For many months now I have been having real issues trying to get my usual thyroid brands and along the way I have been given (and tried) other brands which caused a really severe reaction so I am very limited now on the brands I WILL try because I refuse to go through the hell I went through again. It hasn't helped with so many pharmacies closing down in my town which our local MP actually raised in the Houses of Parliament recently. I have phoned so many pharmacies to try and sort a new one that can provide me with my needs but most never pick up the phone and with my agoraphobia issues, I can't just go out and visit each one in person.
Every time I put in a script I have to phone my pharmacy to see what brands they are giving me and also remind them of the ones I can't have (despite it being on their system and brand mentioned on my scripts). It's a nightmare and has been for a year now.
My usual pharmacy has recently been taken over and they can't get my T3 in the Morningside brand so I am again trying to find one that provide all the brands I need. I finally managed to speak to Asda, explained what I needed and was informed that they should be able to get what I need
Funnily enough she informed me that she can get my T3 in the Accord brand (which I never knew before) which is the brand I always have for my Levo. As the Morningside brand seems so difficult to obtain I am wondering whether I should try the Accord brand because the fillers will obviously be the same as in the Levo?
I currently have:-
100 Levo - Accord
25 Levo - Wockhardt
T3 - Morningside
So 3 different brands and possibly trying the Accord in the T3 will cut it down to 2 brands making it easier to source?
Then the pain in the botty job of getting my GP to change names on my records again
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Jefner
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There is much confusion about Accord liothyronine.
First, Accord have applied for and been granted a licence for their own liothyronine.
However, up till now, whenever anyone thought they were getting that product, they actually received another product. I *think* they got Morningside.
But what is impossible is keeping ahead of things. They could change and I wouldn't know until it becomes obvious - such as a member telling me/us!
Whatever you get, check the manufacturer and product licence number - which will be on the outside of the pack.
Details are in my UK thyroid hormones document.
helvella's medicines documents (UK and Rest of the World) can be found here:
helvella - Thyroid Hormone Medicines
helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world. There is now a specific world desiccated thyroid document.
I highly recommend viewing on a computer screen, or a decent sized tablet, rather than a phone. Even I find it less than satisfactory trying to view them on my phone.
helvella - Thyroid Hormone Medicines - UK
The UK document contains up-to-date versions of the Summary Matrixes for levothyroxine tablets, oral solutions and also liothyronine available in the UK. Includes descriptions of tablet markings which allow identification. Latest updates include all declared ingredients for all UK products and links to Patient Information Leaflets, etc.
helvella - World Desiccated Thyroid
Contains details of all known desiccated thyroid products.
helvella - Thyroid Hormone Medicines - RotW
Contains details of all levothyroxine, liothyronine and combination products - excluding desiccated thyroid products. Details available vary by country and manufacturer.
The link below takes you to a blog page which has direct links to the documents from Dropbox and QR codes to make it easy to access from phones. You will have to scroll down or up to find the link to the document you want.
"First, Accord have applied for and been granted a licence for their own liothyronine. However, up till now, whenever anyone thought they were getting that product, they actually received another product. I *think* they got Morningside"
So are you saying the Accord Liothyroninine may have different fillers in than the Accord Levo? I am not really understanding what you mean by "getting Morningside"
There is absolutely NO connection between the excipients (fillers) in different products from one company. To take one example, Teva, only because they make both levothyroxine and liothyronine and I could grab the information quickly!
Further, because the big companies are as large as they are, their products could be manufactured in multiple factories, in multiple companies with excipients sourced from different suppliers even if they are theoretically "the same".
Accord liothyronine (if it is their OWN formulation).
Accord applied for a license for their own formulation of liothyronine. But, in reality, they simply got product from another company and had it packaged under their name. They have not tried to hide this because the manufacturer name and product license number will be on the outside of the packaging and on the Patient Information Leaflets. This is almost exactly what Almus and Hillcross do, and Northstar did, with levothyroxine. (Except Almus/Hillcross and Northstar do not hold their own licenses.)
light magnesium oxide, sodium starch glycolate and
sodium stearyl fumarate
It is precisely because of all these issues that I maintain and post my medicines documents repeatedly. Whilst I might make some mistakes, I do try to ensure the information is fairly accessible.
If you can't get your prescription filled locally it might be worth looking at the Thyroid UK list of pharmacies. Some of these dispense NHS as well as private prescriptions. Here's the link.
I can't remember if I've spoke before but worth getting in touch with Springfield pharmacy, Richmond as they might be able to source everything you need.I too can only take Morningside and they source it for me and post it out. They specialise in Thyroid hormones
sparkly I use them ever since I couldn't get Sigma Pharma Lio from my local Boots. My surgery send the scrip to them electronically and I usually receive the meds by first class post within a couple of days. Many of the big pharmacy chains are not happy about subsidising the cost of meds as per NHS drugs tariff which I mentioned earlier this week. I am sure the drugs tariffs are causing lots of issues re availability/cost and not just for us thyroidies.
Oh that's good to know that they send it directly to them. I'm picking mine up and posting to them as i do ring beforehand to check they can still get it. They had to email back this time as wasn't sure with wholesaler but did get it and received within a couple of days. Brilliant that they specialise in Thyroid meds, and it's just a normal high St pharmacy too.
Hope it continues as know it will boil down to costs and pharmacies can end up being out of pocket.
Have you considered speaking to the medication manger at your GP Surgery. I did this and they put my preferred brand on the prescriptions. I now always get the same brand as pharmacy has to source a named brand. You can even call manufacturers and they will deliver direct to your pharmacy rather than them saying we can only get what’s in stock with their stockist.
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