Letter with Diagnosis - Unsure what Tests mean? - LUPUS UK

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Letter with Diagnosis - Unsure what Tests mean?

riannabri profile image
6 Replies

So I had my letter from the Lupus Clinic today with a Diagnosis of Hughes Syndrome/Sjogrens and Lupus although some of my antibody tests were negative.

What does a ANA Positive 1:320 Speckled and Diffused mean?

Strange as in the biggest flare of my life but CRP and ESR were normal but WBC/Neutrophils were very high, as were Haemoglobin (I assume that is from the Hughes???) also although I was diagnosed from past blood tests/lupus rash pictures and all the symptoms of these disease a lot of my blood tests were normal - is that normal?

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riannabri
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Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi riannabri ,

This page gives a bit more information about the different patterns of ANA - labtestsonline.org/understa...

Blood test results can vary a lot between people and whilst some people may have levels that fluctuate with disease activity, in others this may not always be observed.

riannabri profile image
riannabri in reply toPaul_Howard

Thanks Paul,

I also had a Positive Anti-Cardiolipin IgM do you have any details on that?

AnnNY profile image
AnnNY in reply toriannabri

There is a lot of info on the Hughes Charity website. Also there is a Hughes forum here at HU.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply toriannabri

Hi riannabri ,

You can read more about this test at aps-support.org.uk/about-ap...

riannabri profile image
riannabri in reply toPaul_Howard

Thanks Paul - all the buses have come along at once positive for the lot Hughes/Lupus/Sjögren's, being told they can treat the hughes (unsure how) but not the Lupus/Sjögren's - I posted why in another thread - devastating!!!!

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply toriannabri

Hi riannabri,

You can learn about the treatment of Hughes at aps-support.org.uk/about-ap...

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