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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Update- Diagnosis turned out to Guillain Barre Syndrome
The neurologist examined him and said he thought it was Guillain Barre Syndrome but had to rule out MS and
ALS
. So, after a CT scan, a spinal tap, MRI and a nerve conduction test, he declared it to definitely be Guillain Barre.
The neurologist examined him and said he thought it was Guillain Barre Syndrome but had to rule out MS and
ALS
. So, after a CT scan, a spinal tap, MRI and a nerve conduction test, he declared it to definitely be Guillain Barre.
leesielocket
in
Pernicious Anaemia Society
7 years ago
Twitches from anxiety
when I saw "TUMOR,
ALS
" as possibilities. I then saw that it could be caused from severe anxiety and that tremors throughout the entire body could be possible. I'd like to think that because I always clamp my mouth shut and grind my teeth all the time, that maybe my muscles are just exhausted?
when I saw "TUMOR,
ALS
" as possibilities. I then saw that it could be caused from severe anxiety and that tremors throughout the entire body could be possible. I'd like to think that because I always clamp my mouth shut and grind my teeth all the time, that maybe my muscles are just exhausted?
AshCash
in
Anxiety Support
7 years ago
Problems with the Medical Profession
Clinical trials of ultra-high-dose methylcobalamin in
ALS
. Izumi Y, Kaji R. Brain Nerve 2007;59(10):1141-47 10. European Medicines Agency (EMEA). Europees openbaar beoordelingsrapport (EPAR) Cyanokit,Londen 2007 11.
Clinical trials of ultra-high-dose methylcobalamin in
ALS
. Izumi Y, Kaji R. Brain Nerve 2007;59(10):1141-47 10. European Medicines Agency (EMEA). Europees openbaar beoordelingsrapport (EPAR) Cyanokit,Londen 2007 11.
Johnathan
in
Pernicious Anaemia Society
7 years ago
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Continued high cortisol and testosterone!
I have read your posts and after a year of high liver alk phos was finally switched to Nature Thyroid as I think the Synthroid was storing up in my liver. But my cortisol and testosterone continue to be high on my saliva tests. I just added progesterone and estradiol recently and feel better but the
I have read your posts and after a year of high liver alk phos was finally switched to Nature Thyroid as I think the Synthroid was storing up in my liver. But my cortisol and testosterone continue to be high on my saliva tests. I just added progesterone and estradiol recently and feel better but the
dlbynum
in
Thyroid UK
7 years ago
Changes in my Pic
Hello I was diagnosed with pbc 4 years ago. Been on urso since & felt fine but the last 6 months my itching started I feel tired all the time. I was thinking maybe my age . I'm 50 this year😖. On Tuesday I had my yearly check up with my consultant. My function liver tests have shown a slow but steady
Hello I was diagnosed with pbc 4 years ago. Been on urso since & felt fine but the last 6 months my itching started I feel tired all the time. I was thinking maybe my age . I'm 50 this year😖. On Tuesday I had my yearly check up with my consultant. My function liver tests have shown a slow but steady
Carolebroadbent
in
PBC Foundation
7 years ago
Husband and wife both diagnosed with rare neurological diseases?
But to make the situation even more painful and confusing, her husband has been sick for the past year as well with vague but growing neurological symptoms, and was just this week diagnosed with
ALS
(Lou Gehrig's disease).
But to make the situation even more painful and confusing, her husband has been sick for the past year as well with vague but growing neurological symptoms, and was just this week diagnosed with
ALS
(Lou Gehrig's disease).
TKNO
in
PSP Association
7 years ago
My SGPT is 58 & blood Sugar fasting & PP is 151 & 322 & Triglyceride is 235.
Sir, I am diabetic since 2010. However my latest report shows that my SGPT is 58 & blood Sugar fasting & PP is 151 & 322 & Triglyceride is 235.This is the first time SGPT is at higher side. What should I do to reduce it.
Sir, I am diabetic since 2010. However my latest report shows that my SGPT is 58 & blood Sugar fasting & PP is 151 & 322 & Triglyceride is 235.This is the first time SGPT is at higher side. What should I do to reduce it.
MANISHNENUS
in
Diabetes India
7 years ago
About to change from Levothyroxine to either Naturethroid or Westhroid Pure , any advice please.
Hi , have been taking Levo for 10 years with poor effect , in past 4years
als
o diagnosed with Coeliac Disease , B 12 deficiency and Osteoporosis . I have been on AIP diet for 2 years with much improvement but still many problems due to vit/mineral deficiencies , poor thyroid and adrenal function .
Hi , have been taking Levo for 10 years with poor effect , in past 4years
als
o diagnosed with Coeliac Disease , B 12 deficiency and Osteoporosis . I have been on AIP diet for 2 years with much improvement but still many problems due to vit/mineral deficiencies , poor thyroid and adrenal function .
Hidden
in
Thyroid UK
7 years ago
Unstable alkaline phosphatase
Anyone experiencing big swings in alkaline phosphatase, steady rise,then drop for 3 months 50%, the back up. Medonc says ignore alk phos. She only focuses on imaging. Psa doubling time the same.
Anyone experiencing big swings in alkaline phosphatase, steady rise,then drop for 3 months 50%, the back up. Medonc says ignore alk phos. She only focuses on imaging. Psa doubling time the same.
