Should there be a separate community for Palindromic Rheumatism?
Just a thought, it does have very poor resources on the net, and maybe a separate community would help others with the condition. I know it c...
TAPERING - CAUGHT BETWEEN THE 'DEVIL' AND THE 'DEEP BLUE SEA'
This would not necessarily be such an issue given the fact I am now tapering down again ( currently at 22.5 ) after having to up my dose to 3...
Can dry mouth /Sjogrens increase digestive problems?
I had one of those dreams when you’re about to take an exam and realise you haven’t studied. Last night it was Biology ‘ O ’ Level ( yes that...
best mattress for pmr symptoms?
I am an 80 yes old sufferer from both GCA and PMR for 3-4 years, at present on 2mg a day. Blood tests reasonably under control but still suf...
Oh dear, more kit
So, I saw a bargain on the Adidas website and bagged myself a really lightweight running jacket ready for when the heatwave ends and normal B...
Post Grad Musing! 🤔 Keep going, it really is so worth it! ❤️
Hi Runners A pretty eventful run yesterday and nothing to do with a PB! Although it might be a PB in the amount of obstacles and things that ...
I feel so tired/fatigued. soreness all over my back down to my waist....
And another one to add to the mixture!
My rheumy research team sent me off to get a scan of my glands last November after I explained to them how very dry my mouth gets. This has b...
biopsy said early stage, elastography says stage four which is cirrhosis?
Has anyone else been diagnosed by biopsy as early stage pbc then only a year later had elastography say stage four which is cirrhosis?...
My GP is unable to attribute my symptoms to Sjogrens or anything. I was told I have Sjogrens 3 years ago....
What hurts less?
Until now I have been using Otrexup ( an auto inject pen of methotrexate ). Due to cost, I will now need to switch over to methotrexate where...
Malt Lymphoma caused by Rheumatoid Arthritis
I have RA and Crohns and have now been diagnosed with a type of rare non Hodgkin so lymphoma called MALT Lymphoma, they say it’s a rare side ...
Parotid removal and Hydroxychloroquine
I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps a...
Do I have Sjogrens ??
Symptoms so many !! Multiple positive ANA'S, severe paraesthesia ( skin ), extreme dry eyes, mouth, skin......
Dental care - amazing article.. Ive been doing it ALL wrong...!! Essential reading..
Hi all - just read this amazing article. If, like me, your teeth and mouth are not very happy due to your SLE, Sicca, Sjogrens or just anythi...
Just diagnosed and scared.
She called me a week later saying that I am highly positive for PBC, refered me to a Hepatologist and said that she believes I never had Lupu...
Do I have Sjogrens ??
So, I saw my Rheumatologist today. She doesn't think I have Sjogrens....
Rayos and Plaquenil and burning feet
I was wondering if anyone is on rayos and or plaquenil and experiencing sore and burning feet? My feet are painful to walk on them and they b...
Anyone here with negative ANA results?
Hi, I've recently seen a consultant at the Royal Infirmary in Glasgow, who tells me that he is highly confident that I don't in fact have scl...
She has put me on Hydroxychloroquine for the fatigue, Nifedipine for the Raynaud’s and eye drops....
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