my 3:04AM ride start totaled 14.41 miles and the 8:02AM 2nd ride start totaled 36.63 miles. Now 8:30PM and I'm thinking about getting out again in a few hours.

[Blueribbon63 in reply to addicted2cycling]

I used to be a long distance runner, with 1 ultra marathon, many marathons and innumerable half marathons and other shorter distances. On December/2022 my MO at the time said no more running for me. She told me the risk of a fall and bone features was to high. So, she said, walk as much and as long as you want. I do so, most of 2023 I walked almost every day, at least one hour at the time, covering between 2 to 5 miles. I still gained about 40 pounds. I have never in my life have been this heavy! So, do not lecture me about exercising. Unfortunately the MO was right, the time has come, I tripped down and fractured my right arm. Now, I am really screwed up, I am right handed and now learning to maneuver to do basic things with my left arm. Remember, I sustained two consecutive falls within a one week period. It is on the second fall walking on the side walk where I got up with a broken arm. I am paranoid about going out and falling again!

[addicted2cycling in reply to Blueribbon63]

Blueribbon63 wrote -- " ... So, do not lecture me about exercising ... "

I apologize if reply seemed to be lecturing. Never able to run due to bowed legs and bone/bone knees -- I began walking 5K's (+) in Jan. 2010. In Jan 2011 walked Disney World's Marathon Weekend 5K + 1/2 marathon + Marathon. Had a PR Marathon of 4:56:28 using Danny Dreyer's Chi Walking Method. Even having my bilateral Orchiectomy I've kept the weight off with walking (no longer due to knees worsening) and aggressive bicycling +++ a good diet.

2016 DEXA showed Osteopenia and after Wild Hog #2 running into me in 2022 while bicycling fracturing left tibia I had another DEXA and progressed to Osteoporosis + new Osteopenia. Have fallen over a couple of times on my bikes since scan with no effects and will not let the thought of injury prevent me from cycling.

1st ride today was at 2:22AM for 22.22 miles and 2nd ride at 8:14AM for 30.03 miles.

Be cautious and keep on keeping on the best you can. 👍👍

[Still_in_shock in reply to addicted2cycling]

My lemons became raisins!!😆

[addicted2cycling in reply to Still_in_shock]

My empty sack is soooo small that not even raisins could fit. 😀

[GoBucks]

I might change your quote a bit. I'd say: You may be damned if you do but you're dead if you don't.

[MoonRocket]

The contrary is true, the treatments extend OS. They can also provide QoL.

[Kanka99]

Hang in there and keep fighting warrior. Lupron--in spite of the awful side effects-- is still very helpful in the fight against this horrible disease. And we can't allow the sides effects to lower our spirits! The medicines that will cure us are coming.

[j-o-h-n]

I suggest if you're having trouble sleeping........... just read these post........

Good Luck, Good Health and Good Humor.

j-o-h-n

[Blueribbon63 in reply to j-o-h-n]

I do not see it. "Good Luck, Good Health and Good Humor." We know your replies are supposed to be "funny" I rarely see it. You are not helping.

[Still_in_shock in reply to Blueribbon63]

j-o-h-n is showing me how not to take life too hard right now.

[addicted2cycling in reply to Still_in_shock]

👍👍 I laugh AND cry - therefore I am alive

My urologist was pushing ADT on me and I TOLD HIM that I wanted an Orchiectomy. Being a cyclist the loss of THE BOYS made riding my 100+ mile rides soooo much more enjoyable.

The Pathologist who checked for cancer in THE BOYS wrote a SIDE NOTE on his report -- *I can confirm that 10 pounds of balls can fit in a 5 pound sack* 😁😉

[j-o-h-n in reply to addicted2cycling]

My doc told me..........that has to do if they're blue.......

Good Luck, Good Health and Good Humor.

j-o-h-n

[j-o-h-n]

You've been through a lot of shit.......... like many of us have...... Many years ago, Pca made me a mean son of a bitch which didn't help, so now I try to fight my kaka with humor/silliness and it's working.... If I happen to see you posting I will try to remember to avoid posting directly to you. Meanwhile.........Wear that Pabst label with pride........... and

Good Luck, Good Health and Good Humor.

j-o-h-n