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Advice about diarrhoea symptoms please
I have had very little assistance from my GP in relation to my Pernicious
Anaemia
with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms.
I have had very little assistance from my GP in relation to my Pernicious
Anaemia
with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms.
yorkshiregirl4
in
Pernicious Anaemia Society
1 year ago
Some results, at last
I had some blood sent for Next Generation Sequencing back in March, I’ve been waiting for the results. Consultant phoned this afternoon, he says I am now post ET MF or words to that effect! My platelets are currently 559, I’m on one capsule of Anagrelide twice a day. I was extremely anaemic and after
I had some blood sent for Next Generation Sequencing back in March, I’ve been waiting for the results. Consultant phoned this afternoon, he says I am now post ET MF or words to that effect! My platelets are currently 559, I’m on one capsule of Anagrelide twice a day. I was extremely anaemic and after
lizzziep
in
MPN Voice
1 year ago
Lanzoprazole and low B12
Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of which is landoprazole 15mg every day. Purpose to protect his stomach from the potential harm from taking 75mg asprin to thin his blood. A couple
Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of which is landoprazole 15mg every day. Purpose to protect his stomach from the potential harm from taking 75mg asprin to thin his blood. A couple
Wwwdot
in
Pernicious Anaemia Society
1 year ago
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Covid/MCAS experiences?
I’m very pale, weak and losing hair with neurological symptoms/ mental confusion and severe mood swings - I have pernicious
anaemia
and usually injections were keeping neuro symptoms at bay but im also now reacting very strongly to those.
I’m very pale, weak and losing hair with neurological symptoms/ mental confusion and severe mood swings - I have pernicious
anaemia
and usually injections were keeping neuro symptoms at bay but im also now reacting very strongly to those.
Littledancingtiger
in
Thyroid UK
2 months ago
Covid crash, dropping vitamin levels, MCAS?
I’m very pale, weak and losing hair with neurological symptoms/ mental confusion and severe mood swings - I have pernicious
anaemia
and usually injections were keeping neuro symptoms at bay but im also now reacting very strongly to those.
I’m very pale, weak and losing hair with neurological symptoms/ mental confusion and severe mood swings - I have pernicious
anaemia
and usually injections were keeping neuro symptoms at bay but im also now reacting very strongly to those.
Littledancingtiger
in
Pernicious Anaemia Society
2 months ago
Vit B12 too high?!!
I understood you can't take too much B12 ... and my grandmother died of pernicious
anaemia
hence my taking the B12 drops as I didn't feel well at all she also had thyroid problems like me. I would appreciate any comments on the 2000 reading. Thanks!!
I understood you can't take too much B12 ... and my grandmother died of pernicious
anaemia
hence my taking the B12 drops as I didn't feel well at all she also had thyroid problems like me. I would appreciate any comments on the 2000 reading. Thanks!!
PolyannaYorkshire
in
Pernicious Anaemia Society
2 years ago
Need help, please! TSH 0.01 to 8.25 to 1.12 to 16.9 to 0.07 All from 25mcg changes - down to Hashis or something else? T4 in range.
I keep my folate supplemented as I have macrocytic
anaemia
, but my iron & ferritin need checking - I have iron deficiency
anaemia
, too, but struggle with iron supplements and am considering iron infusion dependent on the next iron/ferritin results.
I keep my folate supplemented as I have macrocytic
anaemia
, but my iron & ferritin need checking - I have iron deficiency
anaemia
, too, but struggle with iron supplements and am considering iron infusion dependent on the next iron/ferritin results.
