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Anaemia
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Help with diagnosis
Hi, I have pernicious
anaemia
(PA) and members from the PA society group on HealthUnlocked signposted me here. Some of the symptoms of hypothyroidism and PA overlap. I dont seem to be responding as well as I expected with B12 injections for PA and my last bloods show a 'normal' range for TSH.
Hi, I have pernicious
anaemia
(PA) and members from the PA society group on HealthUnlocked signposted me here. Some of the symptoms of hypothyroidism and PA overlap. I dont seem to be responding as well as I expected with B12 injections for PA and my last bloods show a 'normal' range for TSH.
Beccy_123
in
Thyroid UK
2 years ago
Co-morbidities with B12D/PA
Did anyone get any strange or unusual comorbidities around the time of their B12 deficiency or PA diagnosis? I just spoke with the hospital concerning a check-up on my parotid gland - a pleomorphic adenoma I had removed in 2020 along with a co-occurring thyroid nodule removal. They state that they
Did anyone get any strange or unusual comorbidities around the time of their B12 deficiency or PA diagnosis? I just spoke with the hospital concerning a check-up on my parotid gland - a pleomorphic adenoma I had removed in 2020 along with a co-occurring thyroid nodule removal. They state that they
Pickle500
in
Pernicious Anaemia Society
2 years ago
Glenmark Levothyroxine
Whilst we saw their levothyroxine withdrawn last year, I just saw something that made me wonder if it is coming back. The dm+d is a database of all medicines. Much else in the NHS uses the dm+d data as a starting point. It is a legal requirement for new medicines to be added to dm+d within something
Whilst we saw their levothyroxine withdrawn last year, I just saw something that made me wonder if it is coming back. The dm+d is a database of all medicines. Much else in the NHS uses the dm+d data as a starting point. It is a legal requirement for new medicines to be added to dm+d within something
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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CLL Staging
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Rocky0181
in
CLL Support
2 years ago
Iron test results - advice please
CRP HS X 6.45 mg/L (Range: 0 - 5) - I believe this was high because of infection, as I went down with a temperature the following day. Iron 10.0 umol/L (Range: 5.8 - 34.5) - down from 18.4 six months ago TIBC 43.2 umol/L (Range: 45 - 81) - down from 46.3 six months ago UIBC 33.2 umol/L (Range: 24.2
CRP HS X 6.45 mg/L (Range: 0 - 5) - I believe this was high because of infection, as I went down with a temperature the following day. Iron 10.0 umol/L (Range: 5.8 - 34.5) - down from 18.4 six months ago TIBC 43.2 umol/L (Range: 45 - 81) - down from 46.3 six months ago UIBC 33.2 umol/L (Range: 24.2
Molly161018
in
Thyroid UK
2 years ago
Recently diagnosed Endo
Anyway 3 years ago Mirena due to be changed again, I had one inserted no problem, a few weeks later lots of cramps, flooding and coil came out, another inserted same happened again so GP offered pill instead as my
anaemia
was bad at this point.
Anyway 3 years ago Mirena due to be changed again, I had one inserted no problem, a few weeks later lots of cramps, flooding and coil came out, another inserted same happened again so GP offered pill instead as my
anaemia
was bad at this point.
Booty42
in
Endometriosis UK
1 year ago
Need some reassurance pls
Hi,I just received my first (Hyrimoz) Adalimumab Injection Kit, I'm really nervous to start 😬 Does anyone have any good experiences with this medication that can help ease my anxiety?
Hi,I just received my first (Hyrimoz) Adalimumab Injection Kit, I'm really nervous to start 😬 Does anyone have any good experiences with this medication that can help ease my anxiety?
Grate4ul
in
NRAS
2 years ago
Help with Iron test results please
Inflammation CRP HS 0.46 mg/L ( 0 - 5) Iron Status Iron 22.2 umol/L (5.8 - 34.5) TIBC 58.0 umol/L (45 - 81) UIBC 35.8 umol/L (24.2 - 70.1) Transferrin Saturation 38.3 % (20 - 50) Ferritin 53.4 ug/L (13 - 150) These are my results from medichecks iron test. This was a retest and Interestingly
Inflammation CRP HS 0.46 mg/L ( 0 - 5) Iron Status Iron 22.2 umol/L (5.8 - 34.5) TIBC 58.0 umol/L (45 - 81) UIBC 35.8 umol/L (24.2 - 70.1) Transferrin Saturation 38.3 % (20 - 50) Ferritin 53.4 ug/L (13 - 150) These are my results from medichecks iron test. This was a retest and Interestingly
BiscuitBaby
in
Thyroid UK
2 years ago
Fibro & Severe Stiffness.
