Advice needed please!: Hi all, I am 5... - Endometriosis UK

Endometriosis UK

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Advice needed please!

Husky777 profile image
5 Replies

Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case.

I have been on the mini pill since the op and the condition has been almost manageable and hasn't impacted my life too badly over the past couple of years, however over the past few months it has worsened and apart from the fact I am taking far too many painkillers on a daily basis it is affecting my social life and work life at times and really don't know what to try next.

My consultant has said my options are 1. Have hormone injections in my stomach to bring on the menopause quicker 2. Another op to remove what they find. Or 3. A full hysterectomy.

To be honest I don't like the idea of any of them!...but need to do something so I was hoping to find out what people have tried and what their experiences have been please.

Many thanks.

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Husky777
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Sunset-lady profile image
Sunset-lady

Hi I'm having the injection today. Mine is zoladex. I have been round the houses with this one as you are right, it sounds horrendous. I'm on provera at the moment and I was ok, but suddenly I'm very depressed and angry all the time which has been very difficult this last month. I'm 50 and had an abandoned hysterectomy as they found too many adhesions and it's all stuck together. So after seeing a specialist who said HRT was not great for me - zoladex is the way forward. It's reversible and I'llbe on it for 12 months initially. Hopefully it will shut my ovaries down for good but who knows. I need it to shrink my fibroids abd stop me bleeding. It's the blood not the pain for me. Zoladex seems to react differently for everyone. I read some women's responses who hail it as a wonder drug whilst others refer to it as pure poison. I would try it and see. If it doesn't work go for a hysterectomy but you might be able to avoid one with this. Xxx

Husky777 profile image
Husky777 in reply to Sunset-lady

Hi and thank you very much for your reply and advice. Blimey you have been through it! Must have been so tough to prepare yourself mentally for a hysterectomy and then have that outcome! What is provera please and what is this for? Good luck with the injections! hope they help. I didn't realise you have to have them for that long for the desired affect? xx

Sunset-lady profile image
Sunset-lady in reply to Husky777

Just back from the injection and it was ok. Provera is progesteron (synthetic) and used continuously can stop bleeding but it didn't for me. It makes you pseudo pregnant whereas zoladex puts you in chemical menopause. I had to go through all the side effects again before he gave me the injection; I am worried , but I don't have many options. 😢 I can't keep bleeding like this. I saw an endometriosis specialist who said zoladex was right for me so I'm going to try x

Husky777 profile image
Husky777 in reply to Sunset-lady

Ok thanks for your reply, glad the injection was ok and really hope it helps you! x

Sunset-lady profile image
Sunset-lady

I'm also on add back HRT but no more provera! I'll be taking utrogestan and estrogen gel

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