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Fibromyalgia following virus
Hello. I am new here but have been taking great comfort from reading the posts from others. It’s nice to feel less isolated by this horrid illness. I was relatively fit and well before contracting some unknown virus last year which appeared to attack my neurological system. First symptom was facial palsy
Hello. I am new here but have been taking great comfort from reading the posts from others. It’s nice to feel less isolated by this horrid illness. I was relatively fit and well before contracting some unknown virus last year which appeared to attack my neurological system. First symptom was facial palsy
Alb2
in
Fibromyalgia Action UK
6 years ago
Undiagnosed for 17 years
I have been sick for 17 years with an undiagnosed illness. I am not feeling well, so I won't go into all the details of my illness. In fact, Im feeling so poorly physically, intellectually and emotionally that Im finding it very difficult to write this. I have a sister who is 5 years younger than me.
I have been sick for 17 years with an undiagnosed illness. I am not feeling well, so I won't go into all the details of my illness. In fact, Im feeling so poorly physically, intellectually and emotionally that Im finding it very difficult to write this. I have a sister who is 5 years younger than me.
shefab
in
Hughes Syndrome APS Forum
6 years ago
Lupus diagnosis
Hi, I don't have any questions but just wanted to share with you my experience with Lupus. I got diagnosed with SLE on March 2017, i was 40 years old then. I did not have severe symptoms, most of my tests were negative other then my ANA test and Complement 3 (C3). The rheumatologist described Plaquenil
Hi, I don't have any questions but just wanted to share with you my experience with Lupus. I got diagnosed with SLE on March 2017, i was 40 years old then. I did not have severe symptoms, most of my tests were negative other then my ANA test and Complement 3 (C3). The rheumatologist described Plaquenil
Douny
in
LUPUS UK
6 years ago
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Nere
Recently diagnosed with Crest. Main complaint was Raynauds, and given my age (59) Ordered lab tests. It turned out I'm ANA positive, centomers number also high. Gp diagnosis is Crest and refered me to the rheumatologist. His next appointment is in a month!!! I'm in absolute distress. Having terrible
Recently diagnosed with Crest. Main complaint was Raynauds, and given my age (59) Ordered lab tests. It turned out I'm ANA positive, centomers number also high. Gp diagnosis is Crest and refered me to the rheumatologist. His next appointment is in a month!!! I'm in absolute distress. Having terrible
Nereyda
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
I have sle lupus
I don’t understand how the Drs call it mild lupus my bones and back of my legs hurt so bad I get real bad memory loss confusion chest pain the Drs Don’t find nothing besides my ana positive they came up with a number of 140 I can’t even walk up the stair I applied for ssi/disability since December haven
I don’t understand how the Drs call it mild lupus my bones and back of my legs hurt so bad I get real bad memory loss confusion chest pain the Drs Don’t find nothing besides my ana positive they came up with a number of 140 I can’t even walk up the stair I applied for ssi/disability since December haven
Vanessaperez102214
in
LUPUS UK
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
New to Lupus.... possibly!
Hi, my diagnosis was ANA positive without any clinical features of SLE. However I saw the specialist nurse 2 weeks ago as I started to have increased fatigue and joint pains. She discussed with Consultant and agreed hydroxychloroquine which I started on 3rd April, On 11th April I developed v itchy facial
Hi, my diagnosis was ANA positive without any clinical features of SLE. However I saw the specialist nurse 2 weeks ago as I started to have increased fatigue and joint pains. She discussed with Consultant and agreed hydroxychloroquine which I started on 3rd April, On 11th April I developed v itchy facial
Scubes
in
LUPUS UK
6 years ago
Lupus/UCTD, Chemotherapy and Research
Hi all, I'm just wondering if anyone here has had a similar experience of developing a connective tissue disease (Undifferentiated, Lupus, Sjogrens or otherwise) about 5 years after chemotherapy for any kind of cancer? My GP referred me to a neurologist as my first port of call last year when my fingers
Hi all, I'm just wondering if anyone here has had a similar experience of developing a connective tissue disease (Undifferentiated, Lupus, Sjogrens or otherwise) about 5 years after chemotherapy for any kind of cancer? My GP referred me to a neurologist as my first port of call last year when my fingers
panda2
in
LUPUS UK
6 years ago
New to Lupus and need advise
Hi All, I am 32 and have been recently been diagnosed with Lupus. I am still in denial about this and haven't fully accepted it and keep holding out that the doctors have got it wrong. I guess I have known for a long while that something was not quite right but chose to ignore the symptoms and carry
Hi All, I am 32 and have been recently been diagnosed with Lupus. I am still in denial about this and haven't fully accepted it and keep holding out that the doctors have got it wrong. I guess I have known for a long while that something was not quite right but chose to ignore the symptoms and carry
Jacpat
in
LUPUS UK
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Behçet and positive ANA. Anyone?
