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Could I have Lupus?
I have had joint pain in my knees since I was 10. Now the pain is in my hips/knees, elbows, and sometimes toes and fingers. I have bad headaches and dizziness. I am constantly getting cold sores in my mouth. I have a positive ANA test of 1:40 and my ESR was 32 mm/hr. My other tests came back negative
I have had joint pain in my knees since I was 10. Now the pain is in my hips/knees, elbows, and sometimes toes and fingers. I have bad headaches and dizziness. I am constantly getting cold sores in my mouth. I have a positive ANA test of 1:40 and my ESR was 32 mm/hr. My other tests came back negative
deerae777
in
LUPUS UK
10 years ago
Now I am cross! Why don't doctors communicate with patients??!
Hi there I haven't posted on here for a while because I am on the dizzy merry go round of the NHS trying to discover what is wrong with me. I am so so sorry this is long and rambling and I thank anyone in advance you has taken the time to read this. It's might be a bit ranty as I am so cross! You
Hi there I haven't posted on here for a while because I am on the dizzy merry go round of the NHS trying to discover what is wrong with me. I am so so sorry this is long and rambling and I thank anyone in advance you has taken the time to read this. It's might be a bit ranty as I am so cross! You
melodypond
in
LUPUS UK
10 years ago
Got more blood test results-more confused than ever.
Hello everyone. I have been working towards, what I thought was a diagnosis of PBC, but not sure now. I got back my latest new bloodwork and not only am I AMA positive at 1:160, I am also ANA positive 1:640. My smooth muscle antibody was negative <20, my Alpha Antitrypsin pheotype is MM (not sure
Hello everyone. I have been working towards, what I thought was a diagnosis of PBC, but not sure now. I got back my latest new bloodwork and not only am I AMA positive at 1:160, I am also ANA positive 1:640. My smooth muscle antibody was negative <20, my Alpha Antitrypsin pheotype is MM (not sure
NotorDJP
in
PBC Foundation
10 years ago
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Iv got to have more blood tests and CT scan , maybe liver biopsy, what does this mean?
I'm told Iv a cholestatic pattern of abnormal liver tests, not typical for NAFLD but my autoantibodies are negative apart from strongly positive ANA. Overall I'm told NAFDL most likely and could gave AMA negative PBC. Please can anyone tell me what all these letters stand for? Havnt a clue what this
I'm told Iv a cholestatic pattern of abnormal liver tests, not typical for NAFLD but my autoantibodies are negative apart from strongly positive ANA. Overall I'm told NAFDL most likely and could gave AMA negative PBC. Please can anyone tell me what all these letters stand for? Havnt a clue what this
Bevlinden
in
British Liver Trust
10 years ago
Does anyone know what Weak Positive ANA Hep2 means, doc says not alot on its own? thanks.
My EGFR seems to be going down as well which doc is monitoring..
My EGFR seems to be going down as well which doc is monitoring..
sunflower1
in
PBC Foundation
10 years ago
Pain with anxiety?
So I have posted a few questions on here in the past few months and received a great deal of help with my current situation (which I greatly appreciate) I wanted to ask this to see if others have these feelings. I have been having neck aches (where top of neck meets the base of head) I also have
So I have posted a few questions on here in the past few months and received a great deal of help with my current situation (which I greatly appreciate) I wanted to ask this to see if others have these feelings. I have been having neck aches (where top of neck meets the base of head) I also have
WorriedWell
in
Anxiety Support
10 years ago
Could this be Ehlers-Danlos Syndrome?
