Still waiting: Hi not wrote for a while, I... - Endometriosis UK

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Bubblepoppy profile image
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Hi not wrote for a while, I'm still waiting on a hysterectomy for my endometriosis, my pain is so bad today I can't hardly move I'm due my prostap injection tomorrow is this normal it's sooooo bad I could cry xx

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Bubblepoppy profile image
Bubblepoppy
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Dee_EndoUK profile image
Dee_EndoUKModeratorEndometriosis UK

So sorry to hear you're in so much pain. If you haven't been on our website already, we have a comprehensive document outlining a number of different pain treatment options - perhaps there's something on there that you may not have tried already? You can find out more at endometriosis-uk.org/pain-r...

Take care x

Bubblepoppy profile image
Bubblepoppy in reply to Dee_EndoUK

Thanks I'll have a look, how long are people aloud on prostap injections because I have been on them for around ten months now it gives me the biggest headache for a week after having it. Xx

Cinderellapug profile image
Cinderellapug in reply to Bubblepoppy

Hi Bubblepoppy, I hope you are feeling better today! Just wanted to jump in on your question, I am on prostap too (since may) I saw my specialist in November and he said it is fine for me to stay on them until I have my hysterectomy at some point ( still waiting for an op date). I get horrendous headaches/migraines for a week or so after my jab and when I mentioned this he wasn’t worried and said it is a common side effect. The only thing he did mention is because I’m on prostap long term I need to take a calcium and vitamin d supplement to keep my bones from weakening.

Sending lots of love!

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