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Individualized Dosing of Ropeginterferon Alfa-2b Ensures Optimal Response in Patients with Low-Risk Polycythemia Vera (PV)
Conclusions: High long-term response rates (80.4% at 24 months; 73.2% at 72 months) were achieved with ropeginterferon alfa-2b treatment in the low-risk PV population when the dose was optimized on an individual basis. No specific baseline characteristics among low-risk PV patients appear to be associated
Conclusions: High long-term response rates (80.4% at 24 months; 73.2% at 72 months) were achieved with ropeginterferon alfa-2b treatment in the low-risk PV population when the dose was optimized on an individual basis. No specific baseline characteristics among low-risk PV patients appear to be associated
Manouche
in
MPN Voice
6 months ago
Peginterferon alfa-2a
Hola! I'm new to this group and newly diagnosed with essential thrombocythemia. The treatment prescribed is peginterferon alfa-2a. So far I have done one treatment and wow does it suck! I haven't seen anyone else talking about this course of treatment. Is anyone else doing this? I sure could use some
Hola! I'm new to this group and newly diagnosed with essential thrombocythemia. The treatment prescribed is peginterferon alfa-2a. So far I have done one treatment and wow does it suck! I haven't seen anyone else talking about this course of treatment. Is anyone else doing this? I sure could use some
LisaLoveTacos
in
MPN Voice
6 months ago
Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Ced60
in
Restless Legs Syndrome
3 months ago
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immune system
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
lindyloulou
in
MPN Voice
9 months ago
Newly diagnosed with PBC
Hi there! I just got my official diagnosis today and was started on Ursodiol. I have been feeling fatigued for about 13 years and no one could find a reason. In the last 3 years, my liver enzymes went up and I started getting even weirder symptoms. Neurological impairments, heart pain, muscle pain.
Hi there! I just got my official diagnosis today and was started on Ursodiol. I have been feeling fatigued for about 13 years and no one could find a reason. In the last 3 years, my liver enzymes went up and I started getting even weirder symptoms. Neurological impairments, heart pain, muscle pain.
Pawsandchoc
in
PBCers Organization
9 months ago
biopsy help ?
hi everyone , I’m new to posting here. I would be delighted for any advice . I have been reading many of the posts which have been more than helpful, especially when time in the consultant room can be short . I have ? Lupus , no diagnosis yet . Have what appears to be full time butterfly rash
hi everyone , I’m new to posting here. I would be delighted for any advice . I have been reading many of the posts which have been more than helpful, especially when time in the consultant room can be short . I have ? Lupus , no diagnosis yet . Have what appears to be full time butterfly rash
Milliesal
in
LUPUS UK
9 months ago
ANA testing
Hi. My doctor routinely checks my antibody levels and it’s always above normal so I have a high ANA test. I have Graves disease so my endo doesn’t think it’s unusual but recently my ANA went up. It comes out homogeneous speckled and is normally 1:160 and now 1:320 which I guess is the next level up.
Hi. My doctor routinely checks my antibody levels and it’s always above normal so I have a high ANA test. I have Graves disease so my endo doesn’t think it’s unusual but recently my ANA went up. It comes out homogeneous speckled and is normally 1:160 and now 1:320 which I guess is the next level up.
Beefull8
in
Thyroid UK
9 months ago
Hypo Dr lowered dose!
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Lowestoft
in
Thyroid UK
4 months ago
Grade 3 Fatty Liver - Liver Enzymes keeps on elevating
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Imviiku
in
Living with Fatty Liver and NASH
4 months ago
Original blood results
Good morning, I finally have the blood results that caused the doc to refer me to endocrinology and prescribe Carbimazole and Propranolol. There is a lot on this form. Please can you tell me what is relevant to diagnose thyroid issues and possibly Graves disease? I am happy to share any results but
Good morning, I finally have the blood results that caused the doc to refer me to endocrinology and prescribe Carbimazole and Propranolol. There is a lot on this form. Please can you tell me what is relevant to diagnose thyroid issues and possibly Graves disease? I am happy to share any results but
Opposite
in
Thyroid UK
5 months ago
Help with my brother results
My brother has been in poor health for a good couple of years.. finally he has had some blood tests done TSH. 20 (0.3-5.5) T4. 8.3 (10-22) Requested T3 and antibodies but were not done! another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP B12. 271. (197-771)
My brother has been in poor health for a good couple of years.. finally he has had some blood tests done TSH. 20 (0.3-5.5) T4. 8.3 (10-22) Requested T3 and antibodies but were not done! another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP B12. 271. (197-771)
Bean101
in
Thyroid UK
5 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Best natural anti anxiety remedy
Hi, I was wondering what natural treatments people are taking to help with the anxiety that a lot of us with T have to deal with every day ? Does 5-htp work ? How about St Johns wort and L Theanine ? Which seems to work best for you ?
