Help needed with diagnosis
Hi there I’ve been fighting with my health now on and off for about 13 yrs, I always get sent to a neurologist but after having some blood te...
How do dr dx crest syndrome? What are the real symptoms?...
Ehlers danlos, Sjogrens and A.S
Hi everyone, I'm on numerous forums but this was suggested to me as a good place to come! I'm 38 and have been very unwell for about 4 years....
How is it possible.
Hi....... There is an article about Venus Williams and her problems in the Telegraph today....
My doctor is very keen for me to take monthly Ibandronic Acid tablets of 150mg. My dentist, however is less keen as she said there can be som...
Sjogren's syndrone maybe !
It seems if I'm reading correctly that PMR and Sjogren's can appear together....
Hi all, I have recently been diagnosed with SLE after countless visits to various doctors over the past 7 years which has been a nightmare. M...
Oh dear, more kit
So, I saw a bargain on the Adidas website and bagged myself a really lightweight running jacket ready for when the heatwave ends and normal B...
How many people here have Sjogrens Syndrome?
Having noticed a few posts recently which have mentioned Sjogrens, I was wondering just how many people in the Lupus UK community have been d...
Sister and sjogrens
My sister has just experienced vaginal bleeding and I was wondering if it could be associated with Sjogrens....
Failed ESA Work Capability Assessment
I have Fibro, Raynaud's and Sjogren's and in a lot of pain plus all the other invisible symptoms but look fine on the outside....
Good days bad days
had almost a week of some pretty good days, did some traveling and site seeing ( fall colors in Michigan ), felt great except for some slight...
My doctor had just started me on fenofibrate 48 mg..... is anyone else taking this?...
Hello, new here
Hi all, a quick introduction. I’m a 52 yr old woman who lives in the Midlands....
I noticed on my bloodwork paperwork there is an assessment category and the PMR, lymphoma and " paraneoplastic myopathy " is listed too. My d...
Help at hand
Ive recently been diagnosed with lupus and so glad i found this site yesterday....
ear swelling with SS?
Does anyone with Sjogren's have problems with fluid not draining in the ears or lymph node swelling behind the ear? They suggest I use allerg...
Sjogren's or Sicca syndrome
I've had various tests ordered by my consultant neurologist as I have neuropathy and 3 autoimmune conditions along with fibro. My mouth was e...
I have a great tip for raynauds sufferers. Wear the very thin vinyl gloves under your chosen cold weather gloves....
NOT LOOKING FORWARD TO THIS!
Not looking On Wednesday I go for lip biopsy. Have been referred by rheumy....
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