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Rheumatologist referral
Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘normal’ reduction plan at first. I was able to get down to 5 mg with reasonable ease although I was never 100% free from some pain and stiffness but didn’t affect my qol . I then found this site and started to follow advice
Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘normal’ reduction plan at first. I was able to get down to 5 mg with reasonable ease although I was never 100% free from some pain and stiffness but didn’t affect my qol . I then found this site and started to follow advice
MrsPractical
in
PMRGCAuk
4 months ago
Laparoscopy made everything 1000x times worse, anyone else?
Hi all, I wondered if anyone else had, had a bad experience with their laparoscopy? I have suffered with endometriosis for 18 years ((I am 34 yes old)) (constantly misdiagnosed, gas lighted, not listened to, told it was normal period pains and to "just get on with it" - you know the usual story for
Hi all, I wondered if anyone else had, had a bad experience with their laparoscopy? I have suffered with endometriosis for 18 years ((I am 34 yes old)) (constantly misdiagnosed, gas lighted, not listened to, told it was normal period pains and to "just get on with it" - you know the usual story for
Mia843
in
Endometriosis UK
4 months ago
PMR flare advice needed
I have messed up with dealing with a recent flare and would love your advice on where to go from here. I was stuck at 11mg Prednisolone for many months and then one day I felt a change. From then I have been able to taper at 0.5mg every 3 weeks. All was good until I got to 8.5mg. I did my usual - add
I have messed up with dealing with a recent flare and would love your advice on where to go from here. I was stuck at 11mg Prednisolone for many months and then one day I felt a change. From then I have been able to taper at 0.5mg every 3 weeks. All was good until I got to 8.5mg. I did my usual - add
Oh-my
in
PMRGCAuk
4 months ago
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low folate
I have
acid
reflux
, and I’m on Nexium 10 daily. In the last few months my folate has dropped below the low end of the range. I’m wondering if anyone else has this and is it related to PBC or Nexium. I don’t have anaemia. Thank you
I have
acid
reflux
, and I’m on Nexium 10 daily. In the last few months my folate has dropped below the low end of the range. I’m wondering if anyone else has this and is it related to PBC or Nexium. I don’t have anaemia. Thank you
Gwelos
in
PBC Foundation
1 year ago
unsuccessful Laparoscopy
Hello, this is my first time posting so please bear with me! I have been struggling with symptoms of endometriosis since I could remember. I started my period at around 9 and I would say from 13+ my periods had been extremely painful, heavy, putting pressure on my bowels, mood swings etc (the list really
Hello, this is my first time posting so please bear with me! I have been struggling with symptoms of endometriosis since I could remember. I started my period at around 9 and I would say from 13+ my periods had been extremely painful, heavy, putting pressure on my bowels, mood swings etc (the list really
BitterSweet09
in
Endometriosis UK
4 months ago
Extreme fatigue. Any solution?
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
jeeves19
in
Cure Parkinson's
4 months ago
do I need a calcium supplement after having zoledronic acid infusion.
do I need a calcium supplement after having my zoledronic acid infusion.
do I need a calcium supplement after having my zoledronic acid infusion.
Radars
in
British Heart Foundation
4 months ago
ppi before zoledronic acid infusion
Best time to take my ppi before my zoledronic acid infusion.
Best time to take my ppi before my zoledronic acid infusion.
Radars
in
Bone Health and Osteoporosis UK
4 months ago
calcium supplement
do you have to take a calcium supplement before a zoledronic acid infusion,because I am having my second infusion tomorrow, I can't take a calcium supplement because they give me constipation.
do you have to take a calcium supplement before a zoledronic acid infusion,because I am having my second infusion tomorrow, I can't take a calcium supplement because they give me constipation.
