We are an online support community for people who experience Sarcoidosis. Join today and get support, help others, and discuss your personal...Read more
Is this site closed
Tillymay17 days ago
Hi anyone here? No one seems to come on this site anymore it's such a shame x
4 Replies3 Likes
Stage 3 of sarcoidosis
Tillymay24 days ago
My father has had sarcoidosis for about the last three years but I don't really know that much about this illness the consultant just tell u...
2 Replies1 Like
A new diagnosis of chronic pulmonary sarcoidosis!
Minara123a month ago
I'm a frantic newby... I was diagnosed this week ..I'm devastated yet relieved it wasn't a cancer diagnosis. I've had cough for p...
Sarcoidosis - I'm new
Melek56a month ago
Is anyone using steroid creams on the face to deal with sarcoidosis outbreaks upon the advice of their GP? Can sarcoidosis be found on the ...
Bev23952 months ago
Hi my name is Bev I have been discussed with sarcoidosis which is mainly affecting my lymph glands and breathing as I have previously had NH...
4 Replies1 Like
Living with sarcoidosis
Auntieannie3 months ago
Hi all, my name is Annie & I am 47 years old, I was diagnosed with Sara at 46 .... after 2 yrs of going backwards and forwards to my GP I de...
9 Replies2 Likes
How to approach G.P.?
chelle14 months ago
Hi all, i'm new here, hope it's ok to ask a couple of questions? I haven't got a diagnosis yet, but wondered if people could share how they ...
3 Replies1 Like
Janehbarnes4 months ago
I have recently been diagnosed with Sarcoidosis although I believe it started 4 years ago and was treated mistakenly for adult onset Asthm...
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still as baffled despite seeing ct scan
hypermobilecat4 months ago
I am 57 years old female. I felt ill from age 28, gradually getting worse. had an array of symptoms, suspected colitis, fatigue, bells palsy...
GingerCatJayne5 months ago
Can anyone tell me if this condition is a progressive one?
New sarcoid user
MG829 months ago
Hi sarcoid people,
My name is Helen and I am 33 years old and about to be diagnosed with an 'unusual' presentation of sarcoid.
My neurologist ...
7 Replies2 Likes
Sarcoidosis for four years
hope_4_cure9 months ago
I have lived with sarcoidosis for four years. Initially it started with a cough, and numbness in my feet and legs up to my waist. While the ...
7 Replies1 Like
chriswena year ago
I was diagnosed with Sarcoidosis last August after many scans, lung functions tests and xrays. Started on 30mg steroids and now tapered to 1...
Does Sarcoidosis effect your white blood cell counts? Since I just found out my white cells are abnormally elevated anyone have any answers?
Zena777a year ago
riggea year ago
Hi, my husband was diagnosed last summer with Sarcoidosis and a lung ade of 80. How long can you live with this condition ?? He is 53. I wou...
New Pulmonary Sarcoidosis Study
LukeMora year ago
I am looking for volunteers to take part in a breathing study at Kingston University, London.
The study looks at the effects Buteyko...
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pookie38a year ago
hi everyone i was diagnosed a year ago, i was wondering what are some of the things you guys do to take cate of yourselves. Any special diet...
Looking for people with Sarcoidosis/APS Crossover
NaggingWife2 years ago
Do you have both Sarcoidosis AND APS (Hughes Syndrome)? If so make contact. Trying to network suffers of both syndromes as it is such a rare...
Pulmonary sarc lung bleeding
Hidden3 years ago
Hi All, my boyfriend has had pulmonary sarc for 8 yrs . He got diagnosed when he had bad chest n they found lots of internal bleeding. He be...
I was told in 1990 I had sarcoidosis. I've had a cough for years. Why is my chest xray normal?
Sarkiejan3 years ago
What are your symptoms of sarcoidosis ?
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