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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Off RA meds "again"
I started back on Methotrexate 6 weeks ago after being off anti inflammatories for 18 months because of my liver levels being so high. They've just stopped the Metho again because the levels went up again Alk Phos 409, ALT 236 and Gamma GT 468, I don't know what's going to happen now, I see RA nurse
I started back on Methotrexate 6 weeks ago after being off anti inflammatories for 18 months because of my liver levels being so high. They've just stopped the Metho again because the levels went up again Alk Phos 409, ALT 236 and Gamma GT 468, I don't know what's going to happen now, I see RA nurse
Ginger46
in
NRAS
6 years ago
Help with making sense of my results please?
Hello everybody, I wondered if somebody could help me see where I go from here now I have a printout of my results please? My blood was taken on 12 July at 7.50am and I had fasted from 10pm the previous evening. I recently visited GP for first time with symptoms of mainly weight gain, tingling in feet
Hello everybody, I wondered if somebody could help me see where I go from here now I have a printout of my results please? My blood was taken on 12 July at 7.50am and I had fasted from 10pm the previous evening. I recently visited GP for first time with symptoms of mainly weight gain, tingling in feet
jjjam
in
Thyroid UK
6 years ago
Advice on supplements after blood tests.
On 17th April I had numerous blood tests following a visit to the doctors to discuss my extreme tiredness and hair loss. I was subsequently diagnosed with an under active thyroid but I wonder if any one can look at the other test results and suggest some supplements. I've entered my subsequent thyroid
On 17th April I had numerous blood tests following a visit to the doctors to discuss my extreme tiredness and hair loss. I was subsequently diagnosed with an under active thyroid but I wonder if any one can look at the other test results and suggest some supplements. I've entered my subsequent thyroid
MissSusan
in
Thyroid UK
6 years ago
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could someone please help me with my results. I am on 175mmg of thyroxine, diabetic on oral medication, have IBS D, take simvastatin
Full blood count Total white blood count 6.4 10*9/L [4.0 - 10.0] Red blood cell count 7.07 10*12/L [4.5 - 5.5] Above high reference limit Haemoglobin concentration 174 g/L [130.0 - 170.0] Above high reference limit Haematocrit 0.492 [0.4 - 0.5] Mean cell volume 70 fL [83.0 - 101.0] Below low
Full blood count Total white blood count 6.4 10*9/L [4.0 - 10.0] Red blood cell count 7.07 10*12/L [4.5 - 5.5] Above high reference limit Haemoglobin concentration 174 g/L [130.0 - 170.0] Above high reference limit Haematocrit 0.492 [0.4 - 0.5] Mean cell volume 70 fL [83.0 - 101.0] Below low
mogamed
in
Thyroid UK
6 years ago
Scared af
Hello everyone I really scared because my tounge when I feel it jumps and my legs twitch but idk because this happens because I’m scared so idk if it’s anxiety and the internet tells me different I really scared it
als
and it happened when my mom told me a story all summer I thought I was dying and I
Hello everyone I really scared because my tounge when I feel it jumps and my legs twitch but idk because this happens because I’m scared so idk if it’s anxiety and the internet tells me different I really scared it
als
and it happened when my mom told me a story all summer I thought I was dying and I
Ebbykitty1172738262
in
Anxiety Support
6 years ago
30 year old male. Low self confidence. Anxiety and Depression.
My Mother died of
ALS
(Lou Gehrig's Disease) when I was 17 years old, and my nephew died of Liver Cancer in January of 2015. I have a full-time job, bought my own house and the whole bit.
My Mother died of
ALS
(Lou Gehrig's Disease) when I was 17 years old, and my nephew died of Liver Cancer in January of 2015. I have a full-time job, bought my own house and the whole bit.
jeff0120
in
Anxiety and Depression Support
6 years ago
3 month testing after chemo
Husband finished chemo end of feb and has just gotten his test results ! It has been nerve racking to say the least! So at end of chemo 6.9 and now three months after the last psa test he’s 7.1. He dropped from 4300 at the time of diagnosis . It was a different lab and that may make the difference. Testerone
Husband finished chemo end of feb and has just gotten his test results ! It has been nerve racking to say the least! So at end of chemo 6.9 and now three months after the last psa test he’s 7.1. He dropped from 4300 at the time of diagnosis . It was a different lab and that may make the difference. Testerone
Cynthgob
in
Advanced Prostate Cancer
6 years ago
Constipation!
He does
als
I get quite explosive D to. He has an appointment in 3 weeks to see a colorectal surgeon which we expect may be a waste of time! As usual but I'm concerned with his blood loss. This has gone on now for over a year and he has been waiting 4 months to get a gastro referral app.
He does
als
I get quite explosive D to. He has an appointment in 3 weeks to see a colorectal surgeon which we expect may be a waste of time! As usual but I'm concerned with his blood loss. This has gone on now for over a year and he has been waiting 4 months to get a gastro referral app.
Sandraem
in
Crohn's and Colitis Support
6 years ago
Guide to cure health anxiety, or lower it to an extent in which it isn't debilitating.
My fear is
ALS
and so if I get it, I'll die in 1-3 years, maybe much longer if I get lucky. The thing is, I know I don't have
ALS
but I do fear that I will get it very soon, how I cope is that I understand I will enjoy my life equally as much as I do right now even, if I get the illness.
