ANA Results: I recently had blood tests for Lupus... - LUPUS UK

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lupienproud profile image
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I recently had blood tests for Lupus, specifically Antinuclear Antibodies, which came out negative, but I still have symptoms which resemble Lupus.

Is it possible to have negative ANA blood tests, yet still have Lupus?

Many thanks.

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lupienproud profile image
lupienproud
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nicky1234 profile image
nicky1234

hi lupien :)

yes it almost normal for that to happen.

i have about 10+ postives and about 10+ negatives it means nothing

it just a help. the a.n.a will usually go up if inflamation is there.

even when i have had infamation it has at times come back

negative. if you have a good rheumy he will put all the pieces together xx

Rachy24 profile image
Rachy24

Hi lupien

Yes - I have been ANA negative for the last 9 years and have only just become ANA positive! I agree with nicky - you need a good rheumy to fit all the bits together. One of the best pieces of advice I was given was to keep a record/diary of all your symptoms and blood results etc to make a portfolio to take with you to show your rheumy. Take care xx

lupienproud profile image
lupienproud

Dear Nicky and Rachy

It's Lupie 'n Proud! ;)

Thank you for helping me with my question. I suppose I am a bit sad, because it means I can still have it and of the catalogue of diseases that human beings can have, I am not sure I would want this one.

I started making notes of all the weird manifestations of this disease - joint pain, fatigue, skin rashes, constipation despite eating non-stop broccolli and lentils, flare-ups that coincide with my periods - and must have been to see my GP countless times over the past 5 or 6 years with these complaints, telling them both my mother and her brother have type II and I diabetes respectively, and that I might have it. They did blood tests and they all came back negative yet I was increasingly feeling worse. Today I am in bed with a winter virus - headache, fever, chest infection - it's been like this since Friday and am very concerned, particularly on my ability to work in the future. I have to overcome this disease and not let it get the better of me.

You input is much appreciated thank you so much, I have a feeling we are all going to be in touch much more the in the future :/

xx

serenigirl profile image
serenigirl

yes i was diagonised by a skin biopsy and not blood tests the only thing the blood test showed was my esr was very high my husband has type 11 diabetes but i havent but i feel sorry for the way that you feel at the moment im having a nasty flare up and my gp wont help so i wish you all the best try to keep your chin up and try to be positive

lupienproud profile image
lupienproud

Thank you Serenigirl for your kind words and support. I wish GPs were more clued up about "The Great Imitator", aka SLE.

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