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PBC -it's all so confusing
Evening all, so story so far, consultant advises I have pbc, had the scan a raft of blood tests. Just had liver biopsy last week and started on urso 2 x. 300m per day. Finally today got a copy of consultants letter to my doc updating them on diag. It states previously positive AMA, raised IGM, and positive
Evening all, so story so far, consultant advises I have pbc, had the scan a raft of blood tests. Just had liver biopsy last week and started on urso 2 x. 300m per day. Finally today got a copy of consultants letter to my doc updating them on diag. It states previously positive AMA, raised IGM, and positive
jewelsspeak
in
PBC Foundation
11 years ago
Blood test results?
Got copy of letter to my Gp after Rheumie visit 2 weeks ago. Results are ANA positive 1.640 homogenous, IgA 4.37 increased,C4 0.39 increased, CRP<4, LFT (N) GFR 73.5, ESR 17 increased. In English please?
Got copy of letter to my Gp after Rheumie visit 2 weeks ago. Results are ANA positive 1.640 homogenous, IgA 4.37 increased,C4 0.39 increased, CRP<4, LFT (N) GFR 73.5, ESR 17 increased. In English please?
Gymbabe
in
LUPUS UK
11 years ago
A confused Lupie
I ache, sometimes i really ache especially today my shoulders,upper arms and neck. but my question is, if my bloods keep showing low esr and normal ck readings then why do i ache. my doc takes my blood when i complain of hurting all over just to make sure i havent developed anything else and they
I ache, sometimes i really ache especially today my shoulders,upper arms and neck. but my question is, if my bloods keep showing low esr and normal ck readings then why do i ache. my doc takes my blood when i complain of hurting all over just to make sure i havent developed anything else and they
Hidden
in
LUPUS UK
11 years ago
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ANA "normal"
Help! I'm going to see GP in morning, ANA test normal, my symptoms ... Fatigue,hair loss,skin rash in summer,raynauds,joint pain so bad I scream in agony yet I had a fractured elbow years ago and didn't realise as my pain threshold so high!my list goes on , I took list on first visit to my GP and he
Help! I'm going to see GP in morning, ANA test normal, my symptoms ... Fatigue,hair loss,skin rash in summer,raynauds,joint pain so bad I scream in agony yet I had a fractured elbow years ago and didn't realise as my pain threshold so high!my list goes on , I took list on first visit to my GP and he
Lupdaloop
in
LUPUS UK
11 years ago
Hi to everyone I don't think I have posted before but regularly read comments and info on this site. It is very comforting and supportive
to realise that there are people out there that have similar if not exactly the same health issues and that I am not a hypochondriac as suggested by a lady consultant years ago. I was wondering if anyone can as i am now very confused. Years ago I was diagnosed with RA then about 7 years ago I was diagnosed
to realise that there are people out there that have similar if not exactly the same health issues and that I am not a hypochondriac as suggested by a lady consultant years ago. I was wondering if anyone can as i am now very confused. Years ago I was diagnosed with RA then about 7 years ago I was diagnosed
Rhodes62
in
LUPUS UK
11 years ago
has anyone ever had a positive ana test and had an xray done to find they have scolisois
i am 25 years old always had good health until about a year and a 1/2 ago when i started getting severe back pains.... was told it was spams but didnt go away... then i had 2 incidents where i became short of breathe and passed out doing light excerising ( playing iwth my kids in my yard.) at first run
i am 25 years old always had good health until about a year and a 1/2 ago when i started getting severe back pains.... was told it was spams but didnt go away... then i had 2 incidents where i became short of breathe and passed out doing light excerising ( playing iwth my kids in my yard.) at first run
ericamcnew
in
LUPUS UK
11 years ago
Professor Graham Hughes' March blog
Another record! The coldest March for 50 years! It's nearly a year since the UK's drought warning and it hasn't stopped raining since. Let's hope Easter brings a change! Earlier this week, my colleague Professor Munther Khamashta excitedly showed me a report taken from a recent American Academy of
Another record! The coldest March for 50 years! It's nearly a year since the UK's drought warning and it hasn't stopped raining since. Let's hope Easter brings a change! Earlier this week, my colleague Professor Munther Khamashta excitedly showed me a report taken from a recent American Academy of
