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Update - Not Polymyalgia?
Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck, shoulders, arms) Put back on 20mg steroids. I wasn’t convinced on 2nd diagnosis so GP agreed I should taper off. Began taper, had blood tests
Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck, shoulders, arms) Put back on 20mg steroids. I wasn’t convinced on 2nd diagnosis so GP agreed I should taper off. Began taper, had blood tests
Purplelamp
in
PMRGCAuk
7 months ago
Duloxetine - cold turkey and afterwards?
One of my tasks in the New Year (after discussing with GP) was to decrease Duloxetine and possibly try something else as the hyperhidrosis side effects were becoming so problematical for me and, after working well for nigh-on 3 years they also now had reduced effectiveness at controlling my pain despite
One of my tasks in the New Year (after discussing with GP) was to decrease Duloxetine and possibly try something else as the hyperhidrosis side effects were becoming so problematical for me and, after working well for nigh-on 3 years they also now had reduced effectiveness at controlling my pain despite
denny_the_wench
in
Fibromyalgia Action UK
7 months ago
newbie
dr diagnosed me with fibromyalgia today along with vitamin D deficiency. She prescribed amitriptyline, I’m hoping this will help . I hate feeling in pain all the time and not being able to sleep.
dr diagnosed me with fibromyalgia today along with vitamin D deficiency. She prescribed amitriptyline, I’m hoping this will help . I hate feeling in pain all the time and not being able to sleep.
Keating4135
in
Fibromyalgia Action UK
7 months ago
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Not sleeping
I was diagnosed with Fibromyalgia in my early 30's. I had been on Amitriptyline since then. I was diagnosed with Sciatica after suffering with it through covid for two years not sure what it was during that time. I was put on Pregabalin which helped with the pain but my sleep is disrupted , I was
I was diagnosed with Fibromyalgia in my early 30's. I had been on Amitriptyline since then. I was diagnosed with Sciatica after suffering with it through covid for two years not sure what it was during that time. I was put on Pregabalin which helped with the pain but my sleep is disrupted , I was
Hidden
in
Fibromyalgia Action UK
7 months ago
internal shingles
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
Mongoose123
in
PMRGCAuk
7 months ago
family with OCD
I am 47 and have had OCD MY entire life. It's not mostly just my thoughts. My son is 18 and struggles when religious OCD. My daughter is 21 and her OCD has exploded over the past 4-5 years. She has been diagnosed with OCPD. She had been hospitalized 14 times for suicidal ideation or attempts. She
I am 47 and have had OCD MY entire life. It's not mostly just my thoughts. My son is 18 and struggles when religious OCD. My daughter is 21 and her OCD has exploded over the past 4-5 years. She has been diagnosed with OCPD. She had been hospitalized 14 times for suicidal ideation or attempts. She
jcozy
in
My OCD Community
11 months ago
Severe back pain
Hi fellow Lupies, There have been one or two posts about back pain which I was keen to read as I've just, at last, after long standing back problems for around 20 years, had some real investigation done. However, my main problem, spondylolistheses, has not been mentioned. This is a condition where the
Hi fellow Lupies, There have been one or two posts about back pain which I was keen to read as I've just, at last, after long standing back problems for around 20 years, had some real investigation done. However, my main problem, spondylolistheses, has not been mentioned. This is a condition where the
LuluM25
in
LUPUS UK
7 months ago
Christmas
Hey all, mums chirosis continues to cause us fun each day. I’m now pretty much at the stage of forcing her to eat little and often as she is never hungry, and is never thirsty despite all of her lips cracking and her tounge swelling. When she drinks, it’s as though she is trying to swallow knives or
Hey all, mums chirosis continues to cause us fun each day. I’m now pretty much at the stage of forcing her to eat little and often as she is never hungry, and is never thirsty despite all of her lips cracking and her tounge swelling. When she drinks, it’s as though she is trying to swallow knives or
PerpetuallySad
in
British Liver Trust
7 months ago
breath and mouth
Hey mate... I wonder have you guys experienced your breath and mouth smell like betadine?
Hey mate... I wonder have you guys experienced your breath and mouth smell like betadine?
xechoo
in
LUPUS UK
7 months ago
Ahhhh well, I guess it could be worse!