My fear is
ALS
and so if I get it, I'll die in 1-3 years, maybe much longer if I get lucky. The thing is, I know I don't have
ALS
but I do fear that I will get it very soon, how I cope is that I understand I will enjoy my life equally as much as I do right now even, if I get the illness.
HelloPanda23
in
Anxiety Support
6 years ago
Question about leg pain.
My leg pain started after I continuously focused on my leg due to fears of
ALS
. As a result, now I get leg pains sometimes when I’m walking. When I walk for a bit, the pain seems to subside and go away completely.
My leg pain started after I continuously focused on my leg due to fears of
ALS
. As a result, now I get leg pains sometimes when I’m walking. When I walk for a bit, the pain seems to subside and go away completely.
HelloPanda23
in
Anxiety Support
6 years ago
Question about essential oils, and Epsom salt.
My question is, if I go through with all of these, will I get over this anxiety over
ALS
?
My question is, if I go through with all of these, will I get over this anxiety over
ALS
?
HelloPanda23
in
Anxiety Support
6 years ago
Help please.
Starting a month ago, my fear got focused to
ALS
because I thought I slurred my speech and while searching for symptoms, that's what I found. I never really worried much about it being
ALS
until I looked at the other symptoms.
Starting a month ago, my fear got focused to
ALS
because I thought I slurred my speech and while searching for symptoms, that's what I found. I never really worried much about it being
ALS
until I looked at the other symptoms.
HelloPanda23
in
Anxiety Support
6 years ago
Leg pain.
This issue started after I read about
ALS
and how some people who got
ALS
were having leg pains before being diagnosed.
This issue started after I read about
ALS
and how some people who got
ALS
were having leg pains before being diagnosed.
HelloPanda23
in
Anxiety Support
6 years ago
Health anxiety
I also have been getting muscle spasms or twitches in my calf muscles and look that up I convince myself I have
als
symptoms.
I also have been getting muscle spasms or twitches in my calf muscles and look that up I convince myself I have
als
symptoms.
Ericamo1
in
Anxiety Support
6 years ago
Ocaliva is working for me 🙌🏻🙌🏻
Diagnosed around 5 years ago with PBC and was on 1500mg urso and nothing doing. After biopsy February I was told now stage 1 child’s cirrotic 😭 but NO symptoms like ZERO. I’m very lucky to now be on Ocaliva - Obeticholic Acid 5mg daily I started treatment on Monday 9th April and had my bloods done
Diagnosed around 5 years ago with PBC and was on 1500mg urso and nothing doing. After biopsy February I was told now stage 1 child’s cirrotic 😭 but NO symptoms like ZERO. I’m very lucky to now be on Ocaliva - Obeticholic Acid 5mg daily I started treatment on Monday 9th April and had my bloods done
Alison2306
in
PBC Foundation
6 years ago
my sgpt is 100 last days now my sgpt is 38 but my Bilirubim total is 1.8 what happen ed with me
my sgpt is 100 last days now my sgpt is 38 but my Bilirubim total is 1.8 what happen ed with me
my sgpt is 100 last days now my sgpt is 38 but my Bilirubim total is 1.8 what happen ed with me
basitali
in
British Liver Trust
6 years ago
Recalling a Meltdown
With my epic Alzheimer’s Run The Year challenge J and G were my first sponsors, because they recognised a great cause, and despite having their own issues dealing with
ALS
, they wanted to be a support to me.
With my epic Alzheimer’s Run The Year challenge J and G were my first sponsors, because they recognised a great cause, and despite having their own issues dealing with
ALS
, they wanted to be a support to me.
Hidden
in
Couch to 5K
6 years ago
Chemo 18 dripping now. Good news on response.
Chemo 18 is 12 docetaxol and this is 6th jevtana. Stay the course, put next one off till 4 weeks for the Cornwall trip. The comparative bone scan showed marked decrease metastatic disease in right hip. Also on the ct many other spots were reduced. Mildly anemic 3.17 on red blood cells, whites are at
Chemo 18 is 12 docetaxol and this is 6th jevtana. Stay the course, put next one off till 4 weeks for the Cornwall trip. The comparative bone scan showed marked decrease metastatic disease in right hip. Also on the ct many other spots were reduced. Mildly anemic 3.17 on red blood cells, whites are at
Dan59
in
Advanced Prostate Cancer
6 years ago
New member here
Most of the time I can accept it...and be grateful that it wasn't MS or
ALS
or Altzheimers, or a stroke. If I had to have one, I'd rather it be PD..... sometimes though, I get discouraged, and even angry at times.... but other times, like right now, I'm dealing with it pretty well.
Most of the time I can accept it...and be grateful that it wasn't MS or
ALS
or Altzheimers, or a stroke. If I had to have one, I'd rather it be PD..... sometimes though, I get discouraged, and even angry at times.... but other times, like right now, I'm dealing with it pretty well.
marychirtle
in
Cure Parkinson's
6 years ago
I need a reminder...
Hi PBC family, I Hope everyone is doing as well as can be expected. And for those of you experiencing the worst of this stupid disease, many prayers go out for you everyday ❤. I know several of you have experienced upper right quadrant pain or URQP. Some have described it as a dull ache that may radiate
Hi PBC family, I Hope everyone is doing as well as can be expected. And for those of you experiencing the worst of this stupid disease, many prayers go out for you everyday ❤. I know several of you have experienced upper right quadrant pain or URQP. Some have described it as a dull ache that may radiate
Ktltel
in
PBC Foundation
6 years ago
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