I'm feeling slightly cornered and not sure what to do.
I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a slightly elevated MCV since 2003) and a B12 test was ordered and it was 243 (I had supplemented prior to this as test was unexpected!). I was referred to a neurologist who tested my reflexes (which were fine). She also ordered some tests but is trying to brush me off with “it's just anxiety”. The ANA test she ordered has come back as “weakly positive”. I saw a haematologist today and she was a dead-end. She said I really needed an MMA and homocysteine test in March – but I've missed that boat as I was refused so started to self inject in May. She cannot investigate my macrocytosis because it is not enough outside of range (last reading was 99.8). She is going to have a look at my blood under a microscope and possibly order a paraprotein..but basically said there's nothing she can do because I have not been diagnosed with pernicious anaemia/B12d and nothing else is 'abnormal enough'. Intrinsic factor test came back negative.
I've been injecting daily for nearly 6 months with no significant improvements (dizziness and joint pain slightly improved). So all I have is mild macrocytosis, weakly positive ANA and a whole lot of symptoms. It is not anxiety-I know my body to know that something is wrong with me. What other tests can I request? Any advice on what steps to take next?
Following have all been checked and were OK: ferritin, folate, thyroid, vitamin D, liver function, diabetes
Thanks for comments.