Search
Search
About
Log in
Join
Experiences with
Anaemia
Posts
Communities
10,269 public posts
Filter results
Possible transformation to MF?
I’ve spoken with the specialist nurse from haematology this morning, my iron infusion has helped my
anaemia
but the consultant wants me to have another bmb after Christmas, and to actually go in and see the consultant in person (will be the first time since January 2020) to discuss the results approximately
I’ve spoken with the specialist nurse from haematology this morning, my iron infusion has helped my
anaemia
but the consultant wants me to have another bmb after Christmas, and to actually go in and see the consultant in person (will be the first time since January 2020) to discuss the results approximately
lizzziep
in
MPN Voice
2 years ago
help please, migraine meds
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
turquoisea7
in
Thyroid UK
2 years ago
High Neutrophils
I was diagnosed with PA 3 years ago. It runs in my family. I took loading does of methylcobalamin then went to once a month. No doctor ever told me to take folate or adenosyl. I recently learned that folate is a vital co-factor. Started 5 mg folate daily, loading doses of cyanocobalamin daily
I was diagnosed with PA 3 years ago. It runs in my family. I took loading does of methylcobalamin then went to once a month. No doctor ever told me to take folate or adenosyl. I recently learned that folate is a vital co-factor. Started 5 mg folate daily, loading doses of cyanocobalamin daily
Auburn9144
in
Pernicious Anaemia Society
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Seeking info about impact of B12 deficiency in GI and digestion and changes in GI symptoms post B12 deficiency treatment
The
anaemia
consultant I seen on Friday recommended seeing a functional GI doc in 3 months time as he suggested the root cause of my 'non-autoimmune functional B12 deficiency' is due to a functional GI issue, which I would agree with.
The
anaemia
consultant I seen on Friday recommended seeing a functional GI doc in 3 months time as he suggested the root cause of my 'non-autoimmune functional B12 deficiency' is due to a functional GI issue, which I would agree with.
Beccy_123
in
Pernicious Anaemia Society
2 years ago
NHS Attitudes on Worth of Life
When finally given a bed a 7 day wait for a treatment that was necessary to stop
anaemia
worst affects on breathing-brain etc. and then sudden discharge arranged. Nurses whispering about inappropriate discharge and a porter refusing to help with the discharge as well.
When finally given a bed a 7 day wait for a treatment that was necessary to stop
anaemia
worst affects on breathing-brain etc. and then sudden discharge arranged. Nurses whispering about inappropriate discharge and a porter refusing to help with the discharge as well.
RoseFlowerDew
in
Pernicious Anaemia Society
1 year ago
Iron Levels with CLL
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
susq9948
in
CLL Support
2 years ago
Low Ferritin and iron supplements & Iron Panel interpretation
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Watamu
in
Thyroid UK
2 years ago
Cold Agglutinin Disease/Auto-Immune Haemolytic Anaemia coupled with Triple Positive APS
Hello everyone, I wonder if anyone else has been diagnosed wth Triple Positve APS along with Cold Agglutinin Disease (COAG). My haematologist says they are unrelated but I wonder. I have recently had rituxamab intravenous treatment for COAG since it may be that it is beng triggered by low B Cell lymphoma
Hello everyone, I wonder if anyone else has been diagnosed wth Triple Positve APS along with Cold Agglutinin Disease (COAG). My haematologist says they are unrelated but I wonder. I have recently had rituxamab intravenous treatment for COAG since it may be that it is beng triggered by low B Cell lymphoma
Colinfb
in
Hughes Syndrome APS Forum
2 years ago
GP results
I know my B12 is dire - I’m hoping I can now ask for testing for pernicious
anaemia
. Unfortunately my iron wasn’t run so I will buy a kit for that.
I know my B12 is dire - I’m hoping I can now ask for testing for pernicious
anaemia
. Unfortunately my iron wasn’t run so I will buy a kit for that.
