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Ferritin
Hi everyone,Firstly thank you for all the fantastic advice on this forum. I've got a Serum Ferritin level of 308ng/ml (my GP was concerned that this was a bit too high), Transferrin Saturation of 31% but a Serum Transferrin level of 2.3g/L. Please can you give me your thoughts on this & am I looking
Hi everyone,Firstly thank you for all the fantastic advice on this forum. I've got a Serum Ferritin level of 308ng/ml (my GP was concerned that this was a bit too high), Transferrin Saturation of 31% but a Serum Transferrin level of 2.3g/L. Please can you give me your thoughts on this & am I looking
blades10
in
Restless Legs Syndrome
2 years ago
Folate deficiency
Please can you give me some advice as to what supplement should be take for a folate deficiency. Is it folic acid tablets or folate tablets? I am somewhat confused. Also what is the optimal folate level for a person with Hashimotos? Thanks in advance
Please can you give me some advice as to what supplement should be take for a folate deficiency. Is it folic acid tablets or folate tablets? I am somewhat confused. Also what is the optimal folate level for a person with Hashimotos? Thanks in advance
Pinkisland
in
Thyroid UK
2 years ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
2 years ago
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optimal levels for vit d, folate, ferritin and vit b12?
can anyone advise on what would be considered optimal levels for the above? ferritin 29 (13-150) folate 1.94 (>3.89) b12 91.9 (37.5-150) Vit D 85 (50-200) Thanks. Asking for a friend.
can anyone advise on what would be considered optimal levels for the above? ferritin 29 (13-150) folate 1.94 (>3.89) b12 91.9 (37.5-150) Vit D 85 (50-200) Thanks. Asking for a friend.
Mickeydooley
in
Thyroid UK
2 years ago
What happens next?
I have recently been told by my GP on a telephone consultation that I have ET. No explanation of what it is other then ‘It’s a platelet thing and just making you aware as it might raise its head in the future when you have routine blood tests done. ‘ the GP spoke to Haematology who said they are not
I have recently been told by my GP on a telephone consultation that I have ET. No explanation of what it is other then ‘It’s a platelet thing and just making you aware as it might raise its head in the future when you have routine blood tests done. ‘ the GP spoke to Haematology who said they are not
BarnyKat
in
MPN Voice
2 years ago
Extremely frustrated and angry
He replied “you’ve got Pernicious
Anaemia
& underactive thyroid, etc” Then he said “but it says here the other Dr told me (which she did not) and I refused treatment WTF Pernicious
Anaemia
untreated kills you in the end “just so you know” Anyway long story short I have so much damage do to me now
He replied “you’ve got Pernicious
Anaemia
& underactive thyroid, etc” Then he said “but it says here the other Dr told me (which she did not) and I refused treatment WTF Pernicious
Anaemia
untreated kills you in the end “just so you know” Anyway long story short I have so much damage do to me now
Queeniz
in
Pernicious Anaemia Society
2 years ago
Folic Acid
Hi, I have been having B12 injections for 20 years (every 10 wks), but last year started fainting and having really bad palpitations, I actually pased out in the gps surgery, they tested my bloods and found Im low in iron so they gave me a 3 month course of Ferrous Sulfate which brought my levels
Hi, I have been having B12 injections for 20 years (every 10 wks), but last year started fainting and having really bad palpitations, I actually pased out in the gps surgery, they tested my bloods and found Im low in iron so they gave me a 3 month course of Ferrous Sulfate which brought my levels
Mioe
in
Pernicious Anaemia Society
2 years ago
4th time lucky: an interesting appointment
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
PCV 20 Guidelines ? Get 20 if you already had 13 and 23 - or not ?
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
janvog
in
CLL Support
2 years ago
WHEN ORDERING FROM AMAZON ,PLEASE USE www.smile.amazon.co.uk AND CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY .
The Society has benefitted by over £1,000 already “ Every littje helps “ . Thank you .