Hi, I've just joined today and this is my story. Well, I've always been very bendy. Not to the point of doing the splits - I've never, EVER managed to do that. But my problems started in 2002 when I injured my hip. From that moment on, it would click and snap whenever I moved. I saw an osteopath who
Hi, I've just joined today and this is my story. Well, I've always been very bendy. Not to the point of doing the splits - I've never, EVER managed to do that. But my problems started in 2002 when I injured my hip. From that moment on, it would click and snap whenever I moved. I saw an osteopath who
Hidden
in
Ehlers-Danlos Support UK
10 years ago
Possible connective tissue disorder - need some help in ordering the right blood test please
My Endo diagnosed me with Hashimoto's 3 weeks ago but she is concerned I have a connective tissue disorder - possibly the mixed type as I have Raynaud's as well as positive Hep2 ANA antibodies (speckled type). I have asked Blue Horizon to give me details about what antibodies they screen for in the
My Endo diagnosed me with Hashimoto's 3 weeks ago but she is concerned I have a connective tissue disorder - possibly the mixed type as I have Raynaud's as well as positive Hep2 ANA antibodies (speckled type). I have asked Blue Horizon to give me details about what antibodies they screen for in the
Hidden
in
Hughes Syndrome APS Forum
10 years ago
Blood tests, symptoms, meds -- from scratch
Ok, I've decided not to leave and thank you to everyone wanting me to stay. Your comments mean a lot, really. Right. This will be a long post so bear with me. Blood tests Nov 2011 TSH - 5.2 (0.2-4.2) FT4 - 16.8 (12-22) Feb 2012 TSH - 2.2 (0.27-4.2) No FT4 as TSH was normal range Jan 2013 Anti-TPO
Ok, I've decided not to leave and thank you to everyone wanting me to stay. Your comments mean a lot, really. Right. This will be a long post so bear with me. Blood tests Nov 2011 TSH - 5.2 (0.2-4.2) FT4 - 16.8 (12-22) Feb 2012 TSH - 2.2 (0.27-4.2) No FT4 as TSH was normal range Jan 2013 Anti-TPO
Hidden
in
Thyroid UK
10 years ago
I have a lot of symphony's relating to PBC, itching, joint pain, abdominal pain, vomiting, dry eyes and mouth, fatty and hardening liver.
I asked my rheumatologist for the ANA test (I also have psoriatic arthritis). The test results are border line, any one know what this means? My sister has PBC.
I asked my rheumatologist for the ANA test (I also have psoriatic arthritis). The test results are border line, any one know what this means? My sister has PBC.
Moggymad44
in
PBC Foundation
10 years ago
Me again! Help with blood test results please
After waiting 6 weeks I finally got a copy of my blood tests which were taken by a specialist. Unfortunately, I was only sent 1 page when clearly there should be more as three areas have a star highlighting them and it says "continued..." at the bottom of the page. Just wondering if anyone could shed
After waiting 6 weeks I finally got a copy of my blood tests which were taken by a specialist. Unfortunately, I was only sent 1 page when clearly there should be more as three areas have a star highlighting them and it says "continued..." at the bottom of the page. Just wondering if anyone could shed
Tweetypie28
in
Thyroid UK
10 years ago
Professor Hughes December 2013 blog
For us, 2013 ended on a bang – strong winds, heavy rain, widespread flooding. Our small schnauzer, Lucy, has not been keen even to put her toes out of the back door! My apologies for missing two months of blogs. I found that in the UK, the blogs were published on a website called ‘Health Unlocked’
For us, 2013 ended on a bang – strong winds, heavy rain, widespread flooding. Our small schnauzer, Lucy, has not been keen even to put her toes out of the back door! My apologies for missing two months of blogs. I found that in the UK, the blogs were published on a website called ‘Health Unlocked’
Hidden
in
Hughes Syndrome APS Forum
10 years ago
Ok.. can you have a high ANA test, just because you have hypothyroidism, and nothing else....?
Hi! guys, Lots going on..uncertainty for me..(if that's a word even). I ve been hypothyroid since I was 41...Im 57 now.. So just post menopause in the last 3 years as well...All this stuff can cause joint aches and pains..pretty sure. On a whim I asked Doctor to check me for autoimmune suff, not
Hi! guys, Lots going on..uncertainty for me..(if that's a word even). I ve been hypothyroid since I was 41...Im 57 now.. So just post menopause in the last 3 years as well...All this stuff can cause joint aches and pains..pretty sure. On a whim I asked Doctor to check me for autoimmune suff, not
dgleds
in
Thyroid UK
10 years ago
new results after 5.5 months on plaquinil...
hi! After having ana test aprox.7 months ago 1:320 fine speckled .homogenous etc...and crp elevated.... I now seem to have negative ANA says 0.4...crp 1.6... Im dumb..is it plaquinil did that, or has disease gone away or in remission? I do have one test out of range so far leukocytes 1+ then says A..
hi! After having ana test aprox.7 months ago 1:320 fine speckled .homogenous etc...and crp elevated.... I now seem to have negative ANA says 0.4...crp 1.6... Im dumb..is it plaquinil did that, or has disease gone away or in remission? I do have one test out of range so far leukocytes 1+ then says A..
dgleds
in
LUPUS UK
11 years ago
Just needing a moan. Had an awful month. Ended up twice in hospital after a heart attack and had to have an angioplasty and a stent put in.
