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LVV Update
Hello, just getting back with the latest on what appears to be a huge LVV flare. Had the PET Scan on Thursday and doc called yesterday. I have the scan but can’t really read it other than to see that there is no “hyper metabolic intra cranial lesion” or “FDG avid cervical or supraclavicular lymphadenopathy
Hello, just getting back with the latest on what appears to be a huge LVV flare. Had the PET Scan on Thursday and doc called yesterday. I have the scan but can’t really read it other than to see that there is no “hyper metabolic intra cranial lesion” or “FDG avid cervical or supraclavicular lymphadenopathy
LemonZest11
in
PMRGCAuk
19 days ago
A recent MRI of the Abdomen
6/28/24- I am about to start calquence. I would appreciate your words of encouragement and advice. Follow-up mLeft upper pole 1.8 cm hypoenhancing solid renal lesion concerning for renal cell carcinoma, papillary subtype. Less likely differential of lymphomatous lesion. Innumerable additional
6/28/24- I am about to start calquence. I would appreciate your words of encouragement and advice. Follow-up mLeft upper pole 1.8 cm hypoenhancing solid renal lesion concerning for renal cell carcinoma, papillary subtype. Less likely differential of lymphomatous lesion. Innumerable additional
bagelstreet225
in
CLL Support
20 days ago
CAR T-Cell Therapy Demonstrates Promising Results for mCRPC
A total of 14 patients were treated between August 2019 and July 2022. The median patient age was 62 in dose level 1 (DL1), 70 for dose level 2 (DL2), and 69 for dose level 3 (DL3). The baseline prostate-specific antigen (PSA) ranged from 16.5 ng/mL to 235.3 ng/mL. Primary end points were safety and
A total of 14 patients were treated between August 2019 and July 2022. The median patient age was 62 in dose level 1 (DL1), 70 for dose level 2 (DL2), and 69 for dose level 3 (DL3). The baseline prostate-specific antigen (PSA) ranged from 16.5 ng/mL to 235.3 ng/mL. Primary end points were safety and
God_Loves_Me
in
Advanced Prostate Cancer
20 days ago
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Xeloda neck pain
On first week xeloda and I get severe neck and face pain once a day..I take a klonpin and tylenol and relieved in half hour..I don't know if anyone else has it.ROX
On first week xeloda and I get severe neck and face pain once a day..I take a klonpin and tylenol and relieved in half hour..I don't know if anyone else has it.ROX
Mcangel11
in
SHARE Metastatic Breast Cancer
20 days ago
surgery
well it’s been a while since I posted my fellow warriors Started having hip issues a couple of months ago. Did a Ct and MRI as well as X-rays. Found that the ball was gone off my left hip , then on closer inspection found that the right hip the cancer had eaten all the way thru the upper femur ?
well it’s been a while since I posted my fellow warriors Started having hip issues a couple of months ago. Did a Ct and MRI as well as X-rays. Found that the ball was gone off my left hip , then on closer inspection found that the right hip the cancer had eaten all the way thru the upper femur ?
