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Adrenal cortex extract (ACE)
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Dodging the storm
Published in Nature https://www.nature.com/articles/d42473-020-00442-z?utm_source=facebook&utm_medium=social&utm_campaign=bcon-jacksonlabs_article_2 - a new platform designed to forecast ‘cytokine storms’. Caveat: article is a paid-for advertisement and method is not yet tested in human subjects. Claims
Published in Nature https://www.nature.com/articles/d42473-020-00442-z?utm_source=facebook&utm_medium=social&utm_campaign=bcon-jacksonlabs_article_2 - a new platform designed to forecast ‘cytokine storms’. Caveat: article is a paid-for advertisement and method is not yet tested in human subjects. Claims
bennevisplace
in
CLL Support
3 years ago
Mucuna and other natural supplements advice please
Hi I haven’t posted before. I am Carer to my husband who was diagnosed with PD in 2016 after being told for several years that he had essential tremor. Over the past year his motor and non motor symptoms have got worse. He does zoom PD Warrior 3 times a week, Beat boxing twice and other things too. Three
Hi I haven’t posted before. I am Carer to my husband who was diagnosed with PD in 2016 after being told for several years that he had essential tremor. Over the past year his motor and non motor symptoms have got worse. He does zoom PD Warrior 3 times a week, Beat boxing twice and other things too. Three
LondonPD
in
Cure Parkinson's
4 years ago
Cold before embryo transfer.
Hi all, I’m having my frozen embryo transfer on Monday but feel a cold coming on. Not aches and shivers , more a runny nose. My first born has has had it. I’m freaking out that having a cold could affect things. Any advice, words to calm , previous experience of this would be hugely appreciated. Thank
Hi all, I’m having my frozen embryo transfer on Monday but feel a cold coming on. Not aches and shivers , more a runny nose. My first born has has had it. I’m freaking out that having a cold could affect things. Any advice, words to calm , previous experience of this would be hugely appreciated. Thank
Joanna-Arabella1984
in
Fertility Network UK
3 years ago
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Immune suppressants?
Im not seeking any medical advice with this question. Do any of you know why some of us, post transplant, take different immune suppressants? I take 2 mg of Advagraf (slow relase) once a day. Others that i have met on the liver unit that were transplanted around the same time as me, December 2019, or
Im not seeking any medical advice with this question. Do any of you know why some of us, post transplant, take different immune suppressants? I take 2 mg of Advagraf (slow relase) once a day. Others that i have met on the liver unit that were transplanted around the same time as me, December 2019, or
MarthaRock
in
British Liver Trust
4 years ago
Dad Damaged lungs after covid pneumonia
Hello I was hoping to find someone with a recovery story in the state my dad is right now. He tested positive Jan 9, Hospitalized Jan 17, Ventilator Jan 25. That is about 1.5 Mo. As of today my dad is still on the Vent 100%. They say he has fibrosis and pneumonia. He is no longer covid positive, but
Hello I was hoping to find someone with a recovery story in the state my dad is right now. He tested positive Jan 9, Hospitalized Jan 17, Ventilator Jan 25. That is about 1.5 Mo. As of today my dad is still on the Vent 100%. They say he has fibrosis and pneumonia. He is no longer covid positive, but
lbohorquez
in
ICUsteps
3 years ago
Gazyva reaction
Had my first 2 gazyva infusions last Thursday and Friday. Had a brief infusion reaction both days which resolved. Now 4 days later have muscle aches like the flu. Already had my flu shot and don’t have any other symptoms. My Oncologist says that you can get muscle aches from the Gazyva. Has anyone
Had my first 2 gazyva infusions last Thursday and Friday. Had a brief infusion reaction both days which resolved. Now 4 days later have muscle aches like the flu. Already had my flu shot and don’t have any other symptoms. My Oncologist says that you can get muscle aches from the Gazyva. Has anyone
jjaarons
in
CLL Support
3 years ago
Temgesic or Subutex
I have an appointment next week at an addiction clinic, even though I am not an addict. I have restless legs and chronic back pain. I went to this particular clinic a couple of months ago to request a script for Subutex. The doctor said he wouldn’t prescribe it because I would have to report to a
I have an appointment next week at an addiction clinic, even though I am not an addict. I have restless legs and chronic back pain. I went to this particular clinic a couple of months ago to request a script for Subutex. The doctor said he wouldn’t prescribe it because I would have to report to a
Mickmaur
in
Restless Legs Syndrome
4 years ago
Side effects of flagyl? Thrush? Help!
