Experiences with

Anaemia

My cousin has just been diagnosed with Pernicious Anaemia and our shared Great Grandfather also had it. She has all the typical symptoms, including pins and needles, however, my symptoms don't include dizziness or pins and needles.

I’ve just had bloods and my folate came back as low but my b12 was 999. My white blood count was also high along with neutrophils monocytes eoisenophils and lymphocytes. I have to get retested in two weeks but has anyone else experienced this? I’ve been put on 5mg daily of iron for 4 months but could

Thanks to all who have advised me recently - Its been very helpful. It was suggested I post my blood test results here. Can anyone advise what they mean as far as rls is concerned? Ferritin 260 Iron 20.9 TIBC 40.9 % Saturation 51.1 Haemoglobin 149 Thank you!

I have been prone to anaemia for a while and take Floradix daily. I’m not sure if GP is planning to ring me about the low iron, but I know she will say TSH is fine. Any links to support my conversation with GP or helpful tips on how to proceed would be much appreciated.

There is a similar page describing Pernicious Anaemia, but again, no info on the difference. Does anyone know of an accepted definition of the difference?

Hi Everyone I've just joined, so glad I found this group, wish I'd found it years ago. Great to find a place where everyone can be so open. I have a question and would be so grateful if anyone has experienced this could give any insight, I have a folate deficiency at the moment and have been prescribed

Need some advice I have been prescribed iron tabs for anaemia - HB 80 I know they can upset the stomach & need to be taken when stomach empty. My AF meds are Flecainide Bisoprolol Apixiban & Simvastatin also take Cod liver oil Magnesium & Vit B12.

Hello, My first time here, searching for help and info. I have what seems to be "burning mouth syndrome" though it should be called Burning Tongue syndrome as it is the tongue it affects, at least in my case. It is extremely painful and I have had it for a couple years now. I have tried all manner

Hi there, I started injections nearly 3 years ago. I have had varying frequencies, everything from eod to every 2 weeks. I had so much improvement in the first year or so, but since then it seems to have tapered off. Some symptoms that have improved include dark vision, depression, balance issues,

My hubby is the sufferer, he is 65 and has had PMR for four years. He started on 15mg of Prednisolone and has had a few up and downs but is currently on 4mg. To be honest I don’t think he had many blood tests in the early days but in the last two years when he has had a full blood count done his platelets

I was just wondering if anyone else on here alsohas trouble with TMJ or teeth grinding? Strangely, my dentist was the first to mention it, before RLS was diagnosed. I never put them together until I was reading that it has neurological origins. Also linked to anxiety, which I have. I look forward

hello, Im currently taking iron supplements (50mg - Thorn) and I will need to get my blood iron tests done soon. Does anyone know how long is it best to stop taking supplements before the test? Thank you!

a quick google tells me this relates to red blood cells and vitamins B12 and folate. Just wanted to check with you experts if this is correct? I have had a few full count blood tests and my levels have been 99 and 103 from a range of 75-105. I haven’t had blood tests yet that separate the vitamins

Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes

Querying anaemia/pa but wondering if addressing stomach / FUT2 will resolve issues have pins needles, periodic burning foot pain enlarged tongue Taking Vit D with K2 at the moment Stopped taking B12 for now as got jittery and wanted to know if it was due to Levo increase Thank you all, this

Hello everyone- A quick question. I’m planning on doing a medichecks iron panel test in 7 days to recheck my iron levels to see if they’ve improved with supplementation. I know to stop Biotin/ B vits for a week before blood tests but do I also need to stop taking my iron supplements too? Advice would

I haven’t posted in quite a few years. A little about me 51 yo self inject very 6-8 weeks, no Dx PA, Holo tc test 19*😳(this is the active test for anyone who might be new to all of this, the PA veterans Are a mine of information) Serum b12 -279 These tests were way back in 2013. 😱 I battled with

Through a Freedom of Information request to the North East and North Cumberland ICB, I have learned that Tess Valley is currently developing local guidelines but in the meantime prescribers should folliw the national guidelines on the management of B12 deficiency. https://cks.nice.org.uk/topics/anaemia-b12

Serum vitamin D level (XE2e7) 37 nmol/L [25 - 300] Serum folate level (42U5.) 1.5 ng/ml [4 - 27] Serum vitamin B12 level (XE2pf) 341 ng/L [130 - 800] Serum ferritin level (XE24r) 125 ng/ml [30 - 400]

Hi all, my partner has pernicious anaemia,she is 38 and has been diagnosed for about 6 years. she has injections every 6 weeks. We are having real struggles in our relationship. I believe allot of her anxiety, mood swings, controlling behaviour, intensity is caused by her PA.