Isn’t common, but some people have ANA positive. I would like to know who has and the standard. thanks
Isn’t common, but some people have ANA positive. I would like to know who has and the standard. thanks
Anne_08
in
Behçet's UK
6 years ago
Professor Graham RV Hughes Blog: March 2018
March 2018 01 March 2018 by Professor Graham R V Hughes MD FRCP Wet, wet, wet. March this year, at least here in the South-East, has been dreadful – rain, cold winds, snow and most of all, grey skies. I swear that we have had less than 10 hours of sun this month. I hate to think what the nation’s
March 2018 01 March 2018 by Professor Graham R V Hughes MD FRCP Wet, wet, wet. March this year, at least here in the South-East, has been dreadful – rain, cold winds, snow and most of all, grey skies. I swear that we have had less than 10 hours of sun this month. I hate to think what the nation’s
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Negative ANA tests
At 14, I first went to a rheumatologist to get an ANA test done, because all but 3 women in my family have lupus and and/or rheumatoid arthritis, and I had been experiencing all of the common lupus symptoms. The test came back negative. At 15, I went to another rheumatologist to get the test done again
At 14, I first went to a rheumatologist to get an ANA test done, because all but 3 women in my family have lupus and and/or rheumatoid arthritis, and I had been experiencing all of the common lupus symptoms. The test came back negative. At 15, I went to another rheumatologist to get the test done again
0EmilyWanamaker0
in
LUPUS UK
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Is it for sure lupus?
If I had a positive Ana test and then a negative does it mean I have lupus for sure? I have never really had any other symptoms besides recently my body is very achy?
If I had a positive Ana test and then a negative does it mean I have lupus for sure? I have never really had any other symptoms besides recently my body is very achy?
Jobuddy
in
Anxiety Support
6 years ago
Novel Non-Bile FXR Agonist Promising in PBC Patients
This is from PBCers news feed. Sounds exciting. https://www.medpagetoday.com/meetingcoverage/easl/72355 PARIS -- Tropifexor, a non-bile acid FXR agonist, had a dose-dependent effect on gamma-glutamyl transferase (GGT) levels in patients with primary biliary cholangitis (PBC) compared with placebo,
This is from PBCers news feed. Sounds exciting. https://www.medpagetoday.com/meetingcoverage/easl/72355 PARIS -- Tropifexor, a non-bile acid FXR agonist, had a dose-dependent effect on gamma-glutamyl transferase (GGT) levels in patients with primary biliary cholangitis (PBC) compared with placebo,
JaneIng
in
PBC Foundation
6 years ago
Is it lupus?
Good morning all I was diagnosed with CNS lupus over a year ago. I know lupus can take years to fully diagnose. I have been very lucky and seen highly regarded lupus specialists but....I don't think I have lupus. I have been battling this with myself for a long time. I know a lot of you amazing people
Good morning all I was diagnosed with CNS lupus over a year ago. I know lupus can take years to fully diagnose. I have been very lucky and seen highly regarded lupus specialists but....I don't think I have lupus. I have been battling this with myself for a long time. I know a lot of you amazing people
ange726
in
LUPUS UK
6 years ago
Help with Blood test result please
I am going to the GP as I have not been feeling well since the new year. The blood tests results are all marked as "No action required" but I don't feel OK. I seem to be almost permanently tired and now have pins and needles in my feet and occassional cramps in my hands when writing. I am taking alternating
I am going to the GP as I have not been feeling well since the new year. The blood tests results are all marked as "No action required" but I don't feel OK. I seem to be almost permanently tired and now have pins and needles in my feet and occassional cramps in my hands when writing. I am taking alternating
carer999
in
Pernicious Anaemia Society
6 years ago
Update on my IU visit
Happy to say that I made it to Indianapolis safely & to my appointment as well. Dr Masuoka said my numbers are great, pretty stable compared to my past numbers. But, he said he would still like for my ALK Phos to come down more. I spent the day today calling & scheduling three orders to have done closer
Happy to say that I made it to Indianapolis safely & to my appointment as well. Dr Masuoka said my numbers are great, pretty stable compared to my past numbers. But, he said he would still like for my ALK Phos to come down more. I spent the day today calling & scheduling three orders to have done closer
Shulsey
in
PBC Foundation
6 years ago
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