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Experience of neurology during the coronavirus crisis. Asking for your help!
Dear all We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in a couple of weeks. One of the topics we will be discussing is how neurology appointments have been affected by the coronavirus climate that we unfortunately find ourselves in. I would be so grateful if you could let me
Dear all We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in a couple of weeks. One of the topics we will be discussing is how neurology appointments have been affected by the coronavirus climate that we unfortunately find ourselves in. I would be so grateful if you could let me
HarryB
Administrator
in
Ataxia UK
4 years ago
Advice/tips for 3.5yo stool withholding?
Hi, I'm new here and am desperately looking for some advice/tips regarding my 3.5yo son. He was only recently diagnosed with constipation/stool withholding after daily daytime wetting. He has been out of diapers for 9 months and all of a sudden started wetting himself. Toilet training for bowel movements
Hi, I'm new here and am desperately looking for some advice/tips regarding my 3.5yo son. He was only recently diagnosed with constipation/stool withholding after daily daytime wetting. He has been out of diapers for 9 months and all of a sudden started wetting himself. Toilet training for bowel movements
teaandtoast28
in
ERIC
4 years ago
A/f and cough medicines
Hi all I Have a very irritating cough for last two weeks wanted a cough suppressant from chemist and got conflicting opinions , one pharmacist recommended Pholcodine another Robitussin dry cough, and yet another said none were suitable as I take bisoprol and flecinade ps .i tested negative for covid
Hi all I Have a very irritating cough for last two weeks wanted a cough suppressant from chemist and got conflicting opinions , one pharmacist recommended Pholcodine another Robitussin dry cough, and yet another said none were suitable as I take bisoprol and flecinade ps .i tested negative for covid
Kevinder23
in
AF Association
4 years ago
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Lung abscess
Hi just wondering if anyone has any experience of lung abscess’ please. My son is 13, had pneumonia and lung abscess February his 4th X-ray a few days ago has revealed no change/improvement and he is being referred to a consultant. I’m so worried about him. Thank you
Hi just wondering if anyone has any experience of lung abscess’ please. My son is 13, had pneumonia and lung abscess February his 4th X-ray a few days ago has revealed no change/improvement and he is being referred to a consultant. I’m so worried about him. Thank you
Hidden
in
Lung Conditions Community Forum
4 years ago
Injury.
Injury? Hi. I'm 66 and have just completed week 1 which I have done twice. I have found it very hard but enjoyable. My leg muscles ache alot. This morning I've noticed a bruise on the inside of my left thigh. I'm due to start run 1 of week 2 tomorrow. Advice please. Thanks.
Injury? Hi. I'm 66 and have just completed week 1 which I have done twice. I have found it very hard but enjoyable. My leg muscles ache alot. This morning I've noticed a bruise on the inside of my left thigh. I'm due to start run 1 of week 2 tomorrow. Advice please. Thanks.
Hidden
in
Couch to 5K
4 years ago
Had enough can’t fight it much longer.
I’ve had enough feel like giving up .ive been on linaclotide 290 since October and sachet of laxido once a day . I take the tablet in the morning before breakfast . . I been on before and asked or help I’ve taken 2kiwies a day been on a restricted diet and a high fibre diet nothing helps .im in constant
I’ve had enough feel like giving up .ive been on linaclotide 290 since October and sachet of laxido once a day . I take the tablet in the morning before breakfast . . I been on before and asked or help I’ve taken 2kiwies a day been on a restricted diet and a high fibre diet nothing helps .im in constant
Readmeastory
in
IBS Network
4 years ago
First disimpaction
I assumed there would be lots of
accidents
while disimpacting anyway, is this right? We haven't had any dark sludgy poo or any hard poo. We started with lots of pale skinny sausages.
I assumed there would be lots of
accidents
while disimpacting anyway, is this right? We haven't had any dark sludgy poo or any hard poo. We started with lots of pale skinny sausages.
Em2006
in
ERIC
4 years ago
Another setback - back to Week 3
Another week, another stumbling block. Having being stopped three times due to illness since I began this back in March, 10 days ago I suffered spinal pain which put me out of action again. Each day that went past made me more and more anxious that my progress was being undone. I had been on a roll
Another week, another stumbling block. Having being stopped three times due to illness since I began this back in March, 10 days ago I suffered spinal pain which put me out of action again. Each day that went past made me more and more anxious that my progress was being undone. I had been on a roll
charswee
in
Couch to 5K
4 years ago
My 4 year old daughter keeps soiling herself at school but not at home 🥺
She then carried this on when she went to school in January until about three weeks ago when she got a water infection and started having wet
accidents
again. She got over the infection but has started having soiled
accidents
in school again.
She then carried this on when she went to school in January until about three weeks ago when she got a water infection and started having wet
accidents
again. She got over the infection but has started having soiled
accidents
in school again.
Mama1909
in
ERIC
4 years ago
Blood filter may calm the cytokine storm of COVID-19.