Drcrunch
in
Advanced Prostate Cancer
7 years ago
Huntington's Disease, the Pope.
http://edition.cnn.com/2017/05/25/health/
als
-ice-bucket-challenge-financial-burden-trnd/ So it isn't guaranteed. Regardless, who has celebrity friends?
http://edition.cnn.com/2017/05/25/health/
als
-ice-bucket-challenge-financial-burden-trnd/ So it isn't guaranteed. Regardless, who has celebrity friends?
monkeybus
in
AMN EASIER
7 years ago
Summoned due to test results
I've had a phone call to go to the Doc to discuss my blood results. Apart from the high B12 (jab 2 weeks before) and the high Folate (was high on previous test too), I can't see anything out of range, unless I'm missing something obvious, unless they are worried about the Folate. Normal Doc is off sick
I've had a phone call to go to the Doc to discuss my blood results. Apart from the high B12 (jab 2 weeks before) and the high Folate (was high on previous test too), I can't see anything out of range, unless I'm missing something obvious, unless they are worried about the Folate. Normal Doc is off sick
topazrat
in
Pernicious Anaemia Society
7 years ago
Frustrated and Helpless
I have two grandparents who had MS, and one who had
ALS
. I will be getting an MRI in a few weeks to look at my skull for any issues, like lesions.
I have two grandparents who had MS, and one who had
ALS
. I will be getting an MRI in a few weeks to look at my skull for any issues, like lesions.
Fireflies_Are_Magic
in
LUPUS UK
7 years ago
I am starting to lose hope!
Hi all, my latest update and I am more scared and confused than ever. I if you remember finally ditched the gastro guy, got a fab hepatologist who did a fibro, dexa scan and just had the MRCP last week. She started from scratch. I had seen her twice she was moving fast to get me either a diagnosis for
Hi all, my latest update and I am more scared and confused than ever. I if you remember finally ditched the gastro guy, got a fab hepatologist who did a fibro, dexa scan and just had the MRCP last week. She started from scratch. I had seen her twice she was moving fast to get me either a diagnosis for
Jo_Br
in
PBC Foundation
7 years ago
There is hope for us all!
It is real - and a breakthrough for
ALS
and Alzheimer's and Parkinson's patients. Therefore, all neurodegenerative diseases including PSP. This research concludes that the organism responsible is cynobacteria (blue green algae).
It is real - and a breakthrough for
ALS
and Alzheimer's and Parkinson's patients. Therefore, all neurodegenerative diseases including PSP. This research concludes that the organism responsible is cynobacteria (blue green algae).
Finoni
in
PSP Association
7 years ago
21 early onset ALS symptoms ?
I'm just kind of scared does this sound like
ALS
to anyone? A month a go randomly my arms and legs went numb and my hands and I was having involuntary arm and shoulder movements The numbness lasted for a week.
I'm just kind of scared does this sound like
ALS
to anyone? A month a go randomly my arms and legs went numb and my hands and I was having involuntary arm and shoulder movements The numbness lasted for a week.
silver22w
in
Multiple System Atrophy Trust
7 years ago
Help! TSH 'normal' on new bloods
Hi all I have no idea what is the best course of action to take. I was raised onto 100mg of levo 7 weeks ago when my TSH had crept up to 5.6. I didn't get a copy of my bloods. It is worth noting that I was put onto a different brand of tablets for the 100s too. Anyway, I've felt totally rubbish since
Hi all I have no idea what is the best course of action to take. I was raised onto 100mg of levo 7 weeks ago when my TSH had crept up to 5.6. I didn't get a copy of my bloods. It is worth noting that I was put onto a different brand of tablets for the 100s too. Anyway, I've felt totally rubbish since
abbymeg
in
Thyroid UK
7 years ago
New to the group
Hey every1 i am arsh from india 26 yo male. Few days ago i had rapid heart beat and elevated sgot sgpt due to alchohol. My heart ecg and echo were normal . After two weeks of good diet and no alchohol my liver also bcame normal. I can check heart beat on phone i keep doing that and by that if its little
Hey every1 i am arsh from india 26 yo male. Few days ago i had rapid heart beat and elevated sgot sgpt due to alchohol. My heart ecg and echo were normal . After two weeks of good diet and no alchohol my liver also bcame normal. I can check heart beat on phone i keep doing that and by that if its little
Arsh1991
in
Anxiety Support
7 years ago
Hello
I obesses over thinking I have or will soon have
ALS
. I've struggled with this for over two years now. It has for the most part ruined my peace. Glad to be a part of this and look forward to hearing from others and hopefully being helpful in some way.
I obesses over thinking I have or will soon have
ALS
. I've struggled with this for over two years now. It has for the most part ruined my peace. Glad to be a part of this and look forward to hearing from others and hopefully being helpful in some way.
Humbolt
in
Anxiety and Depression Support
7 years ago
FTD Disorders Registry is now live
database to collect information from those affected by all types of Frontotemporal Degeneration: behavioral variant FTD (bvFTD), any one of the primary progressive aphasias (PPA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or FTD with motor neuron disease (also called FTD-
ALS
database to collect information from those affected by all types of Frontotemporal Degeneration: behavioral variant FTD (bvFTD), any one of the primary progressive aphasias (PPA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or FTD with motor neuron disease (also called FTD-
ALS
rriddle
in
PSP Association
7 years ago
Introduction
That came back negative so he did a nerve conduction study and said he detected active denervation in my spine and he was concerned that I had
ALS
and he shipped me to Mayo. The docs at Mayo automatically suspected FND but they ordered another nerve conduction study.
That came back negative so he did a nerve conduction study and said he detected active denervation in my spine and he was concerned that I had
ALS
and he shipped me to Mayo. The docs at Mayo automatically suspected FND but they ordered another nerve conduction study.
BenjaminT
in
Functional Neurological Disorder - FND Hope
7 years ago
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