Radars
in
Bone Health and Osteoporosis UK
4 months ago
Trying to follow a healthy lifestyle while on long term drug therapy
So finding my lump and realising I had Breast Cancer has taken me on a strange journey. I'm a healthy active 75 year old carer for my darling hubby. I am starting month 6 of Letrozole, have had 1 Ibandronic acid treatment and have just been taken off my Abemeciclib tablets after almost 8 weeks as
So finding my lump and realising I had Breast Cancer has taken me on a strange journey. I'm a healthy active 75 year old carer for my darling hubby. I am starting month 6 of Letrozole, have had 1 Ibandronic acid treatment and have just been taken off my Abemeciclib tablets after almost 8 weeks as
wackier
in
SHARE Breast Cancer Support
4 months ago
calcium supplements before zoledronic acid infusion
does everyone take calcium supplement before the infusion, I am due my second infusion tomorrow, I have had a blood test and they said calcium levels ok,they said ok after my first infusion but ended up peeing blood, a blood test doesn't show how much calcium in your bones, and with zoledronic acid infusions
does everyone take calcium supplement before the infusion, I am due my second infusion tomorrow, I have had a blood test and they said calcium levels ok,they said ok after my first infusion but ended up peeing blood, a blood test doesn't show how much calcium in your bones, and with zoledronic acid infusions
Radars
in
British Heart Foundation
4 months ago
I need help/advice
My daughter has just turned 16. Since christmas she has been so unwell in unbearable pain. She was told she has Endometriosis and has been reffered to gyneacology- but its a 33 week wait. Since then we have been in and out of a&e and multiple drs app. Weve seen a private dr who has said it isnt stage
My daughter has just turned 16. Since christmas she has been so unwell in unbearable pain. She was told she has Endometriosis and has been reffered to gyneacology- but its a 33 week wait. Since then we have been in and out of a&e and multiple drs app. Weve seen a private dr who has said it isnt stage
Lillysmum
in
Endometriosis UK
4 months ago
Prednisolone and diabetes / high bp worried sick about all the side effects
hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was managing my diabetes with food prior to this but have now got out of control readings with ketones present in every reading except my blood fasting
hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was managing my diabetes with food prior to this but have now got out of control readings with ketones present in every reading except my blood fasting
Pol53
in
PMRGCAuk
4 months ago
Zoledronic acid infusion
Has anyone had Zoledronic acid infusions & tolerated well with no / minimal side effects ? OR if there were side effects how long did they last ? All comments would be greatly appreciated !
Has anyone had Zoledronic acid infusions & tolerated well with no / minimal side effects ? OR if there were side effects how long did they last ? All comments would be greatly appreciated !
88km
in
Bone Health and Osteoporosis UK
4 months ago
restless legs
Hi all, Another disturbed night - restless legs driving me insane. I get a horrible tingling sensation in my legs and cannot keep them still. I’m not overweight, get plenty of exercise, practice yoga, don’t have caffeine at all and only the occasional glass of wine at the weekend. Is this associated
Hi all, Another disturbed night - restless legs driving me insane. I get a horrible tingling sensation in my legs and cannot keep them still. I’m not overweight, get plenty of exercise, practice yoga, don’t have caffeine at all and only the occasional glass of wine at the weekend. Is this associated
artisam
in
PMRGCAuk
4 months ago
Covid
At bedtime when I take ibuprofen and paracetamol without Gaviscon my
acid
reflux
is worse. When I take Ibruprofen and paracetamol with Gaviscon my Covid symptoms are worse. Any thoughts please?
At bedtime when I take ibuprofen and paracetamol without Gaviscon my
acid
reflux
is worse. When I take Ibruprofen and paracetamol with Gaviscon my Covid symptoms are worse. Any thoughts please?
AHG123
in
Acid Reflux Support
1 year ago
Lanzoprazole and side effects
I know they have lots of potential bad effects long term, but is it more important to keep
reflux
acid
down? Just interested what others have done. Thank you in advance!
I know they have lots of potential bad effects long term, but is it more important to keep
reflux
acid
down? Just interested what others have done. Thank you in advance!
PopandMo
in
Oesophageal & Gastric Cancer
5 months ago
I asked ChatGPT about Fosamax. How does the medication Fosamax fake your DEXA score?
I have
acid
reflux
and this is not the best choice. But after looking more into the medication and the side effects, I knew it wasn't for me. Right now I am just sticking with doing my weight bearing exercises, taking calcium citrate and vitamin k2. My next scan is this August.
I have
acid
reflux
and this is not the best choice. But after looking more into the medication and the side effects, I knew it wasn't for me. Right now I am just sticking with doing my weight bearing exercises, taking calcium citrate and vitamin k2. My next scan is this August.
Capan24
in
Bone Health and Osteoporosis UK
2 months ago
Bisoprolol and ears
I have been taking Bisoprolol now for 2 years nearly.For the last months ive been having vertigo, mostly in the morning. Then a couple of weeks ago i started getting low noises in my left ear, this ear i have since found out is slightly retracted. Its been constant... i am not sure if it was my statins
I have been taking Bisoprolol now for 2 years nearly.For the last months ive been having vertigo, mostly in the morning. Then a couple of weeks ago i started getting low noises in my left ear, this ear i have since found out is slightly retracted. Its been constant... i am not sure if it was my statins
Hippiechic63
in
British Heart Foundation
4 months ago
DNA fragmentation supplement advice. Could supplements be doing more harm than good?
Hey everyone hope you are well. Dh got his semen results at normal but then test revealed high DNA fragmentation. 42%. We don’t have time\money/willing to see a urologist but we are going to arrange some tests for infection. I do believe that abstinence period could be a big thing here… part of the
Hey everyone hope you are well. Dh got his semen results at normal but then test revealed high DNA fragmentation. 42%. We don’t have time\money/willing to see a urologist but we are going to arrange some tests for infection. I do believe that abstinence period could be a big thing here… part of the
Cuppppatea
in
Fertility Network UK
4 months ago
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