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Could these images be Livedo? (Sneddons, Antiphospholipid Syndrome (APS) & Livedo help!)
Hi there. Basically my question is, do the images below look like something that could be related to Sneddons, Antiphospholipid Syndrome or Livedo? Sorry to ask but I'm very confused with my symptoms! Pictures: *Hopefully link now working* https://plus.google.com/photos/110776790922857768864
Hi there. Basically my question is, do the images below look like something that could be related to Sneddons, Antiphospholipid Syndrome or Livedo? Sorry to ask but I'm very confused with my symptoms! Pictures: *Hopefully link now working* https://plus.google.com/photos/110776790922857768864
medsoph
in
LUPUS UK
12 years ago
What now I ask? - politics and medicine
I am dying in disbelief at the lack of patient care due in part by the awful politics that exists in this countries health system. (NHS and Private alike) I was admitted to my local hospital with acute jaundice and diagnosed with Autoimmune hepatitis 4 years ago, and recently half heartily diagnosed
I am dying in disbelief at the lack of patient care due in part by the awful politics that exists in this countries health system. (NHS and Private alike) I was admitted to my local hospital with acute jaundice and diagnosed with Autoimmune hepatitis 4 years ago, and recently half heartily diagnosed
Jarrod
in
LUPUS UK
12 years ago
ANA Results
I recently had blood tests for Lupus, specifically Antinuclear Antibodies, which came out negative, but I still have symptoms which resemble Lupus. Is it possible to have negative ANA blood tests, yet still have Lupus? Many thanks.
I recently had blood tests for Lupus, specifically Antinuclear Antibodies, which came out negative, but I still have symptoms which resemble Lupus. Is it possible to have negative ANA blood tests, yet still have Lupus? Many thanks.
lupienproud
in
LUPUS UK
12 years ago
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Feeling Blue .... anyone else?
Has anyone else experienced such frustration between different clinicians? I have been under rheumatology, dermatology and my GP for 10 years now with vasculitis and sub-cutaneous lupus. My "flare ups" have been getting more and more frequent and my symptoms much worse, hydroxycloroquine no longer works
Has anyone else experienced such frustration between different clinicians? I have been under rheumatology, dermatology and my GP for 10 years now with vasculitis and sub-cutaneous lupus. My "flare ups" have been getting more and more frequent and my symptoms much worse, hydroxycloroquine no longer works
Rachy24
in
LUPUS UK
12 years ago
Positive ANA Not referred
Hi, I have been suffering with a myriad of symptoms, the most consistent is joint pain in elbow, wrist and fingers. My hand will claw and lock. My GP recently ran some bloods and I had a positive ANA and anemia show up. Other symptoms are shortness of breath, fatigue, face sensitivity to heat which lead
Hi, I have been suffering with a myriad of symptoms, the most consistent is joint pain in elbow, wrist and fingers. My hand will claw and lock. My GP recently ran some bloods and I had a positive ANA and anemia show up. Other symptoms are shortness of breath, fatigue, face sensitivity to heat which lead
Dawnage
in
LUPUS UK
12 years ago
So annoyed!!
Recieved a copy of a letter sent to my gp today from my old rheumie. Apparently I missed my appointment with him (which I cancelled as I am under a new rheumie now). Anyhow the letter said my recent blood tests results (taken in August!) show that I am ANA positive 1:80 (nucleolar) but everything else
Recieved a copy of a letter sent to my gp today from my old rheumie. Apparently I missed my appointment with him (which I cancelled as I am under a new rheumie now). Anyhow the letter said my recent blood tests results (taken in August!) show that I am ANA positive 1:80 (nucleolar) but everything else
megs_tom
in
LUPUS UK
12 years ago
Could this be Hashis?
From time to time my throat and neck glands are mega sore ...I don't have cold or flu symptoms but I do feel very cold and can't seem to generate any heat. Are there any Hashis people here who have similar? My muscles really ache as well. Last year I asked the GP for an antibody test and afterwards was
From time to time my throat and neck glands are mega sore ...I don't have cold or flu symptoms but I do feel very cold and can't seem to generate any heat. Are there any Hashis people here who have similar? My muscles really ache as well. Last year I asked the GP for an antibody test and afterwards was
dogtired
in
Thyroid UK
12 years ago
Good News ? Bad News ?
Hi everyone, I went for Rheumi appointment yesterday, and today I don't feel any wiser even though he said he would like to end my confusion. In June 2011, with first Rheumi, I began treatment for what were 'Lupus Like' symptoms and ANA 1:320, no official diagnosis. With traveling since then (I follow
Hi everyone, I went for Rheumi appointment yesterday, and today I don't feel any wiser even though he said he would like to end my confusion. In June 2011, with first Rheumi, I began treatment for what were 'Lupus Like' symptoms and ANA 1:320, no official diagnosis. With traveling since then (I follow
Chapter
in
LUPUS UK
12 years ago
Confusion with blood results...