The Society has benefitted by over £1,000 already “ Every littje helps “ . Thank you .
wedgewood
in
Pernicious Anaemia Society
2 years ago
Milk thistle - anything to be aware of?
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
JonnyA
in
Thyroid UK
2 years ago
Positive GP experience!
I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the private consultant wrote, and agreed to follow up ferritin and folate blood tests. I advised I would have a follow up consult and I would forward
I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the private consultant wrote, and agreed to follow up ferritin and folate blood tests. I advised I would have a follow up consult and I would forward
Beccy_123
in
Pernicious Anaemia Society
2 years ago
Can Divine Intervention Change Your Genotype?
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
sicklecellnews
in
Sickle Cell Society
2 years ago
Iron results-any advice?
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Penicookie
in
Thyroid UK
2 years ago
Can you ‘feel’ your spleen?
I’ve been feeling pressure, not particularly pain, under my ribs on the left for a while. I’ve mentioned this to haematology but no reaction from them. I can feel it most when I’m sat or laid down. Is this relatively normal? I had an iron infusion last as very anaemic, which hasn’t made any difference
I’ve been feeling pressure, not particularly pain, under my ribs on the left for a while. I’ve mentioned this to haematology but no reaction from them. I can feel it most when I’m sat or laid down. Is this relatively normal? I had an iron infusion last as very anaemic, which hasn’t made any difference
lizzziep
in
MPN Voice
2 years ago
Low MCHC
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
davidgrush
in
CLL Support
2 years ago
IBS followed by gallbladder removal followed by a mystery condition. Help appreciated! I’m new here
I don’t know what is IBS-d and what is diarrhoea caused by not having a gallbladder The GP has tested me for
anaemia
, diabetes, blood sugar and other standard tests but is not coming up with any other next steps.
I don’t know what is IBS-d and what is diarrhoea caused by not having a gallbladder The GP has tested me for
anaemia
, diabetes, blood sugar and other standard tests but is not coming up with any other next steps.
GwinBlue
in
IBS Network
2 years ago
between a rock and a hard place.
I’m supposed to get my platelets down,according to my MPN specialist, below 400 before my hip surgery on 12/21. So had to take hydrea daily instead of 4x a week. Got first bloods today after upping dose. Platelets at 531 from 572 two weeks ago but MCV and MCH at top of range. 100 and 33. They’ve taken
I’m supposed to get my platelets down,according to my MPN specialist, below 400 before my hip surgery on 12/21. So had to take hydrea daily instead of 4x a week. Got first bloods today after upping dose. Platelets at 531 from 572 two weeks ago but MCV and MCH at top of range. 100 and 33. They’ve taken
Pounds11
in
MPN Voice
2 years ago
Low B12 levels link to RLS
https://www.sciencedirect.com/science/article/abs/pii/S0303846722003584 A recent study from China links low B12 to RLS and depression Only 80 people in the trial though so it does need more research Many people with pernicious
anaemia
(caused by low B12) have RLS.
https://www.sciencedirect.com/science/article/abs/pii/S0303846722003584 A recent study from China links low B12 to RLS and depression Only 80 people in the trial though so it does need more research Many people with pernicious
anaemia
(caused by low B12) have RLS.
Joolsg
in
Restless Legs Syndrome
2 years ago
Liver pain, elevated liver enzymes and ultrasound
Hello everyone. My boyfriend has been complaining of pain under his lower right rib. Pain was not severe just on and off. He got his blood test done and results showed elevated liver enzymes. He was booked for an ultrasound. We are waiting for the results but really scared. He is 39 and healthy overall
Hello everyone. My boyfriend has been complaining of pain under his lower right rib. Pain was not severe just on and off. He got his blood test done and results showed elevated liver enzymes. He was booked for an ultrasound. We are waiting for the results but really scared. He is 39 and healthy overall
Iamsarah
in
British Liver Trust
2 years ago
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