Scared: I think I have Sarcoidosis and I am... - SarcoidosisUK

SarcoidosisUK

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Scared

Heatherd1986 profile image
4 Replies

I think I have Sarcoidosis and I am petrified.

I have a tattoo that I've had for 5 years. It has a few rough areas feels like goosebumps and 1 or 2 pimple type lumps. I suffer health anxiety as it is along with migraines and in the last year sinus issues, I've done some research and I believe I have Sarcoidosis I am 32 years old and have 3 beautiful children. Can anybody give advise on sarcodiosis please I am seeing my gp tomorrow but because I have health anxiety its likely they'll state that it's all in my head like they usually do. I'm petrified.

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Heatherd1986 profile image
Heatherd1986
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4 Replies
Achybreakyheart profile image
Achybreakyheart

Anxiety is a terrible thing! And I know telling you not to worry is unlikely to stop your worrying. My GP mentioned that she thinks I may have sarcoidosis. It is usually a very mild disease and quite treatable. Take care.

Talsam profile image
Talsam in reply toAchybreakyheart

Thank you I. Since my post I have full blown Shingles. Funny I feel better.

tjg16 profile image
tjg16

Sarcoidosis is a rare disease but people do have it.

sarcoidosisuk.org/informati... has some information that you might find helpful as does nhs.uk/conditions/sarcoidosis/

I have had it for 10+ years and it is can be managed with help from doctors,

Luvlyhubby profile image
Luvlyhubby

Hi Heather, just joined & wondered how you are. I was diagnosed with Tattoo Sarcoidosis approx 5yrs after after having my eyebrows tattooed,by someone very experienced & had oncology patients referred to her. I had my eyes,chest,neck. Lungs scanned & was relieved all was OK except they found Sarcs in my neck & one in my chest. My Dermatologist referred me to someone who deals with Tattoo Sarcoidosis who gave me 2 different creams which eventually got rid of them in my eyebrow. I am very fortunate as I've had no ongoing problems @ all. Really hope you're doing ok.

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