Not sure what the diagnosis is. Haven't felt "good" in years, and finally got a PCP who listened to me. After hearing about all my issues (dry eyes/dry mouth, stiffness, general malaise, muscle pain, tendonitis/bursitis, joint pain, hx of palpitations, mitral valve prolapse, LER, previous diagnosis of APS, etc.), she ran some blood tests and it came back with a positive ANA of 1:320 (speckled) and a positive anti-RNP of 1.4. Suspected MCTD, so she sent me to the rheumatologist. Rheumy thought I might have UCTD, not MCTD. That lab work came back all negative! Rheumy could not detect the mitral valve prolapse, although 2 previous docs had done so. Although I had suffered 3 miscarriages and the fertility doc at the time had diagnosed me with APS, it no longer seemed to show up in the blood testing. Echocardiogram and PFT both normal.
PCP had thought it might be worth trying Duloxetine (Cymbalta) to treat what she
thought might be fibromyalgia (although I did not have all the tender points required for the diagnosis), but that was ineffective, and only added to my insomnia! (Strangely, perhaps it rejiggered something, because within two days of stopping, I have been sleeping like a baby for the first time in years!!!!!)
Rheumy unwilling to say I do or do not have a connective tissue disease, but wants to monitor me. In the meantime, still dealing with the original problems I went to the PCP for!
All I know is, I want to feel better, get rid of all the achiness. I try to keep very active, don't overdo, but kind of feels like running in place. Very frustrating. I would welcome any thoughts...thanks for letting me vent!