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Need More Energy
I'm on ADT for life and I'm a retired professional golfer. I play three days a week. I feel so weak and tired when I play but I put up with it. Does anyone have any ideas how I can have more energy during my rounds of golf? My PSA and scans are undetectable and I don't want to take anything that would
I'm on ADT for life and I'm a retired professional golfer. I play three days a week. I feel so weak and tired when I play but I put up with it. Does anyone have any ideas how I can have more energy during my rounds of golf? My PSA and scans are undetectable and I don't want to take anything that would
epfj3333
in
Advanced Prostate Cancer
1 year ago
Here I go.
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
PabloK
in
Advanced Prostate Cancer
1 year ago
SBRT without ADT
Hello All….hope you all are doing well. I decided to have radiation rather than surgery. My Gleason score is 7 with PSA 8.1. PMSA revealed no spread. Two lessons on prostate one positive and other negative. I will start 5 day radiation in about 10 days. I opt for 5 days over the 20 day option.
Hello All….hope you all are doing well. I decided to have radiation rather than surgery. My Gleason score is 7 with PSA 8.1. PMSA revealed no spread. Two lessons on prostate one positive and other negative. I will start 5 day radiation in about 10 days. I opt for 5 days over the 20 day option.
ArmyCW5Retired
in
Advanced Prostate Cancer
1 year ago
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Timing of Dexamethasone
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
ctflatlander
in
Advanced Prostate Cancer
1 year ago
Joining here on Mother’s Day
I’m Lakshmi from Bangalore, india. I work as a consultant with NGOs. Im a member of the Diabetes community too. I’m 72 and the mother of a lovely young woman, a breast cancer survivor who got the big C at age 36. Now 7 years on, she’s experiencing painful side effects of the Tamoxifen hormone treatment
I’m Lakshmi from Bangalore, india. I work as a consultant with NGOs. Im a member of the Diabetes community too. I’m 72 and the mother of a lovely young woman, a breast cancer survivor who got the big C at age 36. Now 7 years on, she’s experiencing painful side effects of the Tamoxifen hormone treatment
suryakaizen
in
SHARE Breast Cancer Support
1 year ago
side effects of Tamoxifen
I joined Health Unlocked in 2016 when my daughter was diagnosed with both breast cancer and diabetes. She was 36 at the time so it was the full works in terms of treatment. She underwent a lumpectomy in her left breast, chemo, radiation and has been on hormone therapy - 1 tab of Tamoxifen a day since
I joined Health Unlocked in 2016 when my daughter was diagnosed with both breast cancer and diabetes. She was 36 at the time so it was the full works in terms of treatment. She underwent a lumpectomy in her left breast, chemo, radiation and has been on hormone therapy - 1 tab of Tamoxifen a day since
suryakaizen
in
SHARE Breast Cancer Support
1 year ago
Declining psa #4
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Nfler
in
Advanced Prostate Cancer
1 year ago
New hot flash drug approved
The FDA today approved Veozah (fezolinetant) for women's hot flashes during menopause. It acts on the thermoregulatory mechanism in the brain. I would expect it to work on men taking ADT too, although it has not been proven. I hope that Medicare/Insurance will cover it in men. https://www.fda.gov/news-events
The FDA today approved Veozah (fezolinetant) for women's hot flashes during menopause. It acts on the thermoregulatory mechanism in the brain. I would expect it to work on men taking ADT too, although it has not been proven. I hope that Medicare/Insurance will cover it in men. https://www.fda.gov/news-events
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
My brother has advanced prostate cancer
Hi everyone, Hope all of you are doing well. My brother diagnosed with stage 4 prostate cancer in August 2022 with PSA of 43. He is 54 years old.He had some spots in bones and mild spots in a lung. He started hormone therapy in October and Chemotherapy for 6 cycles in November and started to use
Hi everyone, Hope all of you are doing well. My brother diagnosed with stage 4 prostate cancer in August 2022 with PSA of 43. He is 54 years old.He had some spots in bones and mild spots in a lung. He started hormone therapy in October and Chemotherapy for 6 cycles in November and started to use
rasher1
in
Advanced Prostate Cancer
1 year ago
ART UCSF Recurrent Prostate Cancer Case Histories, 2021 Prostate Cancer Conference
Summary; this is an excellent vehicle with which to learn wherein 3 case studies are revealed to a panel of doctors from different backgrounds. The cases are exposed over their respective timeframes revealing initial diagnosis, then proceeding to how each patient was treated. Meanwhile the panel makes
Summary; this is an excellent vehicle with which to learn wherein 3 case studies are revealed to a panel of doctors from different backgrounds. The cases are exposed over their respective timeframes revealing initial diagnosis, then proceeding to how each patient was treated. Meanwhile the panel makes
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Newly diagnosed with N1M1a
My father (68 yr old) is newly diagnosed with Gleason 8 in March and his PSMA PET result just came back with N1M1a (details in bio page). Before the PSMA PET, RO's plan is the whole pelvis with IMRT followed by a prostate only boost based on CTScan and clear bone scan and stated that his treatment
My father (68 yr old) is newly diagnosed with Gleason 8 in March and his PSMA PET result just came back with N1M1a (details in bio page). Before the PSMA PET, RO's plan is the whole pelvis with IMRT followed by a prostate only boost based on CTScan and clear bone scan and stated that his treatment
qidao23
in
Advanced Prostate Cancer
1 year ago
11 months of vacatión and going strong, I think
Hello my fellow brothers. In 11 months of vacatión, my PSA has risen from point one to point seven. Still below one. My testosterone is still a little below normal, so I haven't felt the boost of returning to my youthful self, but I am feeling quite good and thankful. I am a former athlete (national
Hello my fellow brothers. In 11 months of vacatión, my PSA has risen from point one to point seven. Still below one. My testosterone is still a little below normal, so I haven't felt the boost of returning to my youthful self, but I am feeling quite good and thankful. I am a former athlete (national
CountryJoe
in
Advanced Prostate Cancer
1 year ago
Referrals??