Plus my bloods came back with a positive ANA and I now have another autoimmune disease to add to my Hashimotos and Coeliac in the form of Lupus. If another doctor had told me that my cholesterol was too high and I had to lose weight I would have screamed. Eventually someone thought to test my thyroid
Plus my bloods came back with a positive ANA and I now have another autoimmune disease to add to my Hashimotos and Coeliac in the form of Lupus. If another doctor had told me that my cholesterol was too high and I had to lose weight I would have screamed. Eventually someone thought to test my thyroid
Mia1057
in
Thyroid UK
11 years ago
Does lupus cause very dry skin?
hello - I have APS and pernicious anaemia. I have a positive ANA and St T's say I have lupus like symptoms associated with the APS but full blown lupus is not evident at the moment. I start Plaquenil in the new year (my specialist recommends introducing new drugs one at a time as I am on warfarin) I
hello - I have APS and pernicious anaemia. I have a positive ANA and St T's say I have lupus like symptoms associated with the APS but full blown lupus is not evident at the moment. I start Plaquenil in the new year (my specialist recommends introducing new drugs one at a time as I am on warfarin) I
stillwaiting
in
LUPUS UK
11 years ago
first appointment with a rheumatologist- positive ANA 1/640
Hi everyone, I am a 22 year old woman living in Boston. I have had reynauds since I was about 12 or so. I always thought this condition was a little worrisome, but I never thought about it too much. At a very young age I also noticed spider angiomas appearing on my hands (about 4 or 5 of them have come
Hi everyone, I am a 22 year old woman living in Boston. I have had reynauds since I was about 12 or so. I always thought this condition was a little worrisome, but I never thought about it too much. At a very young age I also noticed spider angiomas appearing on my hands (about 4 or 5 of them have come
purplebird
in
NRAS
11 years ago
Should I insist on a referral to investigate sle?
Will try to cut this short. My son was born with what the health visitor described as "baby acne" (apparently common amongst boys). It became infected and needed antibiotic ointment. He was always sicky. Had a huge inflamed belly button which eventually went down. At 1yr old he developed a rash on one
Will try to cut this short. My son was born with what the health visitor described as "baby acne" (apparently common amongst boys). It became infected and needed antibiotic ointment. He was always sicky. Had a huge inflamed belly button which eventually went down. At 1yr old he developed a rash on one
meeche1978
in
LUPUS UK
11 years ago
A positive ANA
Hello - this is my first post here. I was diagnosed with Hughes Syndrome in April. The blood tests also indicated a positive ANA. My Consultant wanted me to be seen at St Thomas' for the Hughes but said the positive ANA "was nothing". St T's also found that I have Pernicious Anaemia so life long B12
Hello - this is my first post here. I was diagnosed with Hughes Syndrome in April. The blood tests also indicated a positive ANA. My Consultant wanted me to be seen at St Thomas' for the Hughes but said the positive ANA "was nothing". St T's also found that I have Pernicious Anaemia so life long B12
stillwaiting
in
LUPUS UK
11 years ago
Are my swollen, red, puffy eyes a symptom of autoimmune hepatitis?
Hi all. I was seen by a gastroenterologist in July following a 'hepatic episode' of deranged LFT's, mild jaundice and a significantly positive ANA. This episode had settled by the time i was seen but the consultant said she was almost certain that this was an indicator of autoimmune hepatitis. She did
Hi all. I was seen by a gastroenterologist in July following a 'hepatic episode' of deranged LFT's, mild jaundice and a significantly positive ANA. This episode had settled by the time i was seen but the consultant said she was almost certain that this was an indicator of autoimmune hepatitis. She did
blondie76
in
British Liver Trust
11 years ago
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