Long covid and cognitive problems

[Hevhod]

I've been home after having covid pneumonia and bring in CCU since 30th December. My vitamin D was in my boots, that's now sorted. I'm really struggling with the cognitive side, I can't think of words or phrases, forget things, I've ordered things that are wrong and the list goes on.... Has anyone else suffered? Thanks

[Sepsur]

Cognitive dysfunction or brain fog is a common legacy of critical illness.

I have to write everything down now so I don’t forget it. If an idea occurs to me, I have to ask the question or it disappears into the ether.

I had to slowly increase the challenges that I imposed on my brain. My vocabulary has improved, I still search for words I can’t recall, I forget names etc etc - but it does improve

[Hevhod in reply to Sepsur]

Thank you for the reply. I have fibromyalgia so I was used to a certain amount of forgetfulness but this amount started to concern me... Glad to hear it does improve with time. I'll keep challenging myself

[Sepsur in reply to Hevhod]

I found reading ( which I loved) very difficult - numbers ( which I hated) became my friend - soduku for instance

[Hevhod in reply to Sepsur]

Oh my goodness! Yes reading is too much at the moment. I do a page and that's it. I'm finding that I have to do everything in small amounts

[PeterJu]

hi. The cognitive issues are common and I am totally with you! Post ICU / covid last April I am sharing the difficulties you describe. You might find some helpful info in the attached link?

covidpatientsupport.lthtr.n...

I run a Zoom support group for people who have been in ICU. Most of us, (because of the timing,) were in with covid. You are more than welcome to join us. It is this Wednesday at 7pm. If you want to do this, pls DM me your email address and i will send you all the details. I am also happy to chat with you about my experience of cognitive issues in the last 11 months if you want.

Best wishes and know you are not the only one dealing with this. cheers Pete

[Hevhod in reply to PeterJu]

Hi Pete, thanks so much for your reply. Really appreciate it. Such a shame you haven't had much help out support. I'm already in a zoom group which is local to be for ICU but appreciate the offer greatly. Thank you for the link too. Heather

[daffodil11 in reply to PeterJu]

Hi Pete, I've experienced being in ICU a couple of times first time was for 2 weeks, most of that time I was ventilated.

I would be delighted if I could join your meetings via zoom.

My email address is [e-mail].

Looking forward to hearing from you.

Best wishes

Rhoda

[Waggy72]

Yeah me and suffering terrible nightmares

I’m exhausted with it all

[Hevhod in reply to Waggy72]

I'm sorry to hear you are having nightmares.. it's very hard and very exhausting. I have fibro and was used to fatigue but for me this is next level for everything. Take care