Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
935 public posts
Filter results
First lupus clinic visit, what to expect?
Hi all. I have a baffling range of symptoms over the past three years. Lots of tiredness, joint pain, arthritis, infections and a climbing positive ANA. I saw a rheumie a year ago who just said had lot of osteoarthritis and do physio and painkillers. Things have got worse and I am going to a different
Hi all. I have a baffling range of symptoms over the past three years. Lots of tiredness, joint pain, arthritis, infections and a climbing positive ANA. I saw a rheumie a year ago who just said had lot of osteoarthritis and do physio and painkillers. Things have got worse and I am going to a different
Jenny1
in
LUPUS UK
11 years ago
Newly diagnosed with Lupus and learning to spot the signs of a flare up
I was recently diagnosed through a positive ana result and still waiting to see a rheumatologist. I have had symptoms that started with extreme chronic fatigue, which initially GP put down to PBC(liver) and/or hypothyroidism, which I have both but he hadn't linked all the little things that had been
I was recently diagnosed through a positive ana result and still waiting to see a rheumatologist. I have had symptoms that started with extreme chronic fatigue, which initially GP put down to PBC(liver) and/or hypothyroidism, which I have both but he hadn't linked all the little things that had been
Houghton73shaw
in
LUPUS UK
11 years ago
Does rosacea affect the scalp too?
I have had a red flush across my face for some time but it is a flat rash (was investigated for Lupus after a positive ANA but all other tests came back negative). Now though I have had angry red bumps (they have no head so not spots as such) come up on my face and head. They come up and then flatten
I have had a red flush across my face for some time but it is a flat rash (was investigated for Lupus after a positive ANA but all other tests came back negative). Now though I have had angry red bumps (they have no head so not spots as such) come up on my face and head. They come up and then flatten
melodypond
in
MY SKIN
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Technical question: 3 years of positive antinuclear antibodies gone. Why? A few months ago showed a titre of 1:1100. New GP & test negative!
I have had 3 years of ANA positive results correlating with systemic sclerosis. This has been rising in titre every year since my first rheumatology investigation for various aches and pains. (I was ENA negative and I only have a touch of Raynauds). I don't understand why I am now testing ANA negative
I have had 3 years of ANA positive results correlating with systemic sclerosis. This has been rising in titre every year since my first rheumatology investigation for various aches and pains. (I was ENA negative and I only have a touch of Raynauds). I don't understand why I am now testing ANA negative
Boudicca10
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Hi. Iv been told last week I have lupus, fibromyalgia and Sjögren's syndrome. I also have poly cystic ovary syndrome.
I'm struggling with the new diagnosis as I had a positive ANA test but negative lupus test. Yet the rheumatologist still says its lupus and has prescribed hydroxychloroquine. Has anyone else had similar experience? Feeling lost :-(
I'm struggling with the new diagnosis as I had a positive ANA test but negative lupus test. Yet the rheumatologist still says its lupus and has prescribed hydroxychloroquine. Has anyone else had similar experience? Feeling lost :-(
Mrsoliver
in
LUPUS UK
11 years ago
Grrrrrrrr. The dermatologist was my last hope....
I finally got to see the dermatologist about the redness on my nose and cheeks. I had had three months worth of antibiotics and creams after the doctor diagnosed rosacea (I have been diagnosed with fibro but have had a positive ANA test in the past) but it didn't make any difference. The dermatologist
I finally got to see the dermatologist about the redness on my nose and cheeks. I had had three months worth of antibiotics and creams after the doctor diagnosed rosacea (I have been diagnosed with fibro but have had a positive ANA test in the past) but it didn't make any difference. The dermatologist
melodypond
in
LUPUS UK
11 years ago
Feeling patronised
As some of you may know from previous posts/questions that I recently saw the rheumatology doctor. He ordered a load more tests and offered the 'diagnosis' of sjorgens serolgy with lupus features. Essentially could be one or other or both but further investigations needed. Treatment has started with
As some of you may know from previous posts/questions that I recently saw the rheumatology doctor. He ordered a load more tests and offered the 'diagnosis' of sjorgens serolgy with lupus features. Essentially could be one or other or both but further investigations needed. Treatment has started with
Hidden
in
LUPUS UK
11 years ago
Birmingham open day and update!