Hidden
in
Hughes Syndrome APS Forum
11 years ago
ANA Test
Just got off the phone to my GP my blood test were abnormal, and the doctor has accepted my telephone request for the ANA test, form awaiting me at the local hospital! I have an appointment then to see GP on 24th April. I'm hoping this is going to result in a referral to a specialist, not bad considering
Just got off the phone to my GP my blood test were abnormal, and the doctor has accepted my telephone request for the ANA test, form awaiting me at the local hospital! I have an appointment then to see GP on 24th April. I'm hoping this is going to result in a referral to a specialist, not bad considering
Lupdaloop
in
LUPUS UK
11 years ago
Blood tests
Anyone have an idea how long I'm likely to wait for my results, I understand that some tests take time to "culture" or something like that, but I just asked the doctor to add on a ANA test as I've read it's result is a good indicator of Lupus,I've not heard back from him yet with an answer. Fingers crossed
Anyone have an idea how long I'm likely to wait for my results, I understand that some tests take time to "culture" or something like that, but I just asked the doctor to add on a ANA test as I've read it's result is a good indicator of Lupus,I've not heard back from him yet with an answer. Fingers crossed
Lupdaloop
in
LUPUS UK
11 years ago
lupus tests
I have had so many over the years some neg some positive this time ena positive ana negative and anti Ro positive Anyone know what this means
I have had so many over the years some neg some positive this time ena positive ana negative and anti Ro positive Anyone know what this means
katepscot
in
LUPUS UK
11 years ago
Blood Test Update
Well had load more bloods take last week and consultants meeting etc. Yesterday I got back the lastest. Based upon a positive ANA test I had to have several other tests. Doctor rung me up yesterday to inform me that my ESR is very high at 56 when in range is below 10. Based on this I have further
Well had load more bloods take last week and consultants meeting etc. Yesterday I got back the lastest. Based upon a positive ANA test I had to have several other tests. Doctor rung me up yesterday to inform me that my ESR is very high at 56 when in range is below 10. Based on this I have further
Bigplanet
in
British Liver Trust
11 years ago
Tiny red dots on skin
I've just come back from beach holiday and while I was there staying in the shade on our deck, while hubby was sunning himself, I've noticed I now have some tiny red dots on my skin. They are not raised, don't itch and look like pinpricks. They are not in a particular pattern, and are spread out on
I've just come back from beach holiday and while I was there staying in the shade on our deck, while hubby was sunning himself, I've noticed I now have some tiny red dots on my skin. They are not raised, don't itch and look like pinpricks. They are not in a particular pattern, and are spread out on
Purpletop
in
LUPUS UK
11 years ago
2nd opinion from different rheumy, translation of letter required plzzzz
hi all i took the advise from other lupys on here and asked to see a different rheumy id done my research and wanted a certain rheumy so i waited 3 months 2 see him the appointment was a dissapointment and now im really confused with this outcome i have antinuclear antibodies being made by my immune
hi all i took the advise from other lupys on here and asked to see a different rheumy id done my research and wanted a certain rheumy so i waited 3 months 2 see him the appointment was a dissapointment and now im really confused with this outcome i have antinuclear antibodies being made by my immune
kittykat68
in
LUPUS UK
11 years ago
First blog, recently diagnosed with sle, Hughes and pots syndrome this year.
Hi there, just thought I'd introduce myself this seems like a good forum to be part of! I've had an awful start to the year and on 15th Feb I was diagnosed with SLE with Antiphospholipid Syndrome after developing a DVT in each calf.... With no risk factors since I'm only 19! The diagnosis came about
Hi there, just thought I'd introduce myself this seems like a good forum to be part of! I've had an awful start to the year and on 15th Feb I was diagnosed with SLE with Antiphospholipid Syndrome after developing a DVT in each calf.... With no risk factors since I'm only 19! The diagnosis came about
Scoofiecoo
in
LUPUS UK
11 years ago
Has anyonelse had ana positive, dna positive, then equivocal and now negative????????
