Hello all. Part 1 is a word to anyone I haven't answered and part 2 is a ghastly realisation re; pred. (PMRpro I need you....)
but what if I am in the percentage of PMR patients who do get it? Because now I have this steroid induced myopathy and am having to wean down...
Should there be a separate community for Palindromic Rheumatism?
Just a thought, it does have very poor resources on the net, and maybe a separate community would help others with the condition. I know it c...
TAPERING - CAUGHT BETWEEN THE 'DEVIL' AND THE 'DEEP BLUE SEA'
This would not necessarily be such an issue given the fact I am now tapering down again ( currently at 22.5 ) after having to up my dose to 3...
biopsy said early stage, elastography says stage four which is cirrhosis?
Has anyone else been diagnosed by biopsy as early stage pbc then only a year later had elastography say stage four which is cirrhosis?...
Oh dear, more kit
So, I saw a bargain on the Adidas website and bagged myself a really lightweight running jacket ready for when the heatwave ends and normal B...
Post Grad Musing! 🤔 Keep going, it really is so worth it! ❤️
Hi Runners A pretty eventful run yesterday and nothing to do with a PB! Although it might be a PB in the amount of obstacles and things that ...
I feel so tired/fatigued. soreness all over my back down to my waist....
Do I have Sjogrens ??
Symptoms so many !! Multiple positive ANA'S, severe paraesthesia ( skin ), extreme dry eyes, mouth, skin......
Malt Lymphoma caused by Rheumatoid Arthritis
I have RA and Crohns and have now been diagnosed with a type of rare non Hodgkin so lymphoma called MALT Lymphoma, they say it’s a rare side ...
What hurts less?
Until now I have been using Otrexup ( an auto inject pen of methotrexate ). Due to cost, I will now need to switch over to methotrexate where...
My GP is unable to attribute my symptoms to Sjogrens or anything. I was told I have Sjogrens 3 years ago....
Do I have Sjogrens ??
So, I saw my Rheumatologist today. She doesn't think I have Sjogrens....
Parotid removal and Hydroxychloroquine
I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps a...
Just diagnosed and scared.
She called me a week later saying that I am highly positive for PBC, refered me to a Hepatologist and said that she believes I never had Lupu...
Failed ESA Work Capability Assessment
I have Fibro, Raynaud's and Sjogren's and in a lot of pain plus all the other invisible symptoms but look fine on the outside....
Rayos and Plaquenil and burning feet
I was wondering if anyone is on rayos and or plaquenil and experiencing sore and burning feet? My feet are painful to walk on them and they b...
Help needed with diagnosis
Hi there I’ve been fighting with my health now on and off for about 13 yrs, I always get sent to a neurologist but after having some blood te...
She has put me on Hydroxychloroquine for the fatigue, Nifedipine for the Raynaud’s and eye drops....
Ehlers danlos, Sjogrens and A.S
Hi everyone, I'm on numerous forums but this was suggested to me as a good place to come! I'm 38 and have been very unwell for about 4 years....
W4 done! Undecided about how glad I am about that.
So I got up really early to get my final week 4 run done before the heat of the day. At the most painful point all you lot on the forum I cou...
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