What are your symptoms of sarcoidosis ? - SarcoidosisUK
What are your symptoms of sarcoidosis ?
Please select all that apply:
I probably have all the options in various ways and levels however it mainly manifests itself with breathing difficulties, which I selected.
Numbness in legs, feet and groin.
Drop in weight and absence of appetite
My immunologist said yes, maybe, no, maybe to sarcoidosis. How were others diagnoses?
eye problems, bells palsy, headache, vertigo,fatigue,weightloss,upper abdominal pain, thirst,jerks, interstertial cystitis, As well as breathing difficulty, wheezing,chest tightness. Infections of the skin. hearing problems and ear pain.
You couldn't have described my symptoms any better. We are just like each other. Nice to know it's not just my imagination. Take care and hope you have a pain free day.
In addition to chest pain always experience dysphagia
I'm going through tests for breathlessness ,heart palpitations ,have been diagnosed with rheumatoid arthritis earlier and am now starting to wonder if all these are maybe sarcoidosis .how is a diagnosis decided ? I had sarcoidosis about 18 years ago . The breathless part scares me silly. How does everyone cope ? Would inhaler help ?
fatigue, vertigo, eye redness and floaters, headache/migraine,auras, night sweats, going hot and cold, not feeling right, facial rash mainly on chin ,nose,bells palsy. weakness,involuntary jerks . sore throat, ear pain, facial pain. pelvic pain.rib pain.
Pain all over
Swelling
Breathing issues in humidity
Blurry eyes at times
Chest pains
Back pains
Stomach pains
Neuropathy and Edema
Cramps and curls in legs arms feet hands fingers and toes
Severe Fatigue
Brain fog
Ringing ears
Sweats
Headaches
And I'm sure more.
I have got all of these symptoms plus a average spo2 of between 72-86 ! I discharged from hospital on 81%, didn’t know anything about me having sarcoidosis until I saw it on my discharge letter googled it and ended up here, I am terrified and don’t know where to turn
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