A while back, I was seen by a lady at the pain clinic, who said that I have ‘Scoliosis convex to the right with minor anterior vertebral body height loss at T12, L3 and L4. Disc space narrowing at the lumbosacral level with hypertrophy of the lower lumbar facet joints’. The pain is really intense,
A while back, I was seen by a lady at the pain clinic, who said that I have ‘Scoliosis convex to the right with minor anterior vertebral body height loss at T12, L3 and L4. Disc space narrowing at the lumbosacral level with hypertrophy of the lower lumbar facet joints’. The pain is really intense,
DollyDutchGirl_1946
in
Pain Concern
7 months ago
severe peripheral neuropathy
Hello everyone I have had peripheral neuropathy for about 9 yrs shortly after I was diagnosed with polymyalgia. It has progressively become worse to the point now of me hardly getting any sleep because my feet burn so much I have to put them in cold water several times a night and even during the day
Hello everyone I have had peripheral neuropathy for about 9 yrs shortly after I was diagnosed with polymyalgia. It has progressively become worse to the point now of me hardly getting any sleep because my feet burn so much I have to put them in cold water several times a night and even during the day
Sorop
in
Pain Concern
7 months ago
IBS hell
I have been suffering for nearly 4 years with 'IBS', possible celiac disease and I am in pain everyday! My bladder is now starting to hurt too! I have had soooo many tests and be referred to a gastro, with the diagnosis as 'Servere bowel dysfunction', possible celiac, as my bloods are negative, but my
I have been suffering for nearly 4 years with 'IBS', possible celiac disease and I am in pain everyday! My bladder is now starting to hurt too! I have had soooo many tests and be referred to a gastro, with the diagnosis as 'Servere bowel dysfunction', possible celiac, as my bloods are negative, but my
Rachyroo123
in
IBS Network
7 months ago
A CROSSOVER POST
This post straddles both Pain and AF …. so … if considered inappropriate please delete, I understand. A few weeks ago I posted that during the night I had to make a comfort stop and in doing so I tripped over the cat … went flying through the air and smashed my osteoarthritis ridden left shoulder into
This post straddles both Pain and AF …. so … if considered inappropriate please delete, I understand. A few weeks ago I posted that during the night I had to make a comfort stop and in doing so I tripped over the cat … went flying through the air and smashed my osteoarthritis ridden left shoulder into
BenHall1
in
Pain Concern
7 months ago
A CROSSOVER POST
WARNING - this post straddles both Pain and AF …. so … if considered inappropriate please delete, I understand. A few weeks ago I posted that during the night I had to make a comfort stop and in doing so I tripped over the cat … went flying through the air and smashed my osteoarthritis ridden left shoulder
WARNING - this post straddles both Pain and AF …. so … if considered inappropriate please delete, I understand. A few weeks ago I posted that during the night I had to make a comfort stop and in doing so I tripped over the cat … went flying through the air and smashed my osteoarthritis ridden left shoulder
BenHall1
in
Atrial Fibrillation Support
7 months ago
Creating a Framework for Treating Autoimmune Gastritis—The Case for Replacing Lost Acid
A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: [i]"Autoimmune gastritis is not a gastritis that needs acid suppression; rather, it may benefit from acid supplementation. The loss of stomach acid in AIG precedes nutrient deficiencies
A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: [i]"Autoimmune gastritis is not a gastritis that needs acid suppression; rather, it may benefit from acid supplementation. The loss of stomach acid in AIG precedes nutrient deficiencies
Technoid
in
Pernicious Anaemia Society
9 days ago
low stomach acid
Post from lady on here earlier caught my attention and I wonder if any of you knowledgable people can throw some light on this? I done the home test - some baking soda & water first thing and no burp at all which indicates low stomach acid. Thankfully I do not have discomfort but I’m concerned about
Post from lady on here earlier caught my attention and I wonder if any of you knowledgable people can throw some light on this? I done the home test - some baking soda & water first thing and no burp at all which indicates low stomach acid. Thankfully I do not have discomfort but I’m concerned about
FoxyTed
in
Thyroid UK
11 days ago
Fibromyalgia or PMR
Hi, advice please! I had a PMR diagnosis so put on prednisone then rheumatologist diagnosis of not PMR but fibromyalgia so tapered off prednisone. Finished prednisone in Sept. Pains returned referred to physio which worsened Pains so was discharged. Got a appt with Dr finally but had a 6 week wait.
Hi, advice please! I had a PMR diagnosis so put on prednisone then rheumatologist diagnosis of not PMR but fibromyalgia so tapered off prednisone. Finished prednisone in Sept. Pains returned referred to physio which worsened Pains so was discharged. Got a appt with Dr finally but had a 6 week wait.
Monkey321
in
PMRGCAuk
7 months ago
Vaginal and anal pain
Taking amitriptyline and two pills a day but still having very bad days in pain, struggling to get out of bed,is it normal??As my fatigue is getting more and more, sitting and walking make me have shivering and very bad pain in my bottom feels like someone is cutting with a blade,I don't know when will
Taking amitriptyline and two pills a day but still having very bad days in pain, struggling to get out of bed,is it normal??As my fatigue is getting more and more, sitting and walking make me have shivering and very bad pain in my bottom feels like someone is cutting with a blade,I don't know when will
Kamna1
in
Endometriosis UK
7 months ago
30 Day Update
Current Trial; 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1.5mg hydroxocobalamin 3mg/ml. SC injection 5 times a day. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin B1 300 mg 5 times a day. 2 mg Magnesium L-Threonate twice a day
Current Trial; 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1.5mg hydroxocobalamin 3mg/ml. SC injection 5 times a day. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin B1 300 mg 5 times a day. 2 mg Magnesium L-Threonate twice a day
WIZARD6787
in
Pernicious Anaemia Society
18 days ago
Amitriptyline
Hi I have started taking low dose (10mg) Amitriptyline each evening(about a month now) but as i've just had one of the worst bouts ever wondered if it is just making matters worse by creating more constipation, has anyone else out there with IBSm or IBSc has had success with it or has it just made
Hi I have started taking low dose (10mg) Amitriptyline each evening(about a month now) but as i've just had one of the worst bouts ever wondered if it is just making matters worse by creating more constipation, has anyone else out there with IBSm or IBSc has had success with it or has it just made
buggins55
in
IBS Network
7 months ago
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