As you may know from my previous posts, I've been considering the estradiol patch, as the side effects of 4 years of ADT are mounting. (Spinal Fracture, Osteopenia, Fatigue, bone, joint and and muscle pain as well as general sick feeling. I have discussed on two occasions with my MO, and he is NOT
As you may know from my previous posts, I've been considering the estradiol patch, as the side effects of 4 years of ADT are mounting. (Spinal Fracture, Osteopenia, Fatigue, bone, joint and and muscle pain as well as general sick feeling. I have discussed on two occasions with my MO, and he is NOT
Hidden
in
Advanced Prostate Cancer
1 year ago
The human microbiome links to prostate cancer risk and treatment (Review)
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
pca2004
in
Fight Prostate Cancer
1 year ago
Radiation Treatment for Gleason 8 with Rectal Lymph Node
Looking for recommendations and advice....newly diagnosed . I am 67 PSA at annual physical March 1st was 26 then rose to 32 two weeks later with second test. Going to Mayo Clinic in Jacksonville. Have had an MRI, Biopsy, Gleason (4+4)=8, and PSMA Pet Scan last week confirming it has spread to my Rectal
Looking for recommendations and advice....newly diagnosed . I am 67 PSA at annual physical March 1st was 26 then rose to 32 two weeks later with second test. Going to Mayo Clinic in Jacksonville. Have had an MRI, Biopsy, Gleason (4+4)=8, and PSMA Pet Scan last week confirming it has spread to my Rectal
MustangGuy
in
Advanced Prostate Cancer
1 year ago
Gleason Score 5+5
My gleason score is 5+5 =10. I watched Dr.Scholtz's talk who mentioned 5+5 case is rare and I happened to be one of them. My problems are like a full truck and wonder if that is the reason why my PSA remains above 7 after RP. Cancerous cell seems have spread to lymphnodes as i heard it prodcues PSA
My gleason score is 5+5 =10. I watched Dr.Scholtz's talk who mentioned 5+5 case is rare and I happened to be one of them. My problems are like a full truck and wonder if that is the reason why my PSA remains above 7 after RP. Cancerous cell seems have spread to lymphnodes as i heard it prodcues PSA
Formosan
in
Advanced Prostate Cancer
1 year ago
Xtandi (enzalutamide) +ADT slows metastases in recurrent men
We recently saw that ADT+Erleada (apalutamide) slows progression compared to ADT alone. https://www.prostatecancer.news/2022/09/short-term-androgen-annihilation-in-non.html Now we have proof that ADT+Xtandi (enzalutamide) slows the appearance of metastases and delays castration resistance in recurrent
We recently saw that ADT+Erleada (apalutamide) slows progression compared to ADT alone. https://www.prostatecancer.news/2022/09/short-term-androgen-annihilation-in-non.html Now we have proof that ADT+Xtandi (enzalutamide) slows the appearance of metastases and delays castration resistance in recurrent
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
Firmagon Injection gone bad!
Husband got his first hormone injection yesterday to begin treatment which will include 45 Radiation Therapy sessions. He got the first shot, everything seemed ok, got the second shot and BP dropped like a rock. Could not wake him up. They called 911 took him to the hospital. He is home and doing OK
Husband got his first hormone injection yesterday to begin treatment which will include 45 Radiation Therapy sessions. He got the first shot, everything seemed ok, got the second shot and BP dropped like a rock. Could not wake him up. They called 911 took him to the hospital. He is home and doing OK
USAFproudmom
in
Prostate Cancer Network
1 year ago
A New Direction
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
dmt1121
in
Advanced Prostate Cancer
1 year ago
Back on ADT
Restarted ADT 3/15/23 with my Lupron shot followed quickly with Xtandi 160mg daily. My PSA peaked to 3.36 on 3/7/23 and then 4/3/23 1.65 5/1/23 .34 So hoping the trend continues downward. Not sure if a slow or quick drop is better on recurrence. My RO said, when asked, "lower is better". Its getting
Restarted ADT 3/15/23 with my Lupron shot followed quickly with Xtandi 160mg daily. My PSA peaked to 3.36 on 3/7/23 and then 4/3/23 1.65 5/1/23 .34 So hoping the trend continues downward. Not sure if a slow or quick drop is better on recurrence. My RO said, when asked, "lower is better". Its getting
treedown
in
Advanced Prostate Cancer
1 year ago
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