Just got a letter from my consultant with blood results. ANA positive 1:400.Is that high? Also, dsDNA <20 kU/L. What does that mean? Is that positive dna results? I'm so confused. My local rheumatologist told me I had lupus. The rheumatologist in Birmingham said fibromyalgia. I've just read his letter
Just got a letter from my consultant with blood results. ANA positive 1:400.Is that high? Also, dsDNA <20 kU/L. What does that mean? Is that positive dna results? I'm so confused. My local rheumatologist told me I had lupus. The rheumatologist in Birmingham said fibromyalgia. I've just read his letter
purple-lou
in
LUPUS UK
12 years ago
It had to be the 12 days of Turkey
On the first day of Christmas my true love said to me, I'm glad we bough a turkey and a proper Christmas tree. On the second day of Christmas much laughter could be heard As we tucked in to our turkey-a most delicious bird On the thid day of Christmas we'd friends in from next door, The turkey
On the first day of Christmas my true love said to me, I'm glad we bough a turkey and a proper Christmas tree. On the second day of Christmas much laughter could be heard As we tucked in to our turkey-a most delicious bird On the thid day of Christmas we'd friends in from next door, The turkey
KingoftheCocktails
in
Lung Conditions Community Forum
12 years ago
So confused
I've just come out of an appointment with a lupus specialist. I'm more confused than before. He said that even though I have a diagnosis for lupus, he believes I might have fibromyalgia. He said that my steroid injections wouldn't work with fibromyalgia, after I had told him that I'm significantly better
I've just come out of an appointment with a lupus specialist. I'm more confused than before. He said that even though I have a diagnosis for lupus, he believes I might have fibromyalgia. He said that my steroid injections wouldn't work with fibromyalgia, after I had told him that I'm significantly better
purple-lou
in
LUPUS UK
12 years ago
AMA and ANA
Is anyone else both AMA and ANA positive?
Is anyone else both AMA and ANA positive?
Hidden
in
PBC Foundation
12 years ago
Confused after first Haematology Consultant Appointment, please Help
Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in. So far I have had 2 positive
Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in. So far I have had 2 positive
dragtalav
in
Hughes Syndrome APS Forum
12 years ago
You guys could diagnose me but the consultant won't!
Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160) he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population
Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160) he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population
Angelcake
in
LUPUS UK
12 years ago
I wonder why Lupus takes a while to show up!? if ever ? views please !?
To recap .... 5 positive ANA s symptoms and red faced over cheeks and nose, but one blood test has come back negative ! My question is ..... how long until diagnosis did Lupus show itself in a blood test ? I know it may never but am curious ! x I didnt ask gp to refer me to st thomas s , i dont know
To recap .... 5 positive ANA s symptoms and red faced over cheeks and nose, but one blood test has come back negative ! My question is ..... how long until diagnosis did Lupus show itself in a blood test ? I know it may never but am curious ! x I didnt ask gp to refer me to st thomas s , i dont know
larissa
in
LUPUS UK
12 years ago
ANA positive. ENA positive showing PCNA, dsDNA, SM, Scl 70, Jo 1 + couple of others... Lupus? I also have IIH and psuedopappiladaema
browneyes2012
in
LUPUS UK
12 years ago
Advice please - I dont understand diagnosis or lack of ....
Hi everyone I was diagnosed with Graves disease 2 1/2years ago and around the same time started with joint pain. After a long battle I was finally referred to a rhuematologist and was first told the joint pain was caused because of the graves disease. I had a thyroidectomy last year and the thyroid
Hi everyone I was diagnosed with Graves disease 2 1/2years ago and around the same time started with joint pain. After a long battle I was finally referred to a rhuematologist and was first told the joint pain was caused because of the graves disease. I had a thyroidectomy last year and the thyroid
LULU85
in
LUPUS UK
12 years ago
rhuemy app !!!
Well just got back from app . I showed him photos of my red face and across my nose .,had my 4th positive ANA and symptoms. He said he can diagnose Connective Tissue Disease but one difinitative bloods for lupus has always been negative and he is waiting for the results of my recent one . Dont think
Well just got back from app . I showed him photos of my red face and across my nose .,had my 4th positive ANA and symptoms. He said he can diagnose Connective Tissue Disease but one difinitative bloods for lupus has always been negative and he is waiting for the results of my recent one . Dont think
larissa
in
LUPUS UK
12 years ago
st thomas'
I have managed to get my app moved to 3 wks time with my Rheumy after loads of symptoms, fibro, and 3 positive ANA s' I am hopefully gonna get some answers as i'm so fed up being in limbo! Either way i have decided that i will ask the GP if he can refer me , to get a diagnosis or to look at my meds
I have managed to get my app moved to 3 wks time with my Rheumy after loads of symptoms, fibro, and 3 positive ANA s' I am hopefully gonna get some answers as i'm so fed up being in limbo! Either way i have decided that i will ask the GP if he can refer me , to get a diagnosis or to look at my meds
larissa
in
LUPUS UK
12 years ago
how many days does it take to get Ana blood test result back from doctors?
hi if you had a positive Ana blood test .how many days did it take to receive results by post from doctors? if you rang doctors to ask about results how many days did you leave it? i have spent 7yrs having all my symptoms dismissed by GPS as just anxiety.so when i come across lupus on the Internet
hi if you had a positive Ana blood test .how many days did it take to receive results by post from doctors? if you rang doctors to ask about results how many days did you leave it? i have spent 7yrs having all my symptoms dismissed by GPS as just anxiety.so when i come across lupus on the Internet
flint1
in
LUPUS UK
12 years ago
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