Took flagyl for 5 days, experienced/currently experiencing weird bleeding ? Thought it was my period but it’s thin blood (thin in viscosity/light colored but heavy flow) with lots of small clots which isn’t normal for my period. Smells like raw meat tbh which is disturbing :/ Also experienced persistent
Took flagyl for 5 days, experienced/currently experiencing weird bleeding ? Thought it was my period but it’s thin blood (thin in viscosity/light colored but heavy flow) with lots of small clots which isn’t normal for my period. Smells like raw meat tbh which is disturbing :/ Also experienced persistent
skimasktheslumpgod
in
BASHH
3 years ago
Long covid and cognitive problems
I've been home after having covid pneumonia and bring in CCU since 30th December. My vitamin D was in my boots, that's now sorted. I'm really struggling with the cognitive side, I can't think of words or phrases, forget things, I've ordered things that are wrong and the list goes on.... Has anyone else
I've been home after having covid pneumonia and bring in CCU since 30th December. My vitamin D was in my boots, that's now sorted. I'm really struggling with the cognitive side, I can't think of words or phrases, forget things, I've ordered things that are wrong and the list goes on.... Has anyone else
Hevhod
in
ICUsteps
3 years ago
Covid symptoms
Long covid symptoms seem to be the same as I am suffering from 6 years after sepsis and pneumonia is there a connection can anyone help. I think it is more to do with being put into a coma than the infection is this a possibility
Long covid symptoms seem to be the same as I am suffering from 6 years after sepsis and pneumonia is there a connection can anyone help. I think it is more to do with being put into a coma than the infection is this a possibility
bunnyrabbit1234
in
ICUsteps
3 years ago
My hospital experience
I haven't done any posts for a while. I have IPF. Last year I became very ill and husband called an ambulance, I was in A&E for 9 hours, the bed was so hard my backside was numb, they put me in an emergency dependence ward with severe pneumonia after 5 days was transferred to a general ward I had never
I haven't done any posts for a while. I have IPF. Last year I became very ill and husband called an ambulance, I was in A&E for 9 hours, the bed was so hard my backside was numb, they put me in an emergency dependence ward with severe pneumonia after 5 days was transferred to a general ward I had never
Margot13
in
Lung Conditions Community Forum
3 years ago
Positive for the LRRK2 gene
I am positive for the LRRK2 gene. My father has pd and so did his Dad, as well as my mother’s Mom. I have two girls and 3 sisters. This news can be a curse or a blessing. If you have any words of wisdom I would really appreciate hearing them
I am positive for the LRRK2 gene. My father has pd and so did his Dad, as well as my mother’s Mom. I have two girls and 3 sisters. This news can be a curse or a blessing. If you have any words of wisdom I would really appreciate hearing them
Missy0202
in
Cure Parkinson's
3 years ago
Cough while on Imbruvica?
My husband (70 yoga) was diagnosed w/CLL in 2017. He had two rounds of guzyva and is now on Imbruvica. His counts are good. He has had a cough (something like chronic bronchitis) for at least two years. In the mornings, esp. he coughs and coughs and coughs up mucus that he needs to spit out. Has
My husband (70 yoga) was diagnosed w/CLL in 2017. He had two rounds of guzyva and is now on Imbruvica. His counts are good. He has had a cough (something like chronic bronchitis) for at least two years. In the mornings, esp. he coughs and coughs and coughs up mucus that he needs to spit out. Has
Gustac
in
CLL Support
3 years ago
COPD/Bronchitis. Are they linked.
