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Experiences with
Abdominal hysterectomy
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Clonidine
Hi ,I was given Clonidine to help with hot flushes, has anyone found that they work and do you get any side effects. I have many illnesses inc PsRA . Fybro,T2D, heart problems are just a few , went into menopause as result of hysterectomy in my 40s had Hrt until heart attack in my 60s I am now 70 and
Hi ,I was given Clonidine to help with hot flushes, has anyone found that they work and do you get any side effects. I have many illnesses inc PsRA . Fybro,T2D, heart problems are just a few , went into menopause as result of hysterectomy in my 40s had Hrt until heart attack in my 60s I am now 70 and
junik53
in
NRAS
8 months ago
memory loss prostap hell
my life is a living hell at the min I have been on prostap injections now for 2 1/2 years. I was meant to be having a hysterectomy but because I have a complex medical history. They keep finding excuses not to do the surgery such as can’t have general anaesthetic because of XY and Z and I can’t
my life is a living hell at the min I have been on prostap injections now for 2 1/2 years. I was meant to be having a hysterectomy but because I have a complex medical history. They keep finding excuses not to do the surgery such as can’t have general anaesthetic because of XY and Z and I can’t
Cheesychips
in
Endometriosis UK
8 months ago
Recurence
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
PaumicB123
in
My Ovacome
4 months ago
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Has anyone else struggled after catheter?
I had my endo and fibroids excised on Saturday. I'm hoping it's enough otherwise I'll be back for a hysterectomy to get rid of the adeno too. I found out the day before surgery I would be catheterised. This was fine until the catherer was removed a day later, when I really struggled to empty my bladder
I had my endo and fibroids excised on Saturday. I'm hoping it's enough otherwise I'll be back for a hysterectomy to get rid of the adeno too. I found out the day before surgery I would be catheterised. This was fine until the catherer was removed a day later, when I really struggled to empty my bladder
GreenViolin
in
Endometriosis UK
8 months ago
Hysterectomy in your 30's?
I would really love to hear from warriors who had a hysterectomy in your 30's please. Im 39 and terrified of the prospect. Particularly mental health, weight gain and not being able to have sex. Have you suffered these? Do you regret the decision? I have adeno and endo, extensive with kissing ovaries
I would really love to hear from warriors who had a hysterectomy in your 30's please. Im 39 and terrified of the prospect. Particularly mental health, weight gain and not being able to have sex. Have you suffered these? Do you regret the decision? I have adeno and endo, extensive with kissing ovaries
DarkStar85
in
Endometriosis UK
8 months ago
Prostap injection
Hi I am on prostap injection awaiting a hysterectomy and other complications/ adhesions on bowel and bladder. Had my first 2 injections with some symptoms of tiredness, bone/ back pain but nothing I couldn't handle compared to the pain I was in. However today I had my 3 rd injection and feel nauseated
Hi I am on prostap injection awaiting a hysterectomy and other complications/ adhesions on bowel and bladder. Had my first 2 injections with some symptoms of tiredness, bone/ back pain but nothing I couldn't handle compared to the pain I was in. However today I had my 3 rd injection and feel nauseated
J41m1e
in
Endometriosis UK
8 months ago
Endocrinologist needed
please could someone recommend a good, compassionate and helpful endocrinologist in the Northamptonshire area. I’ve had a hysterectomy, have hypothyroidism and also overweight. Really need to have an overhaul to check my bloods and hormone levels. GP says my thyroid is in range but I still have debilitating
please could someone recommend a good, compassionate and helpful endocrinologist in the Northamptonshire area. I’ve had a hysterectomy, have hypothyroidism and also overweight. Really need to have an overhaul to check my bloods and hormone levels. GP says my thyroid is in range but I still have debilitating
Louielover
in
Thyroid UK
8 months ago
metformin
I’m 60yoF, partial hysterectomy years ago. After hysterectomy was dx hashimotos. On levothyroxine 75mcg, continuously wt gain despite walking 7-10 miles daily. Eat healthy most often as an educated nutritionist. I convinced my MD to try Metformin to see if any help. MD would only order 500 once daily
I’m 60yoF, partial hysterectomy years ago. After hysterectomy was dx hashimotos. On levothyroxine 75mcg, continuously wt gain despite walking 7-10 miles daily. Eat healthy most often as an educated nutritionist. I convinced my MD to try Metformin to see if any help. MD would only order 500 once daily