Can some one please message with details of open day in Birmingham times of workshops etc. I deleted my personal profile of summer accidently when I left another health Unlocked site it took my profile from this one too! and the long awaited reply from NRAS too because once you delete a profile
Can some one please message with details of open day in Birmingham times of workshops etc. I deleted my personal profile of summer accidently when I left another health Unlocked site it took my profile from this one too! and the long awaited reply from NRAS too because once you delete a profile
summer32
in
NRAS
11 years ago
blood in urine
I was originally diagnosed with inflammatory arthritis and fibro.. but my regular urine checks always showed blood and once protein!!. thought this was side effects of gold injection which stopped working!!. had a kidney ultrasound and told it was fine.. so reading posts about kidney problems I thought
I was originally diagnosed with inflammatory arthritis and fibro.. but my regular urine checks always showed blood and once protein!!. thought this was side effects of gold injection which stopped working!!. had a kidney ultrasound and told it was fine.. so reading posts about kidney problems I thought
summer32
in
LUPUS UK
11 years ago
Dear all lupus sufferers
Can you close your fingers to palm/ fist in the morning??. Im query lupus now from original diagnosis of inflammatory arthritis, do you have high fatigue levels and need a nap in afternoon... I had a positive ana test Thank you
Can you close your fingers to palm/ fist in the morning??. Im query lupus now from original diagnosis of inflammatory arthritis, do you have high fatigue levels and need a nap in afternoon... I had a positive ana test Thank you
summer32
in
LUPUS UK
11 years ago
diagnosed too easy...hmmm
i feel i was diagnosed too easy with lupus... I am hypothyroid since 1998.. been 3 years menopaused..that threw thyroid further crazy... then leg/knee/hip/groin pain lasting 6 months then it left there..went to my collarbone now 3 months & calve pain when trying to go for walkies. xrays revealed
i feel i was diagnosed too easy with lupus... I am hypothyroid since 1998.. been 3 years menopaused..that threw thyroid further crazy... then leg/knee/hip/groin pain lasting 6 months then it left there..went to my collarbone now 3 months & calve pain when trying to go for walkies. xrays revealed
dgleds
in
LUPUS UK
11 years ago
How can my previous positive tests come back negative after a repeat?
I had a repeat test (as requested after 6mths by lab) for my POSITIVE ANA - POSITIVE HEP 2 CELLS (which included a pattern) ..borderline positive dsDNA abs....only to have the test come back COMPLETELY NEGATIVE!!! Does anyone know if this is possible?
I had a repeat test (as requested after 6mths by lab) for my POSITIVE ANA - POSITIVE HEP 2 CELLS (which included a pattern) ..borderline positive dsDNA abs....only to have the test come back COMPLETELY NEGATIVE!!! Does anyone know if this is possible?
nannytutu
in
LUPUS UK
11 years ago
Drama queen
Yes that's what my family think is wrong with me. A drama queen. I have been ill now for at least 18 years if not longer. Been tested for lupus results came back negative. Though have a positive ANA result. Have raynards and liverdo reticulitis which breaks out into small spots which bleed like ulcers
Yes that's what my family think is wrong with me. A drama queen. I have been ill now for at least 18 years if not longer. Been tested for lupus results came back negative. Though have a positive ANA result. Have raynards and liverdo reticulitis which breaks out into small spots which bleed like ulcers
Linmur1957
in
LUPUS UK
11 years ago
stopping medication/How long to leave your system?
Hi everyone I have had another frustrating conversation with my rhuemy nurse. Basically none of my bloods show any inflammation, I have had a positive ana on 2 occasions tested 3 months apart but were different patterns and then another ana test done which was negative. My symptoms are Joint pain
Hi everyone I have had another frustrating conversation with my rhuemy nurse. Basically none of my bloods show any inflammation, I have had a positive ana on 2 occasions tested 3 months apart but were different patterns and then another ana test done which was negative. My symptoms are Joint pain
LULU85
in
LUPUS UK
11 years ago
Lupus
My first lupus test came back positive also ANA positive. My latest lupus test was negative but ANA remains positive. Would the steroids I was on at the time affect my blood readings. Many thanks xxxxxx Also have F M and COPD.