Is it me or does this really happen? Been rheumy today to see the nurse and been told that my bloods are negative yet been positive before, Im so confussed my crp is normal, esr normal but yet in in sooooo much pain with my joints????? Why does this happen? Anybody know???? Im under my local hospital
Is it me or does this really happen? Been rheumy today to see the nurse and been told that my bloods are negative yet been positive before, Im so confussed my crp is normal, esr normal but yet in in sooooo much pain with my joints????? Why does this happen? Anybody know???? Im under my local hospital
beckybooboo
in
LUPUS UK
11 years ago
Side effects
Hi, new to the forums, so hello everyone. I am taking Seretide 250 and have been since 2010 has anyone else had problems with joint pain or arthralgia? I had a nasty bout of flu in September 2010 and my gp changed me over to seretide as becotide was not as effective. In December of 2010 I began to
Hi, new to the forums, so hello everyone. I am taking Seretide 250 and have been since 2010 has anyone else had problems with joint pain or arthralgia? I had a nasty bout of flu in September 2010 and my gp changed me over to seretide as becotide was not as effective. In December of 2010 I began to
Hidden
in
Asthma Community Forum
11 years ago
Hi there. I am looking for some advice. I was diagnosed with thyroid problem last year and was put on thyroxine also was told that I had a
Autoimmune disorder but nothing specific.My rheumatologist done bloods last July and as I am due to see my pain specialist tomorrow I dug out previous letters and notice that she states 'weakly positive rheumatoid factor and weakly positive ANA antibodies with positive lupus screen' Does this mean that
Autoimmune disorder but nothing specific.My rheumatologist done bloods last July and as I am due to see my pain specialist tomorrow I dug out previous letters and notice that she states 'weakly positive rheumatoid factor and weakly positive ANA antibodies with positive lupus screen' Does this mean that
dawsden
in
LUPUS UK
11 years ago
What is a 'low grade connective tissue disorder'?
Sorry, me again ;) Prof K said I have borderline bloods like a low positive ANA and symptoms that show I've got a low grade/mild connective tissue disorder, rather than full blown lupus. What does he mean by that? Does this mean I could develop lupus or is it something else? Susie x
Sorry, me again ;) Prof K said I have borderline bloods like a low positive ANA and symptoms that show I've got a low grade/mild connective tissue disorder, rather than full blown lupus. What does he mean by that? Does this mean I could develop lupus or is it something else? Susie x
Paleosooze
in
Hughes Syndrome APS Forum
11 years ago
Does everyone struggle with trying to get diagnosed?
I am struggling to get a confirmed diagnosis for SLE. My consultant agreed with my dermatologist on the evidence provided ie: 2 positive ANA blood results and nearly all the 11 primary symptoms of SLE. He then wanted me to see his dermatologist who looked at my butterfly rash on my face and said straight
I am struggling to get a confirmed diagnosis for SLE. My consultant agreed with my dermatologist on the evidence provided ie: 2 positive ANA blood results and nearly all the 11 primary symptoms of SLE. He then wanted me to see his dermatologist who looked at my butterfly rash on my face and said straight
gingerjanine
in
LUPUS UK
11 years ago
Results !?
Hello all ! I recieved a copy of the letter for my gp . All bloods came out normal exept slightly positive ANA ( 7 th positive ) low vitamin d and calcium, and my eye test was ... bone dry. I am going back to st Thomas in march to discuss these results with dr sanna but i am doubtful that i will
Hello all ! I recieved a copy of the letter for my gp . All bloods came out normal exept slightly positive ANA ( 7 th positive ) low vitamin d and calcium, and my eye test was ... bone dry. I am going back to st Thomas in march to discuss these results with dr sanna but i am doubtful that i will
larissa
in
LUPUS UK
11 years ago
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