Hidden
in
Thyroid UK
1 year ago
Transferrin Saturation
I have a GP appointment a week Monday. Recently had a Medichecks nutrition test and results: Ferritin : 44.2 ug/L (R. 13 - 150) Vit. B12: 67.6 pmol/L (R.37.5 - 150) Vit.D: 119/nmolL (R50 - 200) Medichecks GP said B12 on the low side, as is Ferritin. He recommended I have a serum MMA
I have a GP appointment a week Monday. Recently had a Medichecks nutrition test and results: Ferritin : 44.2 ug/L (R. 13 - 150) Vit. B12: 67.6 pmol/L (R.37.5 - 150) Vit.D: 119/nmolL (R50 - 200) Medichecks GP said B12 on the low side, as is Ferritin. He recommended I have a serum MMA
notpink
in
Thyroid UK
1 year ago
Blood Test results
Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum transferrin: 2.42 g/L [range 2.02 - 3.63] Serum ferritin level: 70 ng/ml [range 30 - 400] Transferrin saturation index : 42% Blood tests for
Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum transferrin: 2.42 g/L [range 2.02 - 3.63] Serum ferritin level: 70 ng/ml [range 30 - 400] Transferrin saturation index : 42% Blood tests for
Rameau
in
Restless Legs Syndrome
1 year ago
Iron results help
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Nellie2016
in
Thyroid UK
1 year ago
How Yoghurt MAY Help
The Pernicious
Anaemia
Society is an international organisation and is based in Bridgend, United Kingdom. Since 21 December 1977, Bridgend or Ogwr has an official blazon of :- [i]
Onwards With Confidence.
[/i] 🐳
The Pernicious
Anaemia
Society is an international organisation and is based in Bridgend, United Kingdom. Since 21 December 1977, Bridgend or Ogwr has an official blazon of :- [i]
Onwards With Confidence.
[/i] 🐳
Narwhal10
in
Pernicious Anaemia Society
1 year ago
High Folate, Low Normal B12
Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having neurological symptoms such as anxiety, pulsatile tinnitus, tingling in legs and feet. Other symptoms include digestive issues (I believe I have low
Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having neurological symptoms such as anxiety, pulsatile tinnitus, tingling in legs and feet. Other symptoms include digestive issues (I believe I have low
JHEW0836
in
Pernicious Anaemia Society
1 year ago
self injections- feeling worse
New here. 57 years old and recently diagnosed in late stage PA and autoimmune atrophic gastritis. I was receiving weekly shots at doctor’s office but he prescribed cyanocobalamin and I am now self injecting at home with 1000mcg . After two weeks, I’m feeling so much worse. I’m in so much pain, with inability
New here. 57 years old and recently diagnosed in late stage PA and autoimmune atrophic gastritis. I was receiving weekly shots at doctor’s office but he prescribed cyanocobalamin and I am now self injecting at home with 1000mcg . After two weeks, I’m feeling so much worse. I’m in so much pain, with inability
Deirdre118
in
Pernicious Anaemia Society
1 year ago
Iron blood test results
Please see below results. Would appreciate some advice. I have changed the brand of iron supplement I am taking, as I was struggling to raise my levels previously. Now take 2x Thorne Gentle Iron on alternate days.
[u]Inflammation[/u]
CRP HS 4.21 mg/L (Range: 0 - 5) *see note below
[u]Iron
Please see below results. Would appreciate some advice. I have changed the brand of iron supplement I am taking, as I was struggling to raise my levels previously. Now take 2x Thorne Gentle Iron on alternate days.
[u]Inflammation[/u]
CRP HS 4.21 mg/L (Range: 0 - 5) *see note below
[u]Iron
Molly161018
in
Thyroid UK
1 year ago
B12 results-please can someone advise?
My query is as I have pernicious
anaemia
I have been told I need these injections for life. Would the high reading be due to having the injection and immediately having a blood test taken? Would this be a false reading?
My query is as I have pernicious
anaemia
I have been told I need these injections for life. Would the high reading be due to having the injection and immediately having a blood test taken? Would this be a false reading?
Milsean
in
Pernicious Anaemia Society
2 years ago
iron supplements
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
Kowbie
in
Pernicious Anaemia Society
1 year ago
Wake up very cold around 230 to 330 am . Any suggestions?
Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.
Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.
84withb12d
in
Pernicious Anaemia Society
1 year ago
Iron Infusion Attempt
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
Munroist
in
Restless Legs Syndrome
1 year ago
RSL - has anyone had severe side effects
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
Paul2905
in
Restless Legs Syndrome
1 year ago
Iron Bisglycinate
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
Dires
in
Restless Legs Syndrome
1 year ago
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