RoseF3
in
Thyroid UK
2 years ago
Feeling worse after B12 Injections
Hi all, I am a 21 y/o male who eats meat and was diagnosed with a B12 deficiency (not PA) about 2 months ago. I went into the walk-in about 3 months ago with heart palpitations, fatigue, severe anxiety, inability to focus, and some vision issues. I was diagnosed with generalized anxiety disorder and
Hi all, I am a 21 y/o male who eats meat and was diagnosed with a B12 deficiency (not PA) about 2 months ago. I went into the walk-in about 3 months ago with heart palpitations, fatigue, severe anxiety, inability to focus, and some vision issues. I was diagnosed with generalized anxiety disorder and
juanpablo111
in
Pernicious Anaemia Society
2 years ago
folic acid
Haven’t had chance to talk to GP yet as weekend, but I know one of them is extremely low folic acid I looked up Google and it said that folic acid deficiency could lead to chronic
anaemia
and causes lack of red blood cells My question is would anyone have any idea as to whether my pills I take cause
Haven’t had chance to talk to GP yet as weekend, but I know one of them is extremely low folic acid I looked up Google and it said that folic acid deficiency could lead to chronic
anaemia
and causes lack of red blood cells My question is would anyone have any idea as to whether my pills I take cause
Tapanac
in
Atrial Fibrillation Support
2 years ago
Effects of long term inflammation - anaemia of inflammation
Anaemia
of inflammation. "Anemia of inflammation, also called anemia of chronic disease or ACD, is a type of anemia that affects people who have conditions that cause inflammation, such as infections, autoimmune diseases, cancer, and chronic kidney disease (CKD).
Anaemia
of inflammation. "Anemia of inflammation, also called anemia of chronic disease or ACD, is a type of anemia that affects people who have conditions that cause inflammation, such as infections, autoimmune diseases, cancer, and chronic kidney disease (CKD).
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
2 years ago
Am Iwell?
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
Dawson21
in
CLL Support
2 years ago
parietal cell antibody lab results
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
Purplegirl2
in
Pernicious Anaemia Society
2 years ago
Advice on iron test results please
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Pastelart
in
Thyroid UK
2 years ago
Need to offload for my mental health and thought you nice lot would understand.
After stupid cycle becoming stupider, yo yoing between 26 days to 36 days with delightful mid cycle bleeding and increased heaviness leading to
anaemia
, well as a continued inability to get lower than a BMI of 35, was diagnosed with probable PCOS by GP.
After stupid cycle becoming stupider, yo yoing between 26 days to 36 days with delightful mid cycle bleeding and increased heaviness leading to
anaemia
, well as a continued inability to get lower than a BMI of 35, was diagnosed with probable PCOS by GP.
ADHDPCOS
in
Fertility Network UK
2 years ago
Low folate without anaemia?
Hi I’ve recently had some blood tests and it’s come back with a low folate level of 3.1 ug/l (range 3.9 - 20.0). My B12 was 429 ng/L MCV 97.2 (82 - 100) RBC 4.61 [4.5 - 5.9] My question is that as I don’t seem to be anaemic (well according to MCV / RBC anyway …), would I be likely to have any symptoms
Hi I’ve recently had some blood tests and it’s come back with a low folate level of 3.1 ug/l (range 3.9 - 20.0). My B12 was 429 ng/L MCV 97.2 (82 - 100) RBC 4.61 [4.5 - 5.9] My question is that as I don’t seem to be anaemic (well according to MCV / RBC anyway …), would I be likely to have any symptoms
Edso57
in
Pernicious Anaemia Society
2 years ago
Timing of bloods when taking alternate daily levo dose please?
Hi,Took 125mcgs levo for yrs, reduced early Summer as over felt medicated..GP reduced it to a 100mcgs but altho bloods were ok I felt dreadful...so since Aug have been taking 100/125 mcgs on alternate days ie average 112.5mcgs daily...I will book a blood test soon but am thinking I should book it for
Hi,Took 125mcgs levo for yrs, reduced early Summer as over felt medicated..GP reduced it to a 100mcgs but altho bloods were ok I felt dreadful...so since Aug have been taking 100/125 mcgs on alternate days ie average 112.5mcgs daily...I will book a blood test soon but am thinking I should book it for
fluffyhat
in
Thyroid UK
2 years ago
positive fit test
I’ve always had anxiety around my bowels which then ends up in them being looser I’ve never passed any blood, had recent blood tests all normal no
anaemia
, still samples for h pylori negative , calprotectin negative .
I’ve always had anxiety around my bowels which then ends up in them being looser I’ve never passed any blood, had recent blood tests all normal no
anaemia
, still samples for h pylori negative , calprotectin negative .
Hidden
in
Colon Cancer Connected
2 years ago
USA Iron Infusion billing code E83.1
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
SkyCop
in
Restless Legs Syndrome
2 years ago
1
...
85
86
87
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
4365 results
Thyroid UK
3182 results
Restless Legs Syndrome
397 results
View top 10 communities
Sort by
Most Relevant
Newest