I keep getting recurring chest infections and most days feel ill. My gp says it is my COPD but I'm wondering why I keep getting these chest infections constantly and feel so unwell. Any advice please?
I keep getting recurring chest infections and most days feel ill. My gp says it is my COPD but I'm wondering why I keep getting these chest infections constantly and feel so unwell. Any advice please?
Pollyposh1
in
COPD Friends
3 years ago
PMG and virus
Hi I have PMG and am doing really well, have lowered prednisone to 9mg due to go to 8mg and managed to keep up with regular exercise. Two weeks ago my husband picked up a virus, tickly throat, chesty cough (its not covid) 4 days later he started getting better and I got it but I didn't get better, saw
Hi I have PMG and am doing really well, have lowered prednisone to 9mg due to go to 8mg and managed to keep up with regular exercise. Two weeks ago my husband picked up a virus, tickly throat, chesty cough (its not covid) 4 days later he started getting better and I got it but I didn't get better, saw
Renesch
in
PMRGCAuk
3 years ago
Good news(?)
so i had some follow ups with my doctor and turns out there was a miscommunication on my dosage of amlodipine, it’s now been fixed and i’m taking the proper dosage, my blood pressure has been really well! and i’m glad it’s working☺️dont have to take the Coreg and i’m not experiencing the side effects
so i had some follow ups with my doctor and turns out there was a miscommunication on my dosage of amlodipine, it’s now been fixed and i’m taking the proper dosage, my blood pressure has been really well! and i’m glad it’s working☺️dont have to take the Coreg and i’m not experiencing the side effects
celestw
in
High Blood Pressure Support
4 years ago
Help with pseudomonas infection had since Dec and struggling
Had high dose of ciprofloxacin 750 And steroids pneumonia in feb never been this unwell I’m a bronchiectasis suffer- since a child
Had high dose of ciprofloxacin 750 And steroids pneumonia in feb never been this unwell I’m a bronchiectasis suffer- since a child
Redrum46
in
Lung Conditions Community Forum
3 years ago
Vaccines and flare up's?
Hi I'm new on here. I have 3 auto-immune conditions, including R.A. I was just wondering if anyone had a flare up after their covid vaccine? I had a pneumonia jab in September, a flu jab in November and the covid vaccine 4 weeks ago and the last few weeks I have been really struggling. It may be
Hi I'm new on here. I have 3 auto-immune conditions, including R.A. I was just wondering if anyone had a flare up after their covid vaccine? I had a pneumonia jab in September, a flu jab in November and the covid vaccine 4 weeks ago and the last few weeks I have been really struggling. It may be
debjw
in
NRAS
3 years ago
Sinus issues and endo?
Hi ladies I’m just interested to hear if anyone suffers with sinus issues? I thought it could have been from breaking my nose when I was 20 but after ENT checking with a camera they said it was clear. For the past 7 years I’ve had several flares of sinusitis but the main thing is that every single day
Hi ladies I’m just interested to hear if anyone suffers with sinus issues? I thought it could have been from breaking my nose when I was 20 but after ENT checking with a camera they said it was clear. For the past 7 years I’ve had several flares of sinusitis but the main thing is that every single day
Dartmouth93
in
Endometriosis UK
3 years ago
Type X
I was diagnosed with Histiocytosis type x the x means they haven’t named it yet. Mine was renamed to Langerhans cell Histiocytosis but there are different strains of it. Have you tried the Histiocytosis association in America Hope you can be treated Regards Lynn
I was diagnosed with Histiocytosis type x the x means they haven’t named it yet. Mine was renamed to Langerhans cell Histiocytosis but there are different strains of it. Have you tried the Histiocytosis association in America Hope you can be treated Regards Lynn
Jinny455
in
Lung Conditions Community Forum
3 years ago
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