Since 2008 I have been dealing with an unknown disease(s) or disorder(s)--which may have been dormant in my system until now, but we have no idea. Doctor after doctor has given up on me, some even telling me I'm imagining it, despite real symptoms and problems. My guess is that whatever it is, the symptoms belong to multiple problems, but I don't know. I am 28 years old, caucasian, was born in Colombia but have citizenship in the United States and live on the East Coast (USA). I am currently a college student and am hoping to graduate soon, but am worried that my health problems will cause issues for that.
Here's the more pressing issues:
> an electrical shock feeling that goes from my neck to my fingertips, which has become constantly painful; and causes jerking sensation in hands.
> neck pain (esp near base of head), back pain (esp between shoulder-blades and and lower back), tail bone pain that radiates down legs (diagnosed as sciatica)
> re-occurrent oral thrush (one case sent me to ER with severe sores)
> joint pain and stiffness
> stomach, intestinal issues (alternating between constipation and diarrhea)
> headaches, sometimes reaching migraine status (and my migraines give me sensory problems, where I can feel textures just by looking at them)
> trouble lifting my hands or gripping, spasms in hands (and more rarely in feet); these tend to make me drop things
> vision change that the eye doctor couldn't see (I try to look at something, but my vision keeps shifting right while I do).
> more irritability and much more fatigue than I used to have 8yrs ago
> Paresthesia in 2010 that put me in the ER for about 6 hours, but they couldn't figure out what had caused it
> Trouble remembering words when I'm speaking (my professors have noticed it too), and problems staying on one thread of thought.
> Glands (sweat, oral) don't seem to work correctly and vaginal seems to get blocked a lot more in the last year.
> Ulcers more often now in vaginal area and mouth area
> Gallstones 1 year ago, still at risk for more.
> Irregular heartbeat/racing heart-rate is coming back (had an ablation to fix this in 2003).
> tingling in hands, fingers, scalp and feet; also have tremors in hands that I had since age 3. Also have tingling (likely from pinched nerve) between shoulder blades
> Unusually dry skin, and new diagnosis of aquagenic urticaria (blisters from water)
> nearly constant issue of motion-sickness, vertigo; tend to run into things a lot
> have been falling down the stairs a lot more or having a leg give way underneath me for no apparent reason.
> Ringing in ears
> Often extremely exhausted during the day and high levels of ADHD type symptoms (mind racing) at night.
> went from 136 Ibs in 2014 to 186 Ibs in 2017, and can't seem to loose weight, even with exercise.
> have pain with my tailbone, likely from a fall off a horse in november 2016.
> have an intolerance for heat (get rashes and welts), but am relatively okay with the cold (just makes me sleepy).
Am currently seeing the spinal doctor, to rule out any injury or disease to my spine. So far, it doesn't appear to be spine damage of any kind. He believes that it's something neuro-caused but said he would keep trying for as long as he could. I have plantar fibromatosis in both feet; when I was younger, my left foot was the problem--now it's 'dormant' and my right foot is having very painful issues. I had an ablation (surgery) in 2002 for an irregular/fast heartbeat issue, and had a chip of wood in my eye taken out around the same time (no lasting damage). Have had three serious falls off horses, but no damage to spine or head as far as anyone can see; did get whiplash from last fall but didn't seem to permanently damage my head or neck. Have trouble swallowing (always have), mild asthma, cracking knees and a chronic dry cough. Have history of gallstones as well, but the back pain has been there longer than the gallstones. Also have had swelling and pain in the joints for many years. From 2013-2015 I had a lot of bladder and kidney infections, but they stopped happening for unknown reasons. I had a tick bite that worried my doc and me, which caused lyme's-type symptoms--but without the weird target look; it's still visible on my hip as a purplish mark.
I had a lopsided skull [for unknown reasons] when I was born--has mostly filled out but still slightly disproportional in the face. Had failure to thrive syndrome as a baby, as well as some issues sitting upright, standing, and walking, but was okay walking until a few years ago, when it started up again. I still lean to left when sitting up, and have uneven hips. I am getting my wisdom teeth out in about 2wks as well. I have two grandparents who had MS, and one who had ALS. I will be getting an MRI in a few weeks to look at my skull for any issues, like lesions.
I am currently on Gabupenrtin 300mg, Carbamazepine (for the facial nerve disorder), nortriptyline (sleeping pill), and OTC thyroid meds (which do help). My diet is pretty normal, as is my daily routine. I'm sorry for the long post, but I'm desperate for answers. I probably missed some symptoms, but this is my best description for now.