My first lupus test came back positive also ANA positive. My latest lupus test was negative but ANA remains positive. Would the steroids I was on at the time affect my blood readings. Many thanks xxxxxx Also have F M and COPD.
Lesi
in
LUPUS UK
11 years ago
I had a borderline positive ANA test 2 years ago, and Hep2 cells were borderline positive..and the dsDNA level was very low at about 5 units
.. Mid-December 2012 I had the test repeated through a neurologist (as I was getting numb toes) and the test came back as ANA positive...Hep2 cells positive...the dsDNA level was 70 and an extra test of Crithidia came back borderline positive...The lab requested a repeat in 3 - 6 months. I have been
.. Mid-December 2012 I had the test repeated through a neurologist (as I was getting numb toes) and the test came back as ANA positive...Hep2 cells positive...the dsDNA level was 70 and an extra test of Crithidia came back borderline positive...The lab requested a repeat in 3 - 6 months. I have been
nannytutu
in
LUPUS UK
11 years ago
Can I ask if someone has had a positive ANA, and a negative DSDNA but still been diagnosed with Lupus? I have speckled pattern 1:80 titre
Im blessed with pernicious anemia, kidney problems, Ive been diagnosed with rheumatoid arthritis, bruises so eaisily, sores that just wont heal, I have flares, and dont stand the sunlight well.im totally exhausted, my eyes sting and my mouth is very dry. my joints are horrible, fingers, hands, toes,
Im blessed with pernicious anemia, kidney problems, Ive been diagnosed with rheumatoid arthritis, bruises so eaisily, sores that just wont heal, I have flares, and dont stand the sunlight well.im totally exhausted, my eyes sting and my mouth is very dry. my joints are horrible, fingers, hands, toes,
nancee
in
LUPUS UK
11 years ago
13yrs later.......
Just had my first Rhuemy appointment ! Only taken 13 years to get there! The last few months I've been on a serious mission to get to the bottom of my condition/s Been backwards and forwards to Gp with all my various symptoms over the last 13 years,finally when I moved I changed Gp and I think I made
Just had my first Rhuemy appointment ! Only taken 13 years to get there! The last few months I've been on a serious mission to get to the bottom of my condition/s Been backwards and forwards to Gp with all my various symptoms over the last 13 years,finally when I moved I changed Gp and I think I made
Lupdaloop
in
LUPUS UK
11 years ago
Anyone had oral thrush and small blisters on fingers?
I have raynauds and a strongly positive ANA marker in my bloods but not yet been diagnosed with a particular connective tissue disorder. I feel my raynauds has been worse the last week or so and have also randomly developed oral thrush and small little bubble type blisters on the side of my finger. Doctor
I have raynauds and a strongly positive ANA marker in my bloods but not yet been diagnosed with a particular connective tissue disorder. I feel my raynauds has been worse the last week or so and have also randomly developed oral thrush and small little bubble type blisters on the side of my finger. Doctor
Dancingc21
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Help and value your advice friends .
I was off Hydroxy and MTX as had a face rash and coldsore and was given antibiotics. I went back on Hydroxy and felt great..no joint pain and actually felt human and guess what had 'knuckles' and no 'swollen knees' and thought this was a breakthrough. An ANA test has been sent off and no results yet
I was off Hydroxy and MTX as had a face rash and coldsore and was given antibiotics. I went back on Hydroxy and felt great..no joint pain and actually felt human and guess what had 'knuckles' and no 'swollen knees' and thought this was a breakthrough. An ANA test has been sent off and no results yet
Rockpool60
in
NRAS
11 years ago
1
...
42
43
44
...
47
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
494 results
Thyroid UK
76 results
Scleroderma & Raynaud's UK (SRUK)
46 results
View top 10 communities
Sort by
Most Relevant
Newest