larry_dammit
in
Advanced Prostate Cancer
20 days ago
Wondering what to do
Hello I have not posted for a while but I wondered if any had any thoughts to help me with my dilemma. I have had 18 rounds of chemo and rucaparib all of which have been successful for a while. I also had surgery in 2020 when I was diagnosed. My last lot of single carbo chemo have me a stable few months
Hello I have not posted for a while but I wondered if any had any thoughts to help me with my dilemma. I have had 18 rounds of chemo and rucaparib all of which have been successful for a while. I also had surgery in 2020 when I was diagnosed. My last lot of single carbo chemo have me a stable few months
BadgerBright
in
My Ovacome
20 days ago
vitamins
Morning everyone This is a big ask but is there someone that can tell me if this multivitamin is safe to take? It has iron in it and was always told to be careful with iron bit about me Women over 60 No thyroid for over 15 years On 20 T3 and 100 / 125 levothoroxine alternitive days Take marshmalllow
Morning everyone This is a big ask but is there someone that can tell me if this multivitamin is safe to take? It has iron in it and was always told to be careful with iron bit about me Women over 60 No thyroid for over 15 years On 20 T3 and 100 / 125 levothoroxine alternitive days Take marshmalllow
Nellups
in
Thyroid UK
4 months ago
Shirley
I MBC that had spread to bones now found two small spots on lungs. I was taking ansezole for estrogen blocker and venezico .I am ER statuses positive , HER2 negative. They say I have mutation on my cancer an wants me take a treatment PIQKAY and Fulvestrant. I am very nervous taking these. ANYONE
I MBC that had spread to bones now found two small spots on lungs. I was taking ansezole for estrogen blocker and venezico .I am ER statuses positive , HER2 negative. They say I have mutation on my cancer an wants me take a treatment PIQKAY and Fulvestrant. I am very nervous taking these. ANYONE
Moonfry
in
SHARE Metastatic Breast Cancer
21 days ago
Newly diagnosed with HCC
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
Dachshund45
in
Blue Faery Liver Cancer
22 days ago
A Secondary Primary Malignancy hit me
The doctors tell us that you don't die from CLL; you die with CLL. What they don't tell you very often is that even though it isn't the CLL that gets you, it could very well be a secondary primary malignancy caused by the CLL that does it. Bennevisplace wrote on this a few months ago; i.e. the fact
The doctors tell us that you don't die from CLL; you die with CLL. What they don't tell you very often is that even though it isn't the CLL that gets you, it could very well be a secondary primary malignancy caused by the CLL that does it. Bennevisplace wrote on this a few months ago; i.e. the fact
hhk50
in
CLL Support
22 days ago
Tomorrow is finally the day of my MRI after waiting 3 1/2 months since the ultrasound and CT scan couldn't be sure of a mass or not.
After having to postpone my original MRI appt last month due to the death of my mother, I am finally getting it done tomorrow. Those who haven't read my previous posts, a fibroid and possible ovarian mass were found on an incidental CT scan back in March where I was diagnosed with diverticulitis after
After having to postpone my original MRI appt last month due to the death of my mother, I am finally getting it done tomorrow. Those who haven't read my previous posts, a fibroid and possible ovarian mass were found on an incidental CT scan back in March where I was diagnosed with diverticulitis after
starrynight5626
in
My Ovacome
22 days ago
Guided bacteria, 100% effective in preclinical trials
well, I am citing... "With a 100% remission rate and no meaningful side effects in all the subjects of the company's preclinical trials, this technology is conceived to address all solid tumors, representing 90% of cancer and 89% of deaths." Even 50% of that result in humans would be amazing! https
well, I am citing... "With a 100% remission rate and no meaningful side effects in all the subjects of the company's preclinical trials, this technology is conceived to address all solid tumors, representing 90% of cancer and 89% of deaths." Even 50% of that result in humans would be amazing! https
Maxone73
in
Advanced Prostate Cancer
23 days ago
Very promising: PIP Polyspecific Integrin-Binding Peptide, a novel and very flexible platform
Basically, they have developed a technology that can simultaneously bind to different "proteins" expressed by cancers. This means a wider specificity. One cancer mutation could express for example KRAS 12C and another KRAS 12D (just an example using terms and mutation I know!) and the chemo drug would
Basically, they have developed a technology that can simultaneously bind to different "proteins" expressed by cancers. This means a wider specificity. One cancer mutation could express for example KRAS 12C and another KRAS 12D (just an example using terms and mutation I know!) and the chemo drug would
Maxone73
in
Advanced Prostate Cancer
23 days ago
Only mouse study, but interesting research on microbiome using astragaloside and scorpion venom
Astragaloside IV-PESV inhibits prostate cancer tumor growth by restoring gut microbiota and microbial metabolic homeostasis via the AGE-RAGE pathwayXujun You, Junfeng Qiu, Qixin Li, Qing Zhang, Wen Sheng, Yiguo Cao, Wei Fu BMC cancer 24 (1), 472, 2024 Background Prostate cancer (PCa) is becoming the
Astragaloside IV-PESV inhibits prostate cancer tumor growth by restoring gut microbiota and microbial metabolic homeostasis via the AGE-RAGE pathwayXujun You, Junfeng Qiu, Qixin Li, Qing Zhang, Wen Sheng, Yiguo Cao, Wei Fu BMC cancer 24 (1), 472, 2024 Background Prostate cancer (PCa) is becoming the
Graham49
in
Advanced Prostate Cancer
23 days ago
consultant needed
I have been seeing Professor Matthew Walker for RLS. I am taking 600mg of gabapentin at 3pm and a further 600mg at 7pm. I also frequently take a further 300mg at midnight. I was on 6 x .088mg of Pramipexole which I have gradually come off of completely since September 2023. I took my last 1/2 of.088mg
I have been seeing Professor Matthew Walker for RLS. I am taking 600mg of gabapentin at 3pm and a further 600mg at 7pm. I also frequently take a further 300mg at midnight. I was on 6 x .088mg of Pramipexole which I have gradually come off of completely since September 2023. I took my last 1/2 of.088mg
purple-flowers
in
Restless Legs Syndrome
4 months ago
Consider the options?
Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate paclitaxel) and now on Avastin i/v and Olaparib. CA 9, which is fantastic. Side effects are just destroying me. I am 80, the Olaparib goes through to mid June 2026 and the Avastin finishes at the end of this year. Oncologist
Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate paclitaxel) and now on Avastin i/v and Olaparib. CA 9, which is fantastic. Side effects are just destroying me. I am 80, the Olaparib goes through to mid June 2026 and the Avastin finishes at the end of this year. Oncologist
Pawpaw22
in
My Ovacome
23 days ago
slight CEA Elevation
hi everyone- my father has MBC and is currently on Lynparza / Olaparib to target the BRCA2 gene mutation. He has been on it for 9 months and had a scan that showed complete control over his breast cancer on May 21st (not too long ago at all). The only thing that “lit up” on the scan was his Prostate
hi everyone- my father has MBC and is currently on Lynparza / Olaparib to target the BRCA2 gene mutation. He has been on it for 9 months and had a scan that showed complete control over his breast cancer on May 21st (not too long ago at all). The only thing that “lit up” on the scan was his Prostate
Jenniferp2122
in
SHARE Metastatic Breast Cancer
23 days ago
Be careful: Pluvicto controversy, dammit!
not saying that it does not work, in fact for some patients it is simply fantastic, but still...they have damaged their reputation with patients https://www.nature.com/articles/s44276-024-00065-7 The PSMAfore and VISION trials for Lutetium-177 PSMA-617 in prostate cancer exhibit design flaws that bias
not saying that it does not work, in fact for some patients it is simply fantastic, but still...they have damaged their reputation with patients https://www.nature.com/articles/s44276-024-00065-7 The PSMAfore and VISION trials for Lutetium-177 PSMA-617 in prostate cancer exhibit design flaws that bias
Maxone73
in
Advanced Prostate Cancer
23 days ago
2nd ivf
i had a miscarriage at 5 weeks after a frozen embryo transfer. They have given me two options: one is modified natural cycle and other is same previous method where I was given estrogen tablets patches and pessaries and had embryo transfer. I’m not sure which option is better. I had a positive pregnancy
i had a miscarriage at 5 weeks after a frozen embryo transfer. They have given me two options: one is modified natural cycle and other is same previous method where I was given estrogen tablets patches and pessaries and had embryo transfer. I’m not sure which option is better. I had a positive pregnancy
Eatdrink
in
Fertility Network UK
4 months ago
Real issues with brands
For many months now I have been having real issues trying to get my usual thyroid brands and along the way I have been given (and tried) other brands which caused a really severe reaction so I am very limited now on the brands I WILL try because I refuse to go through the hell I went through again.
For many months now I have been having real issues trying to get my usual thyroid brands and along the way I have been given (and tried) other brands which caused a really severe reaction so I am very limited now on the brands I WILL try because I refuse to go through the hell I went through again.
Jefner
in
Thyroid UK
4 months ago
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