I was diagnosed with sarcoidosis in 2007 and it lasted until 2010. By then I had put all my lost weight back on and a CT scan confirmed that it had cleared up. I thought that was the end of it. However last year I started to lose weight again and I have now lost 2.5 stones and I am very thin. I had a dry irritating cough which lasted for about a month but cleared up. Apart from this the only other possible symptom I have is blurry eyes and slight red veins in them. I had this, only much worse, plus other symptoms last time round so I recognised the symptoms. However, I have had a chest Xray and a CT scan and both were clear. Has anyone else experienced a recurrence of sarcoidosis many years later? I would be interested in hearing about your experience, especially if, like me, you had problems getting a definite diagnosis.
Can sarcoidosis return after many years? - SarcoidosisUK
Can sarcoidosis return after many years?
Written by
junemc
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1 Reply
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Hi JuneMC.
I'm sorry to hear that you're experiencing health problems that might be linked to sarcoidosis.
We have some information on our FAQ page about diagnosing sarcoidosis:
sarcoidosisuk.org/informati...
You might find it useful to have a call with one of our nurses. You can register for a call here:
sarcoidosisuk.org/support/n...
Best wishes,
Alan, SarcoidosisUK
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