Manhatt
in
Thyroid UK
8 months ago
Colonoscopy next week
Hello everyone, I am 40 years of age, living in Scotland, on waiting list for Hysterectomy (88 weeks so far) I have suspected endometriosis - symptoms of pain and heavy bleeding from womb. In past 6 months, have also been having issues with my bowel - extreme pain with toileting and anything vaguely
Hello everyone, I am 40 years of age, living in Scotland, on waiting list for Hysterectomy (88 weeks so far) I have suspected endometriosis - symptoms of pain and heavy bleeding from womb. In past 6 months, have also been having issues with my bowel - extreme pain with toileting and anything vaguely
Kittie5117
in
Endometriosis UK
9 months ago
HGS stage 3b
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
0151tmac69
in
My Ovacome
5 months ago
So down today 🥺 Why does everything take so long and nothing helps
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
Mindfullness4791
in
Endometriosis UK
9 months ago
awaiting full hysterectomy
hi everyone, I am now waiting a full hysterectomy (at 30) due to no other treatment for my stage 4 endometriosis. I have had 2 surgery’s but it keeps coming back. I had an MRI to see how bad it has spread and have now got to have an appointment with urologist after my MRI, does anyone know what
hi everyone, I am now waiting a full hysterectomy (at 30) due to no other treatment for my stage 4 endometriosis. I have had 2 surgery’s but it keeps coming back. I had an MRI to see how bad it has spread and have now got to have an appointment with urologist after my MRI, does anyone know what
Bethalex
in
Endometriosis UK
9 months ago
Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
akhilsalwan
in
My Ovacome
9 months ago
confused about lap
I had a CT scan and they found cysts and I believe one is an endometriosa cyst. My laparoscopy is soon, and I’m wondering if they have a look - if it’s bad, what are the reasons they would suggest a full hysterectomy for? thanks
I had a CT scan and they found cysts and I believe one is an endometriosa cyst. My laparoscopy is soon, and I’m wondering if they have a look - if it’s bad, what are the reasons they would suggest a full hysterectomy for? thanks
Dratini
in
Endometriosis UK
9 months ago
NHS and Endometriosis both caused me lots of pain and complications
I’ve had many horrible symptoms for years including blood in my stool and infertility but my GPs and NHS Gynaecologists couldn’t find out that I’ve had Endometriosis. I was even told I may have bowel cancer as there was blood in my stool, so, my GP asked me to do a colonoscopy but Colonoscopy results
I’ve had many horrible symptoms for years including blood in my stool and infertility but my GPs and NHS Gynaecologists couldn’t find out that I’ve had Endometriosis. I was even told I may have bowel cancer as there was blood in my stool, so, my GP asked me to do a colonoscopy but Colonoscopy results
Bubble-z
in
Endometriosis UK
9 months ago
Has anyones Endo returning after hysterectomy?
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
Jasmin24
in
Endometriosis UK
9 months ago
Next step is apparently hysterectomy?
Just seen specialist consultant who did my excision operation for stage 4 endo in May. He discharged me and said next stage would be hysterectomy when my pain becomes unbearable again. How long till that might happen I'm wondering. But depressing news but I guess to be expected?
Just seen specialist consultant who did my excision operation for stage 4 endo in May. He discharged me and said next stage would be hysterectomy when my pain becomes unbearable again. How long till that might happen I'm wondering. But depressing news but I guess to be expected?
Apricottree
in
Endometriosis UK
9 months ago
Help, shall I take a break or not
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries. I've been waiting for four years for my hysterectomy and I still don't have a date. My recent hormone injection appointment was cancelled and I'm wondering whether to take the opportunity to take
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries. I've been waiting for four years for my hysterectomy and I still don't have a date. My recent hormone injection appointment was cancelled and I'm wondering whether to take the opportunity to take
Em_46
in
Endometriosis UK
9 months ago
Advice needed please!
Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case. I have been on the mini pill since the op and the condition has been almost manageable and
Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case. I have been on the mini pill since the op and the condition has been almost manageable and
Husky777
in
Endometriosis UK
9 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
5 months ago
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