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
catcalling
in
Fibromyalgia Action UK
2 years ago
Husband's last O Infusion rescheduled due to low Neutrophils and WBC
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
lisakc1
in
CLL Support
2 years ago
Endo with no period
I started taking the pill after a 21 day period which led to me getting
anaemia
and after 15 years I had just had enough of the bleeding and pain. Thanks 😊
I started taking the pill after a 21 day period which led to me getting
anaemia
and after 15 years I had just had enough of the bleeding and pain. Thanks 😊
Katiahead
in
Endometriosis UK
2 years ago
body heat and buprenorphine
Hi, I have been using Buprenorphine patches for 4 weeks and was wondering whether body heat releases more opioids into the system. When I’m really warm I feel spacey and drowsy. Has anyone else experienced this?
Hi, I have been using Buprenorphine patches for 4 weeks and was wondering whether body heat releases more opioids into the system. When I’m really warm I feel spacey and drowsy. Has anyone else experienced this?
Navy20
in
Restless Legs Syndrome
2 years ago
Help please to understand my recent tests and what supplements I should be taking.
Recent blood tests following increase 8 weeks ago of levothyroxine to 100mcg daily from 100mcg 3 x a week, 50mcg 4 x a week. Could someone please help me to determine what supplements I should be taking. GP has suggested 1000 units of Vit d. I think my ferritin and possibly folate looks low also.
Recent blood tests following increase 8 weeks ago of levothyroxine to 100mcg daily from 100mcg 3 x a week, 50mcg 4 x a week. Could someone please help me to determine what supplements I should be taking. GP has suggested 1000 units of Vit d. I think my ferritin and possibly folate looks low also.
Jacksonnz
in
Thyroid UK
2 years ago
Looking for info for my mum about what happens at the first appointment?
In addition to this my health is not good at all I try to help her and look after her as much as possible but I am limited by my own conditions mainly Crohn's and complications from it alongside arthritis,
anaemia
requiring infusions in hospital and chronic fatigue.
In addition to this my health is not good at all I try to help her and look after her as much as possible but I am limited by my own conditions mainly Crohn's and complications from it alongside arthritis,
anaemia
requiring infusions in hospital and chronic fatigue.
Gutfeelings
in
Kidney Disease
1 year ago
Zanabrutinib
Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay off treatment until progression. Although I should get somewhere between one and three years in remission, my consultant has already started to
Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay off treatment until progression. Although I should get somewhere between one and three years in remission, my consultant has already started to
MovingForward4423
in
CLL Support
2 years ago
Could feeling very tired and a little giddy be caused by too much T3?
GP said the pain was trochanteric bursitis, not an arthritic flareup, but booked me in for blood tests to test for
anaemia
and thyroid. I test my temperature and heart rate quite regularly to make sure I am not on too high a T3 dose and both are fine (about 36 and 64) and I have no hand shakes.
GP said the pain was trochanteric bursitis, not an arthritic flareup, but booked me in for blood tests to test for
anaemia
and thyroid. I test my temperature and heart rate quite regularly to make sure I am not on too high a T3 dose and both are fine (about 36 and 64) and I have no hand shakes.
Annib1
in
Thyroid UK
2 years ago
Are my iron levels ok?
Hi. At last I have managed to get a blood test done for iron levels. Could you, Sue Johnson, please comment on them? I feel the ferritin is quite high, which should be good, but am not sure about the other results. Ferritin: 176.5. Ug/ L 10.0-291.0 Serum Iron 16.1. Umol/L. 9.0-30.4 Transferrin
Hi. At last I have managed to get a blood test done for iron levels. Could you, Sue Johnson, please comment on them? I feel the ferritin is quite high, which should be good, but am not sure about the other results. Ferritin: 176.5. Ug/ L 10.0-291.0 Serum Iron 16.1. Umol/L. 9.0-30.4 Transferrin
Ruffabug
in
Restless Legs Syndrome
2 years ago
So...how was your day ?
As has been discussed here, and pointed out by Martyn Hooper (founder of the Pernicious
Anaemia
Society), the description of symptoms sounds [i]very[/i] similar to those of B12 deficiency.
As has been discussed here, and pointed out by Martyn Hooper (founder of the Pernicious
Anaemia
Society), the description of symptoms sounds [i]very[/i] similar to those of B12 deficiency.
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
1 year ago
COMORBIDITY
Hi all, does anyone with sickle cell
anaemia
have complications with organ damage due to sickle cell? I was diagnosed with kidney failure due to sickle cell complications. They tried saving my kidney with medications and diet but it eventually failed.
Hi all, does anyone with sickle cell
anaemia
have complications with organ damage due to sickle cell? I was diagnosed with kidney failure due to sickle cell complications. They tried saving my kidney with medications and diet but it eventually failed.
Imaanforever
in
Living with Sickle Cell Disease
2 years ago
Feeling exhausted.
I have a really good , varied diet so I’m baffled as to how I could have even mild
Anaemia
. Might it be linked to my thyroid? I’m afraid that despite having thyroid issues for so many years, I’m still absolutely rubbish at understanding how it all works!
I have a really good , varied diet so I’m baffled as to how I could have even mild
Anaemia
. Might it be linked to my thyroid? I’m afraid that despite having thyroid issues for so many years, I’m still absolutely rubbish at understanding how it all works!
Smiler22
in
Thyroid UK
2 years ago
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