Tracey0101

[Tracey0101]

I'm not that well at the moment and I'm still waiting to see a Neurologist been waiting since September 2023 for a proper appointment date as I have a dummy appointment for 25th December 2024 at the moment and I do have FND symptoms and I also have Sjogrens symptoms which I am having a blood test 17th May. I have lots of eye seizures and non epileptic seizures and for a couple of days my tummy isn't feeling OK and weird noises and sounds and my brain on my right side of my head just one part hurts and when I have this it's a non epileptic seizure coming on and a migraine and I having regular spasms and tremors and my skin is very tender yo touch and it feels like burning in a furnace and needles and low noises are extremely overwhelming for me at the moment and having twitches and weak and tender muscles my right leg is much higher than my left it's feels like not same length and my legs hurts so bad and they are numb all the time and they feel like they weigh tons and my body is them heavier in weight than it should be because I aren't that heavy if my legs wasn't as heavy even my both arms are very painful and I can't even lift them up one bit. They are very aching as well they feel like I have broken my arms when I haven't even broken my arms my brain feels that it's changed how it use to work and function like with hot and cold temperatures and pain levels to the very highest levels and the signals of my brain is telling me that the pain is worse as the very worst result to high degree and I can't eat very cold food and I can't touch cold things like cutlery and crockery and cartons of milk out of the fridge and can't touch even the slightest of cold I cannot bear it's not just cold or freezing cold it's also painful as well and I can't eat anything too cold either and anything hot is scolding hot as though it came out from a very boiling hot oven or furnace it rips my skin even something small that to my skin is burning hot even though to anyone else it's just warm to them not burning hot. My brain is sending signals it's boiling hot to the extreme and its more painful than it would be since I have been getting these symptoms for 4yrs now I have been diagnosed with fybromyagia in 2018 and in 2020 I was diagnosed with Raynards and although I had lots of blood tests nothing came back and although I also had test for Sjogrens syndrome 4yrs ago even though the Doctor recognised the symptoms of Sjogrens syndrome they couldn't get me the diagnosis and then just weeks ago these symptoms got worsening so now they do think I have Sjogrens syndrome but obviously I have to have the blood test on 17th May to see if I have Sjogrens syndrome and after the blood test for Sjogrens syndrome my Doctor will call me if my blood tests results as come back positive then if so she will refer me to specialist for the diagnosis for Sjogrens syndrome. I have loose stools too as some of you and a few problems with my bladder I think it sounds like I'm crazy having these symptoms because if I tell my Doctor my brain has changed he will think I am going crazy. I don't even believe my legs are part of my body as my legs feel like that they are not apart of my body anymore even though I feel my legs are numb and very tender and aching all over. It's sounds crazy huh. My arms too aching and painful both arms that I feel that I have no arms and no legs anymore even though I feel they are unbearable pain.