Hi, I was wondering what natural treatments people are taking to help with the anxiety that a lot of us with T have to deal with every day ? Does 5-htp work ? How about St Johns wort and L Theanine ? Which seems to work best for you ?
woodman72
in
Tinnitus UK
11 months ago
Possible early stages of lupus?
I started having joint pain a few months ago, mostly hands and feet, together with a little tingling in both. I also started to have hot flushes (not menopause-related; already diagnosed with premature menopause and taking oestrogen). The GP ordered a bunch of blood tests in April and decided that being
I started having joint pain a few months ago, mostly hands and feet, together with a little tingling in both. I also started to have hot flushes (not menopause-related; already diagnosed with premature menopause and taking oestrogen). The GP ordered a bunch of blood tests in April and decided that being
hose1975
in
LUPUS UK
10 months ago
Peginterferon alfa 2a or Hydroxycarbamide for PV?
My consultant has said I need to start treatment for PV and has asked me to choose between them. I'd really welcome any recommendations. I am new to this site, apologies uf this has been asked before.
My consultant has said I need to start treatment for PV and has asked me to choose between them. I'd really welcome any recommendations. I am new to this site, apologies uf this has been asked before.
Lyndjs
in
MPN Voice
8 months ago
Mild concentric LVH
I have shown Mild concentric LVH, bp 140/100, cholesterol 256, triglycerides 320, SGOT 93, SGPT 102. Please suggest me , what should i do, what food to eat, daily routine, exercise, how to recover from it.
I have shown Mild concentric LVH, bp 140/100, cholesterol 256, triglycerides 320, SGOT 93, SGPT 102. Please suggest me , what should i do, what food to eat, daily routine, exercise, how to recover from it.
Parbat_64
in
British Heart Foundation
6 months ago
PBC and skin hyperpigmentation
maybe someone can help me with this. I have positive ANA 1280. Positive AMA M2 120. Positive Anticentromere 160. These were discovered in 2014 when I started having symptoms which turned out to be Lupus. Since the M2 was positive I have been seeing a Liver specialist once a year with annual ultrasounds
maybe someone can help me with this. I have positive ANA 1280. Positive AMA M2 120. Positive Anticentromere 160. These were discovered in 2014 when I started having symptoms which turned out to be Lupus. Since the M2 was positive I have been seeing a Liver specialist once a year with annual ultrasounds
Lorelle09
in
PBC Foundation
10 months ago
always ANA positive with lupus?
hi all, I was diagnosed privately in 2019 with SLE and Sjogrens , but my current GP is querying this, its an ongoing issue and a long story. She has said that if my ANA comes back neg then I don't have lupus or sjorgrens, despite all mys symptoms and being on ongoing treatment for it? My questions
hi all, I was diagnosed privately in 2019 with SLE and Sjogrens , but my current GP is querying this, its an ongoing issue and a long story. She has said that if my ANA comes back neg then I don't have lupus or sjorgrens, despite all mys symptoms and being on ongoing treatment for it? My questions
Foodman500
in
LUPUS UK
11 months ago
spinal cord stimulator side effects
I wanted to know has anyone experienced itching skin ( mine is on my shoulder blades) following having a spinal cord stimulator fitted. I had mine fitted in 2018 and for some years now both my shoulder blades itch nearly all the time and drive me crazy, there is no rash or sign of anything on the skin
I wanted to know has anyone experienced itching skin ( mine is on my shoulder blades) following having a spinal cord stimulator fitted. I had mine fitted in 2018 and for some years now both my shoulder blades itch nearly all the time and drive me crazy, there is no rash or sign of anything on the skin
vihkins
in
Pain Concern
1 year ago
Complicated with NASH, looking for next step
HI, I feel so discouraged by healthcare. My story - No one can say "why," yet I appear to have fast advancing liver disease. I do have several autoimmune ds ie Hashimotos, Fibromyalgia, adrenal issue etc - but so far tested neg related to liver, no hepatitis etc but am + EBV w/o mono, No diabetes A1c
HI, I feel so discouraged by healthcare. My story - No one can say "why," yet I appear to have fast advancing liver disease. I do have several autoimmune ds ie Hashimotos, Fibromyalgia, adrenal issue etc - but so far tested neg related to liver, no hepatitis etc but am + EBV w/o mono, No diabetes A1c
NeverBeen2Spain
in
Living with Fatty Liver and NASH
11 months ago
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