Cytokine storms created by COVID-19 are causing major organ destruction and death, and for the first time in the United States, when patients begin to show signs of trouble, physicians are replacing the usual filter in a kidney dialysis machine with a filter known to trap these tiny proteins, with the
Cytokine storms created by COVID-19 are causing major organ destruction and death, and for the first time in the United States, when patients begin to show signs of trouble, physicians are replacing the usual filter in a kidney dialysis machine with a filter known to trap these tiny proteins, with the
2greys
in
Lung Conditions Community Forum
4 years ago
Preliminary research info on Covid-19 in rheumatology patients
Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer
Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer
dawkin_S
in
NRAS
4 years ago
Does anyone on here have experience with Alcohol Related Brain Injury?
My mother has Korsakoffs syndrome caused by alcohol and I would like to connect with other carers that have experiences this.
My mother has Korsakoffs syndrome caused by alcohol and I would like to connect with other carers that have experiences this.
Rachelb94
in
Headway
4 years ago
IBS - LINACLOTIDE
Been diagnosed with IBS C since december 2019... been on linaclotide everyday since, the pain side of it has been fab as I very rarely unless I am due on my period get pains. Just wandered what things do people have for breakfast after taking the linaclotide capsules? As I cant seem to find anything
Been diagnosed with IBS C since december 2019... been on linaclotide everyday since, the pain side of it has been fab as I very rarely unless I am due on my period get pains. Just wandered what things do people have for breakfast after taking the linaclotide capsules? As I cant seem to find anything
Amb194
in
IBS Network
4 years ago
Experiences of amphotericin?
Small person is off to 5* on Friday for her fortnight of the ‘good stuff’, a little earlier than planned although mostly ok overall, but with the addition of amphotericin alongside IV colomycin and piptaz. I’ll post a proper update soonish, as there’s been quite a bit going on even with lockdown happening
Small person is off to 5* on Friday for her fortnight of the ‘good stuff’, a little earlier than planned although mostly ok overall, but with the addition of amphotericin alongside IV colomycin and piptaz. I’ll post a proper update soonish, as there’s been quite a bit going on even with lockdown happening
Hidden
in
Lung Conditions Community Forum
4 years ago
W1R3 - completed!
Got up and did my run 3 today, which I should have done yesterday but got too sore on my long walk (see previous post). I am an idiot for two reasons, one - I didn't stretch before this one, and two - I thought I was on my final run so went all out and then found out I had one more run to do so had to
Got up and did my run 3 today, which I should have done yesterday but got too sore on my long walk (see previous post). I am an idiot for two reasons, one - I didn't stretch before this one, and two - I thought I was on my final run so went all out and then found out I had one more run to do so had to
esmerice
in
Couch to 5K
4 years ago
Zombie-like, has anyone experienced episodes of this?
Has anyone experienced episodes of becoming 'zombie-like'? I have post concussion syndrome. I am a single mother with a 6, 4 and 2 year old. My 6yo has PTSD which has to be constantly managed. It is just me and my children 24 hours a day 365 days a year. My last 'zombie' episode last 7hours and I obviously
Has anyone experienced episodes of becoming 'zombie-like'? I have post concussion syndrome. I am a single mother with a 6, 4 and 2 year old. My 6yo has PTSD which has to be constantly managed. It is just me and my children 24 hours a day 365 days a year. My last 'zombie' episode last 7hours and I obviously
Lalaland88
in
Headway
4 years ago
The 4 good things to celebrate.
Hi so having completed W1&2several times this year I’m now on W3 Finished w1&2 at last Frustrated by injury (
accidents
) not anymore Fluke no -on W3r2 today Feeling very pleased with myself
Hi so having completed W1&2several times this year I’m now on W3 Finished w1&2 at last Frustrated by injury (
accidents
) not anymore Fluke no -on W3r2 today Feeling very pleased with myself
Lokki33
Graduate
in
Couch to 5K
4 years ago
Glycerine suppository
After a severe bout of diarrhoea I was unable to go the toilet for the following 6 days. For the first timeI used a glycerine suppository which had almost immediate affect. As my IBS seems to be caused by anxiety about needing to use a toilet outside my home I wonder whether it would be a good idea
After a severe bout of diarrhoea I was unable to go the toilet for the following 6 days. For the first timeI used a glycerine suppository which had almost immediate affect. As my IBS seems to be caused by anxiety about needing to use a toilet outside my home I wonder whether it would be a good idea
Salsa55
in
IBS Network
4 years ago
Another big thank you for help received
Just wanted to post this in order to acknowledge the time and effort given by jinask,and Tto express my gratitude. I know you guys do this day in day out but a thank you doesn't go amiss. Many many thanks for your time and effort spent in sending me the booklet and DVD.I received it today,Friday 1st
Just wanted to post this in order to acknowledge the time and effort given by jinask,and Tto express my gratitude. I know you guys do this day in day out but a thank you doesn't go amiss. Many many thanks for your time and effort spent in sending me the booklet and DVD.I received it today,Friday 1st
yorkieme
in
PMRGCAuk
4 years ago
Running in hail???
Ugh, had actually been really psyched up to move on to W4R1, having really surprised myself with getting through W3. I went for my first run in the rain the other day, but that was just a light sprinkle and it was actually quite refreshing, and dare I say, I think I actually enjoyed myself. However,
Ugh, had actually been really psyched up to move on to W4R1, having really surprised myself with getting through W3. I went for my first run in the rain the other day, but that was just a light sprinkle and it was actually quite refreshing, and dare I say, I think I actually enjoyed myself. However,
Bloomsbury22
Graduate
in
Couch to 5K
4 years ago
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